ALSUnitedGNY (@alsofgny) 's Twitter Profile
ALSUnitedGNY

@alsofgny

ALS United Greater New York. Care. Serving those living with ALS and their families in NYC, Long Island, Lower & Mid-Hudson Valley, and Northern & Central NJ.

ID: 15459234

linkhttp://als-ny.org calendar_today16-07-2008 20:25:22

6,6K Tweet

2,2K Followers

1,1K Following

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Proudly announce that one of our three Lou Gehrig Sports Awards will be presented to Thomas Morstead at The Lou Gehrig Legacy Gala 11/12. Join us as we honor Thomas, Dan Doctoroff, David Lubars, Adam Graves, and John Sterling. Tickets available ➡ALSGala.givesmart.com #ALS

Proudly announce that one of our three Lou Gehrig Sports Awards will be presented to <a href="/thomasmorstead/">Thomas Morstead</a>  at The Lou Gehrig Legacy Gala 11/12.  Join us as we honor Thomas, <a href="/DanDoctoroff/">Dan Doctoroff</a>, David Lubars,  Adam Graves, and John Sterling. Tickets available ➡ALSGala.givesmart.com #ALS
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Your advocacy matters! The bipartisan Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act has officially passed the House! It's time for the Senate to pass this crucial legislation to ensure veterans receive the care and support they deserve #ALS

Your advocacy matters! The bipartisan Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act has officially passed the House! It's time for the Senate to pass this crucial legislation to ensure veterans receive the care and support they deserve #ALS
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It’s GivingTuesday! All donations fuel critical research, local compassionate care, and our fight for a cure. Give & Share today! Together, we can make a difference! Donate Now 📷 bit.ly/ALSUGNYGiveTues - After you give, tag 5 friends and challenge them to do the same! #ALS

It’s GivingTuesday! All donations fuel critical research, local compassionate care, and our fight for a cure. Give &amp; Share today! Together, we can make a difference! Donate Now 📷 bit.ly/ALSUGNYGiveTues - After you give, tag 5 friends and challenge them to do the same! #ALS
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U.S. Veterans are 2x more likely to develop ALS than non-veterans. This bill expanding caregiver benefits & home-based care has passed Congress and awaits the President's signature. Thank you to all the advocates & elected officials who worked to make this happen! #ALS #Veterans

U.S. Veterans are 2x more likely to develop ALS than non-veterans. This bill expanding caregiver benefits &amp; home-based care has passed Congress and awaits the President's signature. Thank you to all the advocates &amp; elected officials who worked to make this happen! #ALS #Veterans
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We are deeply concerned about proposed CR, which would cut FY25 funding for CDMRP by 57%—from $1.5B to $650M. This cut would severely impact critical ALS research, slowing progress toward new treatments. We urge Congress to protect this vital funding. #ALSResearch #ALS #ALSUnited

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URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-to-… #ALSResearch

URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, &amp; veterans face 2x the risk. We must act NOW!  Tell your Senators to protect funding!  als-ny.org/the-threat-to-… #ALSResearch
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“Musicians United for ALS” – The Hollywood Digest thehollywooddigest.com/musicians-unit… Don’t wait! Secure tickets today for Musicians United for ALS, a benefit concert you won’t want to miss. Join us for an evening of extraordinary music in support of ALS United Greater New York #ALS

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Calling all advocates! Join ALS United Greater New York at the I AM ALS Community Summit in D.C. Virtual participation, too! Deadline to Register is April 14, 2025. Awareness & #ALS advocacy na.eventscloud.com/ereg/index.php…

Calling all advocates! Join ALS United Greater New York at the <a href="/iamalsorg/">I AM ALS</a> Community Summit in D.C. Virtual participation, too! Deadline to Register is April 14, 2025. Awareness &amp; #ALS advocacy na.eventscloud.com/ereg/index.php…
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Our thoughts are with him and his family. To learn more about ALS and the programs and services available, please visit als-ny.org. people.com/eric-dane-diag…

ALSUnitedGNY (@alsofgny) 's Twitter Profile Photo

URGENT: Ask your Rep to sign the FY2026 ALS Research funding letter supporting $375M for research that benefits patients & veterans. 2 mins to make your voice heard: April 30 bit.ly/ALSFedFunding #ALSUnited #TogetherWeEndALS

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May is #ALSAwarenessMonth a time to honor resilience, fuel progress, and stand united. This month, we shine a light on those living with the disease, their caregivers & families, and push forward with urgency toward better treatments & a cure. Together, We End ALS! #ALS

May is #ALSAwarenessMonth a time to honor resilience, fuel progress, and stand united. This month, we shine a light on those living with the disease, their caregivers &amp; families, and push forward with urgency toward better treatments &amp; a cure. Together, We End ALS! #ALS
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"Cutting medical research is giving up on the future. You can't do that... this research gives them hope to live another day." Thank you Senator Dick Durbin & the ALS Caucus. We must protect #ALS research! youtube.com/watch?v=zHcaIa…

ALSUnitedGNY (@alsofgny) 's Twitter Profile Photo

ALS United Greater New York is proud to have been an early funder of this important research and a long-standing supporter of Dr. Shneider and the Eleanor and Lou Gehrig ALS Center at Columbia University. neurosciencenews.com/als-fus-neurop… #ALS

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Anderson asked, "Part of your research... deals with military veterans developing ALS...What would be the impact of these cuts, or any cuts, on that work do?" It will stop it" said Marc Weisskopf, professor at Harvard's T.H. Chan School of Public Health on Anderson Cooper 360° #ALSResearch

Rep. Jason Crow (@repjasoncrow) 's Twitter Profile Photo

ALS affects thousands of American families & disproportionately impacts veterans. It’s time we make serious investments in finding a cure. I’m leading a bipartisan effort to protect & expand ALS research nationwide.  crow.house.gov/media/press-re…