Acromegaly Community (@acrocommunity) 's Twitter Profile
Acromegaly Community

@acrocommunity

Please visit our website at AcromegalyCommunity.org. Membership, info & support always free!

ID: 71591555

linkhttp://www.AcromegalyCommunity.org calendar_today04-09-2009 17:43:48

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Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Congress can pass meaningful #PBM reform right now. Ā  Delinking drug prices from PBM income and requiring rebate pass through to patients will lower out-of-pocket patient costs. Markwayne Mullin Congressman Kevin Hern #S1542 #S2474 #HR5376

CheckRare (@checkrare) 's Twitter Profile Photo

In the quest for an effective and convenient acromegaly treatment option, Crinetics Pharmaceuticals has developed paltusotine, an oral, once-daily investigational compound #checkrare #acromegaly AcromegalyCanada Acromegaly Community checkrare.com/a-possible-bre…

CheckRare (@checkrare) 's Twitter Profile Photo

Patrick Lewis, PharmD, Senior Director, Medical Affairs at Amryt Pharma provides an overview of acromegaly and why diagnostic delays for this rare disease are so common #checkrare #acromegaly Acromegaly Community AcromegalyCanada checkrare.com/acromegaly-and…

Dr. Maria Fleseriu (@mariafleseriu) 's Twitter Profile Photo

Free SharedIt link: rdcu.be/dJ6TP Read our collab international review led by Dr. Daniela Esposito. #Complications in #acromegaly are numerous &important to treat simultaneously. Personalized medical RX should consider all comorbidities. OHSU Brain Institute Acromegaly Community WAPO

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

The Acromegaly Community: An international haven for people living with acromegaly rarerevolutionmagazine.com/the-acromegaly… #RareRevolution

Crinetics Pharmaceuticals (@crinetics) 's Twitter Profile Photo

On #AcromegalyAwarenessDay, we collectively raise awareness and offer hope to the acromegaly community. At Crinetics, we’re proud to work alongside patient-centered organizations like Acromegaly Community, AcromegalyCanada, Pituitary Network, and The Pituitary Foundation.

On #AcromegalyAwarenessDay, we collectively raise awareness and offer hope to the acromegaly community. 

At Crinetics, we’re proud to work alongside patient-centered organizations like <a href="/AcroCommunity/">Acromegaly Community</a>, <a href="/AcromegalyCAN/">AcromegalyCanada</a>, <a href="/pituitaryorg/">Pituitary Network</a>, and <a href="/Pituitary_org/">The Pituitary Foundation</a>.
Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Pharmacy benefit managers list hundreds of prices for the same drug, some that are 51 times as much as others. Ā  It's time for #PBMReform Congressman Kevin Hern ohiocapitaljournal.com/2024/07/26/dru…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Pharmacy benefit managers control 80% of insured drug transactions in the U.S. Ā  #PBMReform is needed to hold PBMs accountable. Congressman Kevin Hern ohiocapitaljournal.com/2024/07/26/dru…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

90% of U.S. prescriptions are pills. The ā€œpill penaltyā€ puts those at risk, leading to fewer treatments and less access.Ā  Ā  Rep. Vern Buchanan Congressman Greg Steube Congressman Kevin Hern, please support the bipartisan #EPICAct to fix this harmful penalty.

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Small-molecule medicines treat cancer, heart disease & more, but they face harmful obstacles under the "pill penalty." Ā  Patients deserve better. Rep. Vern Buchanan Congressman Greg Steube Congressman Kevin Hern, please stand up for health access and innovation. Support the #EPICAct to protect patients

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

The #IRA’s ā€œpill penaltyā€ is undermining innovation in pills and tablets, medicines that 90% of Americans rely on.Ā  Ā  Congresswoman Sheila Cherfilus-McCormick Congressman Troy A. Carter Rep. Bennie G. Thompson Congressman Kevin Hern please support the #EPICAct weworkforhealth.org/post/new-resea…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

Large healthcare entities say the 340B Program wasn’t meant to lower patient costs, yet they pocket millions while vulnerable patients are left behind. Ā  Markwayne Mullin please help to #Fix340B. help.senate.gov/rep/newsroom/p…

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

•Governor Jeff Landry, Louisiana patients need reform that tackles the root cause of high drug costs: PBMs’ profits tied to inflated prices. We need to bring transparency and fairness to the system to lower out of pocket costs for patients. #LALeg

Acromegaly Community (@acrocommunity) 's Twitter Profile Photo

The 340B Program’s rapid expansion has been linked to insurance premium increases of $22 billion a year, costing families $415/year. This was never the goal. Ā  Markwayne Mullin please support #340BReform to restore integrity & reinvest savings in care. nationalalliancehealth.org/wp-content/upl…