The countdown is on! ⏳ Just 1 month to go until the III MSMDS International Conference in Boston. Insightful talks. Real support. Stronger connections. 🗓 June 5–7🔗 Sign up today: acta2alliance.org/events #MSMDS #ACTA2 #RareDisease #InternationalConference

Conference interest has been so high we’ve added more hotel rooms 3 times. The deadline is May 17: acta2alliance.org/events Our t-shirt campaign is also about to close! Grab one to show support, at the conference and again on MSMDS Day, June 10. customink.com/fundraising/ke… #ACTA2

🔬 Researcher Aarushi Gandhi (Mass General) is presenting promising gene therapy work for #MSMDS at #ASGCT2025! Her team is using base editing to target the ACTA2 mutation, moving us closer to a future treatment. 💙 More 👉eurekalert.org/news-releases/… #genetherapy #ASGCT ASGCT

Big news: SanfordCoRDS will present the first-ever MSMDS patient registry at our 2025 Conference! A vital step for research & families alike. Join us in person or virtually... just 2 weeks to go! 📌 Register free: acta2alliance.org/events #MSMDS #PatientRegistry #RareDisease

📣 La III Conferencia sobre Síndrome Multisistémico de Disfunción de los Músculos Lisos (#MSMDS) y #ACTA2 se celebrará los días 5-7 de junio en Danvers (EE UU) Más información y registro 👉 acta2alliance.org/events #enfermedadesraras #epof #síndromesraros

📣 The III #MSMDS (Multisystemic Smooth Muscle Dysfunction Syndrome) and #ACTA2 Conference will be held in Danvers (USA) on June 5- 7th, 2025. More info & registration 👉 acta2alliance.org/events #rarediseases #raresyndromes

Just a few days until #MSMDSConference 2025! We've sent travel tips & arrival info to all in-person attendees. Didn’t get it? Make sure you’re registered (also if you want to attend virtually, for free too!): 👉 acta2alliance.org/events #ACTA2 #SmoothMuscle #MSMDS #Conference

The MSMDS Conference is just around the corner, and this is our last call to register! There are plenty of reasons to join. We’ve shared a few… but what would yours be? Tell us ⬇ docs.google.com/forms/d/e/1FAI… #MSMDS #Conference2025 #ACTA2 #RareDisease #SmoothMuscle

We had an amazing start to the III MSMDS International Conference. Thanks to all the speakers who made of yesterday a remarkable date for us all. They are not only excelent on their job, they are also beautiful people committed to their patients and their families. THANK YOU!

Coming to you today live from the 2025 #MSMDS International Family and Research Conference with the ACTA2 Alliance! Can't wait for another day of fun, community, and research.

Dr. Ryan Carroll, MD & Dr. Jessica Schnell, MD discuss "What Matters To You" -- asking each day what matters to parents of children in the ICU allows parents to feel more involved in their child's care and reinforce family wishes. ACTA2 Alliance #MSMDS #MSMDSConference

Now up: a presentation on the development of a large animal model for multisystemic smooth muscle dysfunction syndrome (#MSMDS). Starting with a sheep model of MSMDS and will soon follow-up with a pathway to the clinic. Exciting stuff! ACTA2 Alliance

Why use a large animal model? "Large animal models better recapitulate human disease," says Jillian Gallagher, a PhD student in the Gray-Edwards Lab at UMass Chan Medical School. #AnimalModels #MedicalResearch #MSMDS ACTA2 Alliance

Kicking off Day 3 of #MSMDSconference 2025 with Dr. Dianna Milewicz on research advances! Stay tuned for talks on ophthalmologic, surgical & GI considerations. #MSMDS #ACTA2 ♦️facebook.com/events/s/2025-…

Dr. Ahmed Rhaman opened the final session of the #MSMDSConference with talks on gut motility & gene therapy in MSMDS mice. Dr. Claire Zar-Kessler follows on GI considerations. Join online! #MSMDS #ACTA2 #SmoothMuscle facebook.com/events/s/2025-…

We tried to sum up in words what the 2025 MSMDS International Conference has meant but there's better if our MSMDS family do the talk. Tomorrow #MSMDSDay, we'll celebrate you all. THANKS for making of this small community such an amazing family. #MSMDS #msmdsconference #ACTA2

It’s #MSMDSDay 💜Today we celebrate the first connections that built a global MSMDS community. Join us by posting one thing you’ve learned about MSMDS & raise awareness today! Use #LearnMSMDS and tag @ACTA2Alliance Your voice could help other families find us! #MSMDSday #ACTA2

We couldn’t let this day end without celebrating those who make every day matter. These are our warriors. Our guiding stars through every storm. The reason we fight, the reason we hope. Today is for them. #MSMDSDay #LearnMSMDS #ACTA2 #MSMDS