
Acromegaly Community
@acrocommunity
Please visit our website at AcromegalyCommunity.org. Membership, info & support always free!
ID: 71591555
http://www.AcromegalyCommunity.org 04-09-2009 17:43:48
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Congress can pass meaningful #PBM reform right now. Ā Delinking drug prices from PBM income and requiring rebate pass through to patients will lower out-of-pocket patient costs. Markwayne Mullin Congressman Kevin Hern #S1542 #S2474 #HR5376

In the quest for an effective and convenient acromegaly treatment option, Crinetics Pharmaceuticals has developed paltusotine, an oral, once-daily investigational compound #checkrare #acromegaly AcromegalyCanada Acromegaly Community checkrare.com/a-possible-breā¦

Patrick Lewis, PharmD, Senior Director, Medical Affairs at Amryt Pharma provides an overview of acromegaly and why diagnostic delays for this rare disease are so common #checkrare #acromegaly Acromegaly Community AcromegalyCanada checkrare.com/acromegaly-andā¦

We have a superb line up - Martin Reincke Monica Gadelha and Mark Gurnell will be joining us, mark your calendars !@MSK_DeptOfMed Memorial Sloan Kettering Cancer Center Neurosurgery at Memorial Sloan Kettering Cushing's Support & Research Foundation Acromegaly Community

Consider joining our virtual #pituitary support group featuring @jakeeide1 . Acromegaly Community Pituitary Network Pituitary Society Head For The Cure American Brain Tumor Association


One week away - still time to sign up! MSK Department of Medicine Memorial Sloan Kettering Cancer Center Monica Gadelha Martin Reincke Acromegaly Community Cushing's Support & Research Foundation

Superb talk by Monica Gadelha! Next up is Martin Reincke and Mark Gurnell for HCP. #patients meet with Cushing's Support & Research Foundation and Acromegaly Community Memorial Sloan Kettering Cancer Center Neurosurgery at Memorial Sloan Kettering

Free SharedIt link: rdcu.be/dJ6TP Read our collab international review led by Dr. Daniela Esposito. #Complications in #acromegaly are numerous &important to treat simultaneously. Personalized medical RX should consider all comorbidities. OHSU Brain Institute Acromegaly Community WAPO


On #AcromegalyAwarenessDay, we collectively raise awareness and offer hope to the acromegaly community. At Crinetics, weāre proud to work alongside patient-centered organizations like Acromegaly Community, AcromegalyCanada, Pituitary Network, and The Pituitary Foundation.


Pharmacy benefit managers list hundreds of prices for the same drug, some that are 51 times as much as others. Ā It's time for #PBMReform Congressman Kevin Hern ohiocapitaljournal.com/2024/07/26/druā¦

Pharmacy benefit managers control 80% of insured drug transactions in the U.S. Ā #PBMReform is needed to hold PBMs accountable. Congressman Kevin Hern ohiocapitaljournal.com/2024/07/26/druā¦

Patients shouldnāt have to pay more while middlemen profit. Congress must include #PBMReform in the year-end healthcare package Gus Bilirakis Rep. Vern Buchanan Kat Cammack U.S. Rep. Kathy Castor Dr. Neal Dunn Rep. Darren Soto Congressman Greg Steube Congressman Kevin Hern

90% of U.S. prescriptions are pills. The āpill penaltyā puts those at risk, leading to fewer treatments and less access.Ā Ā Rep. Vern Buchanan Congressman Greg Steube Congressman Kevin Hern, please support the bipartisan #EPICAct to fix this harmful penalty.

Small-molecule medicines treat cancer, heart disease & more, but they face harmful obstacles under the "pill penalty." Ā Patients deserve better. Rep. Vern Buchanan Congressman Greg Steube Congressman Kevin Hern, please stand up for health access and innovation. Support the #EPICAct to protect patients

The #IRAās āpill penaltyā is undermining innovation in pills and tablets, medicines that 90% of Americans rely on.Ā Ā Congresswoman Sheila Cherfilus-McCormick Congressman Troy A. Carter Rep. Bennie G. Thompson Congressman Kevin Hern please support the #EPICAct weworkforhealth.org/post/new-reseaā¦

The #MFN rule wonāt help Medicaid patients. No cost savings, just less access & lost innovation.Ā Ā We need reform that works. The #EPICAct is the right path for patients. Gus Bilirakis Dr. Neal Dunn Senator Ashley Moody U.S. Senator Bill Cassidy, M.D. Senator Roger Wicker Markwayne Mullin

Large healthcare entities say the 340B Program wasnāt meant to lower patient costs, yet they pocket millions while vulnerable patients are left behind. Ā Markwayne Mullin please help to #Fix340B. help.senate.gov/rep/newsroom/pā¦

ā¢Governor Jeff Landry, Louisiana patients need reform that tackles the root cause of high drug costs: PBMsā profits tied to inflated prices. We need to bring transparency and fairness to the system to lower out of pocket costs for patients. #LALeg

The 340B Programās rapid expansion has been linked to insurance premium increases of $22 billion a year, costing families $415/year. This was never the goal. Ā Markwayne Mullin please support #340BReform to restore integrity & reinvest savings in care. nationalalliancehealth.org/wp-content/uplā¦