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ASH RC Data Hub Accurately Confirms SCD Diagnosis Type: ow.ly/BCJx50Un0Cl #ASH24 #SickleCell #ConquerSCD

The ASH RC Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented today at #ASH24: ow.ly/vEuY50Un726 #myeloma

Join us for these two sessions today at #ASH24🩸 #SickleCell #ConquerSCD #SCDAwareness

📢 Attention SCD Research Sites! ASH RC is calling for applications to join the SCD Research Network Council & help advance #SCD therapeutics & care starting Feb 10, 2025! 📅 🔗 Join the distribution list to receive more info: ow.ly/nPgQ50UMKzp #SickleCell #hematology

🚨 No evidence links #sicklecell trait to sudden death or acute pain crises. It is medically inaccurate to claim SCT as a cause of death on an autopsy report. Learn more about the findings from ASH published in @BloodJournal. 🩸 ow.ly/aE6x50UQlV7 #MedTwitter #SCD

🚨 Apply for the ASH RC SCD Research Network Council! 📢 SCD research sites, this is your opportunity to join the fight to advance #SickleCell therapeutics and improve care. 🔗 Learn more and apply today: ow.ly/CMjz50UWZEf #SCDResearch #hematology

It's now easier to get information about participating in #ClinicalTrials for #SickleCellDisease. Introducing the ASH RC Clinical Research Education Library, curated by our National Community Advisory Board & vetted by #SickleCell research experts! 📚 ow.ly/TNrc50USOfv

Become as savvy about clinical research for #SickleCellDisease as you are about your own health. 💪🗣️❤️ Get answers to your questions in our new library, curated by our National Community Advisory Board & vetted by #SickleCell research experts: ow.ly/vxtR50USOkA

Before you decide to join a clinical trial, researchers will provide detailed info on the purpose, procedures, risks, & benefits that should be easy to understand. This is informed consent. 💡 📚Learn about the power of choice in #SickleCell research: ow.ly/8IKu50USOoi

The new ASH RC Clinical Research Library is curated by our advisory board of individuals living with #SickleCellDisease. They ensure we include topics you want to know about, like how #ClinicalTrials researchers protect your data. Learn more: ow.ly/bRIR50USOrv 📚

Exciting leadership updates at the ASH RC! The ASH RC Board of Directors has elected Andrew (Andy) M. Evens, DO, MBA, MSc as Vice Chair and appointed Christine (Chris) McEntee, MSN, MHA as a new Director. #Hematology #MedTwitter

📢 Clinicians! Have you treated a patient with CAR-T therapy? The CAR-T Toxicities Consortium, of which ASH RC is a member, is conducting a survey to improve management. Take the survey now: ow.ly/Aqkb50VtaIY

Sickle cell disease is the most common inherited blood disorder in the U.S.—but we still don’t have the data we need to fully understand it. Drs. Wun and Wood urge investment in real-world data systems for better care. 🔗 Read: healthaffairs.org/content/forefr… #Hematology #SickleCell

🧪 On this #ClinicalTrialsDay, we highlight Dr. Rivlin's CAB study at NYH&H Through hands-on, experiential learning. Learn more: ow.ly/YbcC50VVKqc #Hematology #SickleCell #CommunityLedResearch #ClinicalTrials

Sickle cell research must focus on those it serves. Drs. Betty Pace and Titilope Fasipe advocate for prioritizing lived experience and voices of those with SCD. 🔗Read now: healthaffairs.org/content/forefr… #Hematology #SickleCell

La Biblioteca de Recursos sobre Ensayos Clínicos es tu punto de partida para aprender sobre la enfermedad de células falciformes, curada por el Comité Asesor Nacional Comunitario del ASH RC. 🔗 ow.ly/HNc650VZCPv

💡 Trusted info. Real voices. Easy-to-follow videos–-also in Spanish. The Clinical Trials Resource Library is your starting point for the #SickleCell disease, curated by ASH RC National Community Advisory Board. Learn more: ➡️ ow.ly/fo0W50VZCJQ #Hematology

¿Buscas recursos en español sobre ensayos clínicos en la enfermedad de células falciformes? La Biblioteca de Recursos sobre Ensayos Clínicos ofrece educación confiable creada con la comunidad para ayudarte a comprender la investigación. 🔗 ow.ly/i4Tg50W8Z2v

Looking for Spanish-language resources on #SickleCell clinical trials? The Clinical Trials Resource Library offers trusted education created with the community to help you navigate research. 🔗 ow.ly/B6JH50W8Z3A #Hematology

Now available: the 2025 Sickle Cell Disease Data Hub Report — the first report from the ASH RC’s SCD Data Hub Program. These data, based on real world data, lay the foundation for future research, policy, and improved care for the SCD community. 🔗 ow.ly/TYIO50WbX8B