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#Seahawks #adnpkids #adnp

EURORDIS Photo Award 2019 #ADNP #ADNPkids #RareDisease woobox.com/8d28gb/gallery…

Check out the Mama & Co. podcast, featuring Genie Egerton-Warburton, mother to Rowland and VP of ADNP kids. Hear how #ADNPsyndrome has impacted her family and led to her dedication to advocacy and research that we conduct at our Center. themamaco.com/blogs/news/ep-…

Thanks @govenorinslee

Celebrating the progress of our #ADNP research study with representatives from the ADNP kids Research Foundation - Together we work to enhance the lives of people affected by #ADNPSyndrome. #RareDiseaseDay #ShowYourStripes

Looking for more information on ADNP Syndrome, please visit ADNPkids.com and adnpfoundation.org.

#MilestoneMonday instagram.com/p/BvJu8DiHWEG/…

instagram.com/p/Bu4U222HndA/…

We are proud to work with parent groups to advance the research of #raredisorders related to #autism. Our support from ADNP kids, is a step towards a comprehensive preclinical and clinical study of #ADNP Syndrome with the goal of improved therapeutics. bit.ly/2P5mTBu

Did you know that some of the Rare Disease Day materials are translated into 8 different languages? 🤯 In which language do you support and take part on #RareDiseaseDay?

Is your loved one w/ADNP signed up for our contact registry? We have a contact registry for those diagnosed with ADNP. Registering helps to keep you up-to-date on the latest info regarding ADNP & opportunities to participate in research. Sign up at - surveymonkey.com/r/ADNP_contact…

Low-dose ketamine for ADNP syndrome drug trial preliminary results are in, and they look very promising. @[email protected] Seaver Autism Center Global Genes COMBINEDBrain Spectrum (Autism Research News) autism speaks NCATS Ketamine Update - ADNP Kids Research Foundation adnpfoundation.org/ketamine-updat…

⁦@rarebasepbc⁩ launches FUNCTION 🧠 💊🔬 #drugdiscovery w/15 #raredisease orgs. ADNP kids⁩ is proud to be an anchor ⚓️ partner alongside outstanding groups like FOXG1 Research stxbp1 ⁦⁦SynGAP Research Fund (SRF)⁩ HereditaryNeuropathy & #Hope4Harper prnewswire.com/news-releases/…

Thank you ADNP Kids Research Foundation and Simba Global for funding an ambitious $4 million program at the MIND Institute to test #GeneTherapies for #ADNPSyndrome! Sandra Sermone Fink Lab @jill_silverman_ UC Davis Stem Cell health.ucdavis.edu/mind-institute…

We are so excited to start this amazing project that we hope will help our children. Rare Disease research is funded by families - because we are desperately trying to save our children. Read about how we are stepping into gene therapy for ADNP.

We are excited to announce that our founder Sandra Sermone was awarded the Gold Presidential Volunteer Service Award from President Donald J. Trump & @GovInslee for her service work with #adnpsyndrome & the #raredisease community. LINK TO STORY: adnpfoundation.org/pr032023 #ADNP #CureADNP #advocate

I am excited to share our work in which we conducted a CRISPRi-based screen to assess 102 Autism Spectrum Disorder (ASD) risk genes in microglial uptake of synaptic material! (1/7) biorxiv.org/content/10.110…

We dove deeply into characterizing how ADNP affects microglia. We found loss of ADNP leads to decreased endocytosis, a remodeled surface proteome, and increased motility. (6/7)

The Washington rare disease group had great meetings during this year’s Rare Disease Week! EveryLife Foundation #RareDC2025 #Strongertogether

Check out ABC News's video! My son was born with a “genetic” type of profound autism, are you going to help the children with GENETIC caused #autism that they were born with?  These are the most severe #rfkjr #abcnews #news #ADNP tiktok.com/t/ZTjLtnkvq/