Princess, The Tower (@apainprincess) 's Twitter Profile
Princess, The Tower

@apainprincess

Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP

ID: 934698494

linkhttp://princessinthetower.org/ calendar_today08-11-2012 15:01:49

30,30K Tweet

28,28K Followers

26,26K Following

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“When you see me out with my friends, what you don’t see is that it will take me three days to recover… When you see me looking energetic and getting things done, what you don’t see is that this is the first good day I’ve had in weeks.” buff.ly/H7dIq9S #InvisibleIllness

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“With a #ChronicIllness, like #MS, it is very difficult to know where the boundaries are, as they shift, continually… So many elements need to be monitored so I can function optimally. Due to #fatigue and #pain, it can be difficult to assess my limits.” buff.ly/hLCRNpd

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“#ChronicPain, whether from illness, #disability or surgery, can distance us from others and, seemingly, from life itself… There is always this aura of pain that separates us… the quality of life is so different… Other people exist on another plane.” buff.ly/9JM1mY1

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“If someone healthy woke up with the level of pain I live with on a daily basis, they'd be straight into A & E… The fact that I'm not crying or screaming…is not because I'm brave… You have to learn to live with it…there's no other choice.” buff.ly/LcFIXIm #ChronicPain

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“We have no idea if what we choose to do now will mean that we can’t move tomorrow… It's hard to fight something you can’t see or even predict.” Dealing With Unpredictability in Life With #ChronicPain buff.ly/QI5DCrd #chronicillness #disabilities

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“Everything takes energy. And energy is in short supply. We can get #chronicillness #burnout when we try too many things at once for too long… So just take it slow… know not to push… I just want to work some things in. Thread them in a bit. Carefully.” buff.ly/1GsSqai

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“It’s a marathon. It is the only thing I can do that day… I get halfway done and the pain hits. I start sweating, get tunnel vision, want to pass out… then deal with payback #pain for the next few days.” Grocery Shopping When You Have A #ChronicIllness buff.ly/627wJyG

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“The inconvenient truth of #ChronicPain is that chronic pain is unending… Pain patients have good days and bad days… but one thing stays constant: pain is always there… I do not remember what it feels like to have a pain-free day.” buff.ly/cKZLIJ0 Carrie Kellenberger - SpA & Fibro Advocate #cpp

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“There’s no such thing as doing anything “small” when you have a chronic condition; it’s all a big deal… I stay silent not only because it’s hard to ask for help…but because I don’t want to burden anyone.” themighty.com/topic/chronic-… #ChronicPain #ChronicIllness #Disability

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“Strength is the courage to rest when your body demands it… Strength isn’t stoicism. Sometimes #strength is grieving… Sometimes strength is leaving the house… Or making peace with staying in bed when you wish you were well enough to.” buff.ly/T58PWlN #chronicillness

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“In all my years as a doctor treating patients with #chronicillness, I never saw a patient who enjoyed feeling ill. I saw the opposite, patients who were once very active, desperately trying to find answers and treatment for their overwhelming symptoms.” buff.ly/AYoBbEi

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“When someone tells you that your illness isn’t so bad, or recommends a “surefire” cure, challenge their assumption… “I wish I could be cured as easily as you imagine. Unfortunately, it doesn’t work like that for most of us.”” buff.ly/NteHWlS #ChronicIllness #ChronicPain

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“It takes longer to get ready… I frequently have to take breaks. Sometimes I have to nap after a shower because it’s so painful and exhausting. It takes much more to even get up…because you’ve tossed and turned all night.” buff.ly/2NypO0e #ChronicPain #ChronicIllness

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“It seems that no amount of evidence will convince policymakers to abandon the false narrative that #doctors treating their patients’ #pain caused the overdose crisis. This refusal causes many #patients to needlessly suffer.” buff.ly/l7A3F37 #opioidhysteria #opioids #cpp

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“You don’t ever get a break from chronic pain. #ChronicPain is a vicious cycle, and wears you out to your core. Not only does everything hurt, but you also are always so incredibly tired from not being able to #sleep, you don’t get good rest.” buff.ly/yLkg3I6 #painsomnia

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”I haven’t had a symptom-free day in years. This is probably one of the most difficult things for people to wrap their heads around. #ChronicPain is just that—chronic. It doesn't matter if I'm smiling, laughing… I'm in pain.” buff.ly/sQVGF4t #ChronicIllness

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“Believe people with chronic conditions… I see so many ill people suffering deeply because their families and others think it’s not real, just because they can’t see it… I know they can’t possibly understand…but I wish more would try.” buff.ly/bYTXwuD #invisibleillness

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“Those who are not able to work due to #chronicillness are not on vacation. They are instead, struggling every day to do simple tasks: getting out of bed, getting dressed, making a meal, bathing… They are often too sick to leave their homes.” buff.ly/nRwQBKM #ChronicPain

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“The people closest to me didn’t understand what I was going through, and after a while didn’t care because I was ‘always sick.’ So I stopped talking about my #chronicillness… The time I needed support the most, I found myself almost completely alone.” buff.ly/GB5mupN

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“If you handle it well, they tend to forget that you’re handling it at all… It doesn’t mean that I’m okay… I still have to deal with my #chronicillness(es) and handle everything… I still have way too many medical appointments and way too much #pain.” buff.ly/Sk9g2kN