ACTION (@action4hf) 's Twitter Profile
ACTION

@action4hf

Doctors, nurses, patients/families and industry improving outcomes for children and adults with heart disease. #PedsVAD #PedsHF myactioneducation.org

ID: 918831145894273024

linkhttps://www.actionlearningnetwork.org calendar_today13-10-2017 13:29:51

2,2K Tweet

1,1K Followers

1,1K Following

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❄️ Happy Holidays from all of us at ACTION! ❄️ Wishing you warmth, joy, and a little extra heart this season. ❤️🐧 Thank you for being part of our community as we transform outcomes for kids & families. Here's to a bright, hopeful year ahead! 🌟 #HappyHolidays #HeartStrong

❄️ Happy Holidays from all of us at ACTION! ❄️

Wishing you warmth, joy, and a little extra heart this season. ❤️🐧 Thank you for being part of our community as we transform outcomes for kids & families. Here's to a bright, hopeful year ahead! 🌟

#HappyHolidays #HeartStrong
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🎆Looking ahead to 2025, ACTION is enhancing data collection to drive new #heartfailure therapies, launching a platform for patient-driven data via surveys & wearables, and expanding globally & in North America. Join us for a year of growth! #ACTION

🎆Looking ahead to 2025, ACTION is enhancing data collection to drive new #heartfailure therapies, launching a platform for patient-driven data via surveys & wearables, and expanding globally & in North America. Join us for a year of growth! #ACTION
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🚨 New Publication Alert! 🚨Our latest study on the ACTION registry, with data on 1,500+ pediatric patients across 48 centers is out! 🎉 The report highlights the registry's strengths, limitations, and areas for improvement. Read more: bit.ly/4a8Qkf9 #PedsVAD #PedsHF

🚨 New Publication Alert! 🚨Our latest study on the ACTION registry, with data on 1,500+ pediatric patients across 48 centers is out! 🎉 The report highlights the registry's strengths, limitations, and areas for improvement.

Read more: bit.ly/4a8Qkf9 #PedsVAD #PedsHF
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🎷✨ Going to #ASAIO2025 in New Orleans? Don’t miss these key pediatric sessions! 🗓️ June 4: Pediatric Device Day - ECMO, MCS disparities & innovation 🗓️ June 5: ACTION and Outcomes - real-world data, stroke M&M, & more 🔗 bit.ly/3E0Cyjn #PedsHF #PedsVAD

🎷✨ Going to #ASAIO2025 in New Orleans? Don’t miss these key pediatric sessions!

🗓️ June 4: Pediatric Device Day - ECMO, MCS disparities & innovation
🗓️ June 5: ACTION and Outcomes - real-world data, stroke M&M, & more

🔗 bit.ly/3E0Cyjn

#PedsHF #PedsVAD
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May is #AmericanStrokeMonth! 🧠 ACTION’s MARCH project is exploring aspirin-sparing regimens in kids with HeartMate 3 - and early data show no increase in bleeding or neuro events like stroke. We're working to validate results and keep driving safer #VAD care.

May is #AmericanStrokeMonth! 🧠 ACTION’s MARCH project is exploring aspirin-sparing regimens in kids with HeartMate 3 - and early data show no increase in bleeding or neuro events like stroke. We're working to validate results and keep driving safer #VAD care.
ACTION (@action4hf) 's Twitter Profile Photo

🚨Updated OPS now available! The Impella® Left CP + 5.5 with SmartAssist® One Page Summary gives you quick insights into: • Device selection • Display elements • Anticoagulation • Power sources Co-branded with Johnson & Johnson MedTech. Download here: bit.ly/4jdQAwu! #PedsHF

🚨Updated OPS now available! The Impella® Left CP + 5.5 with SmartAssist® One Page Summary gives you quick insights into: 

• Device selection
• Display elements
• Anticoagulation
• Power sources

Co-branded with <a href="/JNJMedTech/">Johnson & Johnson MedTech</a>. 

Download here: bit.ly/4jdQAwu! #PedsHF
ICCAC (@vadcoordinator) 's Twitter Profile Photo

Hey ya'll! It's time to start making your plans for #ASAIO2025. You will be able to mix and mingle with MCS Clinicians and industry members at our networking dinner. When: June 5, 7 - 9pm Register: iccac.global/events/asaio20… #ICCAC #MCSClinician ASAIO

Hey ya'll! It's time to start making your plans for #ASAIO2025. You will be able to mix and mingle with MCS Clinicians and industry members at our networking dinner. 
When: June 5, 7 - 9pm 
Register: iccac.global/events/asaio20…

#ICCAC #MCSClinician <a href="/ASAIO8/">ASAIO</a>
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As May wraps up, #ACTION honors the strength of DMD carriers - especially moms. 💪Whether carriers, caregivers, or both, these women face invisible challenges with courage and care. We’re taking action to improve outcomes for all: bit.ly/43F2uK7. #Duchenne #MDTuesday

As May wraps up, #ACTION honors the strength of DMD carriers - especially moms. 💪Whether carriers, caregivers, or both, these women face invisible challenges with courage and care.

We’re taking action to improve outcomes for all: bit.ly/43F2uK7. #Duchenne #MDTuesday
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🎉 Congrats to ACTION member Shannon Oliver from Stollery Kids! Her abstract on timing of right-sided support in BiVAD patients was accepted for a poster at #ASAIO2025. Check out the findings: bit.ly/4mzKnh8! ASAIO #PedsVAD #PedsHF #Collaboration

🎉 Congrats to ACTION member Shannon Oliver from <a href="/StolleryKids/">Stollery Kids</a>! Her abstract on timing of right-sided support in BiVAD patients was accepted for a poster at #ASAIO2025.

Check out the findings: bit.ly/4mzKnh8! <a href="/ASAIO8/">ASAIO</a> #PedsVAD #PedsHF #Collaboration
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🩺 How do pediatric heart failure docs decide when & how to prevent blood clots in kids with cardiomyopathy? Turns out - it really varies. A new ACTION study shows just how different the approaches are, and why we need clearer guidelines. Dive in: bit.ly/42strRV!

🩺 How do pediatric heart failure docs decide when &amp; how to prevent blood clots in kids with cardiomyopathy? Turns out - it really varies.

A new ACTION study shows just how different the approaches are, and why we need clearer guidelines.

Dive in: bit.ly/42strRV!
ACTION (@action4hf) 's Twitter Profile Photo

🎉ASAIO 2025 kicks off in New Orleans! Don't miss these peds sessions: 📅 June 4 – Pediatric Medical Device Day ECMO, MCS equity, & device innovation - bit.ly/3Hhiomp 📅 June 5 – ACTION & Outcomes Real-world trials, stroke M&M, VAD outcomes - bit.ly/4kiMG6H

🎉ASAIO 2025 kicks off in New Orleans! Don't miss these peds sessions:

📅 June 4 – Pediatric Medical Device Day
 ECMO, MCS equity, &amp; device innovation - bit.ly/3Hhiomp
📅 June 5 – ACTION &amp; Outcomes
 Real-world trials, stroke M&amp;M, VAD outcomes - bit.ly/4kiMG6H
ACTION (@action4hf) 's Twitter Profile Photo

How often are VADs used in kids with restrictive or hypertrophic cardiomyopathy - and how well do they work? An ACTION study in asaiojournal shows 88% of 34 kids had a positive outcome. VADs can be a life-saving bridge to transplant. Learn more: bit.ly/3HQCDY9!

How often are VADs used in kids with restrictive or hypertrophic cardiomyopathy - and how well do they work? An ACTION study in <a href="/asaiojournal/">asaiojournal</a> shows 88% of 34 kids had a positive outcome. VADs can be a life-saving bridge to transplant. 

Learn more: bit.ly/3HQCDY9!
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Exciting news! Emily Hayes’s abstract on heart transplant in dystrophinopathies was accepted for oral presentation at #WMS2025! Learn more here: bit.ly/4eiZPKY! #MDMonday #PedsHF #Collaboration

Exciting news! Emily Hayes’s abstract on heart transplant in dystrophinopathies was accepted for oral presentation at #WMS2025!

Learn more here: bit.ly/4eiZPKY! #MDMonday #PedsHF #Collaboration
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They say 8 is great - and we couldn’t agree more. ♥️ Thank you for being part of the journey. Here’s to more impact, together! #PedsHF #PedsVAD #Collaboration #ACTIONturns8

They say 8 is great - and we couldn’t agree more. ♥️ Thank you for being part of the journey. Here’s to more impact, together!

#PedsHF #PedsVAD #Collaboration #ACTIONturns8
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Registration is OPEN for the ACTION VAD Bootcamp! 📅Oct 15, 2025 | 📍Houston, TX Join us for a one-day training before the Intl Pediatric VAD & HF Summit. The day will include: • Device stations • Case discussions • Expert panel Register here: bit.ly/44vsWX2!

Registration is OPEN for the ACTION VAD Bootcamp!
📅Oct 15, 2025 | 📍Houston, TX

Join us for a one-day training before the Intl Pediatric VAD &amp; HF Summit. The day will include: 

• Device stations
• Case discussions
• Expert panel

Register here: bit.ly/44vsWX2!
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Big things are happening in pediatric heart failure - and ACTION is at the center of it. From fewer VAD strokes to more FDA-labeled devices, we’re moving the field forward together. Learn more here: bit.ly/3Ib3hLQ! #PedsHF #PedsVAD #Collaboration

Big things are happening in pediatric heart failure - and ACTION is at the center of it. 

From fewer VAD strokes to more FDA-labeled devices, we’re moving the field forward together.

Learn more here: bit.ly/3Ib3hLQ! #PedsHF #PedsVAD #Collaboration
ACTION (@action4hf) 's Twitter Profile Photo

We’ve updated the ACTION Harmonized Protocols! Nearly 40 protocols now span VAD/MCS, Heart Failure, Failing Fontan, and Muscular Dystrophy - thanks to the amazing work of our sites & Harmonization Committee. Explore them here: bit.ly/3G8txpv! #PedsVAD #PedsHF

We’ve updated the ACTION Harmonized Protocols! Nearly 40 protocols now span VAD/MCS, Heart Failure, Failing Fontan, and Muscular Dystrophy - thanks to the amazing work of our sites &amp; Harmonization Committee.

Explore them here: bit.ly/3G8txpv! #PedsVAD #PedsHF