APS Support UK (@apssupportuk) 's Twitter Profile
APS Support UK

@apssupportuk

APS Support UK is dedicated to raising awareness of antiphospholipid syndrome (APS), supporting anyone affected by the condition and furthering research.

ID: 485842814

linkhttp://www.aps-support.org.uk calendar_today07-02-2012 16:52:57

5,5K Tweet

2,2K Followers

985 Following

BSR (@rheumatologyuk) 's Twitter Profile Photo

šŸŽ¤ A cutting-edge course, with a different kind of expert at the lectern. Our Patient Voices course on 27 June brings patient advocates and clinical experts together to reshape how we deliver care. Be part of the conversation: bit.ly/4gP5kl2

šŸŽ¤ A cutting-edge course, with a different kind of expert at the lectern. Our Patient Voices course on 27 June brings patient advocates and clinical experts together to reshape how we deliver care.

Be part of the conversation: bit.ly/4gP5kl2
EULAR (@eular_org) 's Twitter Profile Photo

šŸŽ„ Meet inspiring individuals living with #RMDs and the experts in the rheumatology field and learn how reliable information transforms lives, empowering better health outcomes. Watch herešŸ‘‰pulse.ly/oi8kydapfy Learn morešŸ‘‰ pulse.ly/muh7ylgxsx

APS Support UK (@apssupportuk) 's Twitter Profile Photo

For #APSAM25, Different Strokes has written an excellent blog on the link between APS and stroke, helping raise vital awareness for stroke survivors and healthcare professionals: differentstrokes.co.uk/blog/understan… #APS #Stroke #StrokeAwareness

For #APSAM25, <a href="/diffstrokes/">Different Strokes</a> has written an excellent blog on the link between APS and stroke, helping raise vital awareness for stroke survivors and healthcare professionals: differentstrokes.co.uk/blog/understan…
#APS #Stroke #StrokeAwareness
APS Support UK (@apssupportuk) 's Twitter Profile Photo

A new #APS diagnosis can feel overwhelming, but you’re not alone. Learn more and connect with support groups & others who understand: aps-support.org.uk/self-help/newl… #APSMatters #APSAM25 #RareDisease #APSAwarenessMonth #NewlyDiagnosed

A new #APS diagnosis can feel overwhelming, but you’re not alone. Learn more and connect with support groups &amp; others who understand: aps-support.org.uk/self-help/newl…
#APSMatters #APSAM25 #RareDisease #APSAwarenessMonth #NewlyDiagnosed
APS Support UK (@apssupportuk) 's Twitter Profile Photo

Huge thanks to Kevin Cloherty for smashing his Glasgow 10k on Father’s Day and exceeding his fundraising target for APS Support UK! šŸ’™ Support Kevin’s amazing effort & donate: justgiving.com/page/kevincloh… #TeamAPS #Fundraising #RunningForAPS

Huge thanks to Kevin Cloherty for smashing his Glasgow 10k on Father’s Day and exceeding his fundraising target for APS Support UK! šŸ’™

Support Kevin’s amazing effort &amp; donate: justgiving.com/page/kevincloh…
#TeamAPS #Fundraising #RunningForAPS
APS Support UK (@apssupportuk) 's Twitter Profile Photo

Is #APS hereditary? Right now, there’s no single gene for APS, but some families are affected. More research is underway to find out if there’s a genetic link. šŸ”— cutt.ly/aps-faqs #APSAM25 #APSMatters #APSAwarenessMonth

Is #APS hereditary? Right now, there’s no single gene for APS, but some families are affected. More research is underway to find out if there’s a genetic link.
šŸ”— cutt.ly/aps-faqs
#APSAM25 #APSMatters #APSAwarenessMonth
Aravind Palraj (@rheumat_aravind) 's Twitter Profile Photo

šŸ’¬ Final Take: APS is a prothrombotic time bomb. Recognize it, confirm with repeat labs, and treat early to prevent catastrophe. 🩺 Follow Aravind Palraj for practical autoimmune medicine you can apply every day. #Antiphospholipid #APS #Thrombosis #MedEd #Rheumatology

APS Support UK (@apssupportuk) 's Twitter Profile Photo

#AntiphospholipidSyndrome can mimic many other conditions—like #MultipleSclerosis, #RheumatoidArthritis, or Bell’s palsy—so misdiagnosis is common. If your symptoms don’t add up, ask about #APS. šŸ”— cutt.ly/how-is-aps-dia… #APSAM25 #APSMatters #RareDisease

#AntiphospholipidSyndrome can mimic many other conditions—like #MultipleSclerosis, #RheumatoidArthritis, or Bell’s palsy—so misdiagnosis is common. If your symptoms don’t add up, ask about #APS.
šŸ”— cutt.ly/how-is-aps-dia…
#APSAM25 #APSMatters #RareDisease
Thrombosis UK (@thrombosisuk) 's Twitter Profile Photo

The most common, and often the ONLY symptom of a DVT is pain or tenderness, most usually in the leg. Yet only 50% of respondents in a recent poll, are aware of this. Learn more about blood clots and find support: thrombosisuk.org

The most common, and often the ONLY symptom of a DVT is pain or tenderness, most usually in the leg. Yet only 50% of respondents in a recent poll, are aware of this. 
Learn more about blood clots and find support: thrombosisuk.org
APS Support UK (@apssupportuk) 's Twitter Profile Photo

Thank you for joining us for #APSAwarenessMonth! Your support helps raise the profile of APS across the UK. What would you like to see for #APSAM26? Stay in touch: aps-support.org.uk/get-involved/e… From all at APS Support UK—thank you! #APSMatters

Thank you for joining us for #APSAwarenessMonth! Your support helps raise the profile of APS across the UK.
What would you like to see for #APSAM26?
Stay in touch: aps-support.org.uk/get-involved/e…
From all at APS Support UK—thank you!
#APSMatters
Sands - baby loss charity šŸ’™šŸ§” (@sandsuk) 's Twitter Profile Photo

Are you a bereaved dad who would like to connect with other men touched by pregnancy or baby loss? We're here for you šŸ’œšŸ§” Our next online support meeting takes place on Wednesday, 2 July 2025 between 7.30-9.30pm BST. Reserve your spot today šŸ‘‡ events.teams.microsoft.com/event/bfc3c6a1…

Are you a bereaved dad who would like to connect with other men touched by pregnancy or baby loss? We're here for you šŸ’œšŸ§”

Our next online support meeting takes place on Wednesday, 2 July 2025 between 7.30-9.30pm BST.

Reserve your spot today šŸ‘‡

events.teams.microsoft.com/event/bfc3c6a1…
APS Support UK (@apssupportuk) 's Twitter Profile Photo

June was also #AphasiaAwarenessMonth. #Aphasia is a communication disorder often resulting from stroke-related brain injury. APS increases stroke risk, potentially leading to aphasia due to impaired cerebral blood flow. Learn more: stroke.org.uk/stroke/effects… Stroke Association #Stroke

June was also #AphasiaAwarenessMonth. #Aphasia is a communication disorder often resulting from stroke-related brain injury. APS increases stroke risk, potentially leading to aphasia due to impaired cerebral blood flow. Learn more: stroke.org.uk/stroke/effects… <a href="/TheStrokeAssoc/">Stroke Association</a> #Stroke
Michigan Medicine (@umichmedicine) 's Twitter Profile Photo

Catastrophic antiphospholipid syndrome completely transformed Mark Hall’s daily life. But access to comprehensive care at U-M Health has been pivotal in treating his condition and redefining what it means to live with APS. Read Mark's story on our blog: michmed.org/JDkYV

Catastrophic antiphospholipid syndrome completely transformed Mark Hall’s daily life. But access to comprehensive care at U-M Health has been pivotal in treating his condition and redefining what it means to live with APS. Read Mark's story on our blog: michmed.org/JDkYV
Alberto Giraldo (@alb_giraldo) 's Twitter Profile Photo

Characteristics of triple antiphospholipid antibody-positive patients based on 2023 ACR/EULAR antiphospholipid syndrome classification criteria ā—¦ Clinical domain involvement: macrovascular venous thromboembolism 46%, macrovascular arterial thrombosis 39 %, microvascular 35%,

Characteristics of triple antiphospholipid antibody-positive patients based on 2023 ACR/EULAR antiphospholipid syndrome classification criteria
ā—¦ Clinical domain involvement: macrovascular venous thromboembolism 46%, macrovascular arterial thrombosis 39 %, microvascular 35%,
Maria Tektonidou (@mariatektonidou) 's Twitter Profile Photo

A great honour to co-author the chapter on #Antiphospholipid syndrome in the new (22nd) edition of #Harrison's Principles of Internal Medicine.

A great honour to co-author the chapter on #Antiphospholipid syndrome in the new (22nd) edition of #Harrison's Principles of Internal Medicine.
APS Support UK (@apssupportuk) 's Twitter Profile Photo

New research shows that anticardiolipin antibodies in #AntiphospholipidSyndrome react with multiple cellular components, not just one. This may explain the diverse symptoms seen in #APS and advances understanding of its mechanisms: pmc.ncbi.nlm.nih.gov/articles/PMC12…

New research shows that anticardiolipin antibodies in #AntiphospholipidSyndrome react with multiple cellular components, not just one. This may explain the diverse symptoms seen in #APS and advances understanding of its mechanisms: pmc.ncbi.nlm.nih.gov/articles/PMC12…
APS Support UK (@apssupportuk) 's Twitter Profile Photo

First reported case of neonatal intracardiac thrombosis linked to transplacental transfer of maternal aCL antibodies. Highlights importance of aPL testing in unusual #NeonatalThrombosis. Case study only; not representative of all OAPS patients: pmc.ncbi.nlm.nih.gov/articles/PMC12…

First reported case of neonatal intracardiac thrombosis linked to transplacental transfer of maternal aCL antibodies. Highlights importance of aPL testing in unusual #NeonatalThrombosis. Case study only; not representative of all OAPS patients: pmc.ncbi.nlm.nih.gov/articles/PMC12…
ISTH (@isth) 's Twitter Profile Photo

šŸŽ¬ Access #ISTH2025 presentations on-demand today! Catch the sessions you missed or revisit your favorites. Registration is still open, but only for a few more days. šŸ”— Don’t miss out: isth2025.org/on-demand

šŸŽ¬ Access #ISTH2025 presentations on-demand today! Catch the sessions you missed or revisit your favorites. Registration is still open, but only for a few more days.

šŸ”— Don’t miss out: isth2025.org/on-demand
APS Support UK (@apssupportuk) 's Twitter Profile Photo

Study finds 3 thrombotic #AntiphospholipidSyndrome #phenotypes marked by #CardiovascularRisk, hypercoagulability, or immune issues, guiding personalised treatment to improve outcomes: pubmed.ncbi.nlm.nih.gov/40518049 #Thrombosis #APS

Study finds 3 thrombotic #AntiphospholipidSyndrome #phenotypes marked by #CardiovascularRisk, hypercoagulability, or immune issues, guiding personalised treatment to improve outcomes: pubmed.ncbi.nlm.nih.gov/40518049 #Thrombosis #APS
APS Support UK (@apssupportuk) 's Twitter Profile Photo

Study finds #COVID19 causes a complex immune-related #coagulopathy with frequent but often transient #antiphospholipid antibodies, whose direct role in thrombosis is unclear and requires further large-scale study: pmc.ncbi.nlm.nih.gov/articles/PMC83…

Study finds #COVID19 causes a complex immune-related #coagulopathy with frequent but often transient #antiphospholipid antibodies, whose direct role in thrombosis is unclear and requires further large-scale study: pmc.ncbi.nlm.nih.gov/articles/PMC83…