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ANNetwork

@ann_ausnz

The Australasian Neuromuscular Network is a collaboration of professionals striving to help people affected by neuromuscular disorders in Australia and NZ

ID: 3236480358

linkhttp://www.ann.org.au calendar_today05-06-2015 01:58:47

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We have an ANNOUCEMENT! ABSTRACT UPDATE... Due to Easter the abstract submission date for the upcoming Australasian Neuromuscular Network meeting has been extended until midnight Monday 8th April, 2024.

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T -4 days to go!!! #ANNCongress2024 See you in Melbourne, Monday May 27th 8am Sheraton Ball Room Australasian Neuromuscular Network Congress 2024 🧬πŸ’ͺ🏻

T -4 days to go!!! #ANNCongress2024
See you in Melbourne, Monday May 27th 8am Sheraton Ball Room 
Australasian Neuromuscular Network Congress 2024 🧬πŸ’ͺ🏻
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Welcome to Melbourne #ANN2024 and what a glorious autumnal Melbourne morning. The ANN Congress is go! Stay tuned for all the latest breaking... World Muscle Society many thanks for sponsoring 12 #ECR who are attending and presenting their research.

Welcome to Melbourne #ANN2024 and what a glorious autumnal Melbourne morning. The ANN Congress is go!
Stay tuned for all the latest breaking...
<a href="/WorldMuscleSoc/">World Muscle Society</a> many thanks for sponsoring 12  #ECR who are attending and presenting their research.
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Dr Conrad Chris Weihl Weihl Lab from University of Washington School of Medicine is our keynote speaker discussing clinical trial readiness in LGMD. Take home message "Genetic test companies classify variants, clinicians interpret genetic variants"

Dr Conrad Chris Weihl <a href="/LabWeihl/">Weihl Lab</a> from <a href="/uwsomwwami/">University of Washington School of Medicine</a> is our keynote speaker discussing clinical trial readiness in LGMD.
Take home message "Genetic test companies classify variants, clinicians interpret genetic variants"
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A morning discussing care in adults with #Neuromuscular disease... respiratory, cardiac and obstetric care... importance of #multidisciplinary care across all talks

A morning discussing care in adults with #Neuromuscular disease... respiratory, cardiac and obstetric care... importance of #multidisciplinary care across all talks
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New paradigm of care in #paediatric #SMA patients...car seat positioning with The Royal Children's Hospital, Melbourne OT Ash Cruz, genetic counselling with Pauline McGrath Children's Health Queensland, nutritional Mx in era of DMT Katie O'Brien and emergency care plans with Dr Anita Cairns Children's Health Queensland

New paradigm of care in #paediatric #SMA patients...car seat positioning with <a href="/RCHMelbourne/">The Royal Children's Hospital, Melbourne</a> OT Ash Cruz, genetic counselling with Pauline McGrath <a href="/childhealthqld/">Children's Health Queensland</a>, nutritional Mx in era of DMT <a href="/Katie_OBee/">Katie O'Brien</a> and emergency care plans with Dr Anita Cairns <a href="/childhealthqld/">Children's Health Queensland</a>
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Vital importance for access to genetic counselling for families with children with #SMA exampled by embedding genetic counsellors into the #neuromuscular team at QCH Children's Health Queensland #ANN2024 ANNetwork

Vital importance for access to genetic counselling for families with children with #SMA exampled by embedding genetic counsellors into the #neuromuscular team at QCH <a href="/childhealthqld/">Children's Health Queensland</a> #ANN2024 <a href="/ANN_AusNZ/">ANNetwork</a>
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An update from across the pond from emjayrodrigues ...NZ Neuro genetic Registry and Biobank... registry translating to clinical trials and access to treatments! πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ» University of Auckland | Waipapa Taumata Rau

An update from across the pond from <a href="/MiriamNZNMD/">emjayrodrigues</a> ...NZ Neuro genetic Registry and Biobank... registry translating to clinical trials and access to treatments! πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ» <a href="/AucklandUni/">University of Auckland | Waipapa Taumata Rau</a>
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National Muscle Disease Bio-databank... clinicians and scientists collaborating from around Australia... working with patient advocacy groups, patients and families Murdoch Children's Research Institute (MCRI)

National Muscle Disease Bio-databank... clinicians and scientists collaborating from around Australia... working with patient advocacy groups, patients and families <a href="/MCRI_for_kids/">Murdoch Children's Research Institute (MCRI)</a>
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Embedding functional research in the clinical environment The Royal Children's Hospital, Melbourne #paediatric #Neuromuscular Clinic #gait #function #falls Kate Carroll, Katy de Valle Justine Adams Rachel Kennedy, PhD Strengths and challenges of clinician initiated research...so much data...so little time.

Embedding functional research in the clinical environment <a href="/RCHMelbourne/">The Royal Children's Hospital, Melbourne</a> #paediatric #Neuromuscular Clinic
#gait #function #falls
Kate Carroll, <a href="/katydv_physio/">Katy de Valle</a> Justine Adams <a href="/Physio_Rachel/">Rachel Kennedy, PhD</a> 

Strengths and challenges of clinician initiated research...so much data...so little time.
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Valedictory presentation from Prof @BurnsSyd at #ANN2024 Congress. Australia is not really losing you to @StJude896 Your hugely impactful research will continue to benefit the international community of children, young people and adults with CMT and NMD. Excited for next steps!

Valedictory presentation from Prof @BurnsSyd at #ANN2024 Congress. Australia is not really losing you to @StJude896 
Your hugely impactful research will continue to benefit the international community of children, young people and adults with CMT and NMD.
Excited for next steps!
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The last research presentation session of the #ANN2024 Congress covering #respiratory #mentalhealth and #sleep dysfunction, #gait in DMD, #glucose monitoring in #SMA, stress & glucose intolerance in mdx mice & respiratory function in #SMA 2&3 Bravo all πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»

The last research presentation session of the #ANN2024 Congress covering #respiratory #mentalhealth and #sleep dysfunction, #gait in DMD, #glucose monitoring in #SMA, stress &amp; glucose intolerance in mdx mice &amp; respiratory function in #SMA 2&amp;3
Bravo all πŸ‘πŸ»πŸ‘πŸ»πŸ‘πŸ»
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And that's a wrap!!! 150+ delegates from across Australia and New Zealand came to Melbourne for #ANN2024 So much shared, rich learnings and collaborations from the lab to the clinic, scientists, medical, nursing and allied health. See you all on the Sunshine Coast for #ANN2025

And that's a wrap!!!
150+ delegates from across Australia and New Zealand came to Melbourne for #ANN2024
So much shared, rich learnings and collaborations from the lab to the clinic, scientists, medical, nursing and allied health.
See you all on the Sunshine Coast for #ANN2025
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It's the first poster session Peripheral Nerve Society (PNS) and our #ANN members are presenting their research @DonlevyGabe BIA in #CMT & Rachel Kennedy, PhD #PhysicalActivity and #exercise in #CMT #PNS2024

It's the first poster session <a href="/PNSociety1/">Peripheral Nerve Society (PNS)</a> and our #ANN members are presenting their research @DonlevyGabe BIA in #CMT &amp; <a href="/Physio_Rachel/">Rachel Kennedy, PhD</a> #PhysicalActivity and #exercise in #CMT #PNS2024