Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile
Epilepsy Action Australia

@action4epilepsy

Advocates for those living with epilepsy, providing impactful services nationwide 💜

ID: 23408792

linkhttp://www.epilepsy.org.au calendar_today09-03-2009 06:13:59

7,7K Tweet

2,2K Followers

821 Following

Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Meet Zach Eagling, the 12-year-old hero who stood up to online trolls and changed the law with "Zach's Law". Recognised by Rishi Sunak's Points of Light award, he's making the internet safer for all. Read his incredible story loom.ly/wubCwTk #ZachsLaw #PointsOfLight 🌟

Meet Zach Eagling, the 12-year-old hero who stood up to online trolls and changed the law with "Zach's Law". Recognised by Rishi Sunak's Points of Light award, he's making the internet safer for all. Read his incredible story loom.ly/wubCwTk 
#ZachsLaw #PointsOfLight 🌟
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Not always. Seizures can also happen related to other medical problems. These problems can include - A high fever (children under 6 years), Low blood sugar, Alcohol or drug withdrawal, Concussion, Fainting. Access our preparation tips here: loom.ly/SJCUvDY

Not always. Seizures can also happen related to other medical problems. These problems can include - A high fever (children under 6 years), Low blood sugar, Alcohol or drug withdrawal, Concussion, Fainting. Access our preparation tips here: loom.ly/SJCUvDY
CYDA (@cydaau) 's Twitter Profile Photo

Are you the parent or caregiver of children with disability, developmental delay or neurodiversity? Whether an NDIS participant or not, we want to hear your thoughts on last year’s NDIS Review! Access our survey here: tinyurl.com/yck4kph8 #NDISReview #NDIS #HaveYourSay

Are you the parent or caregiver of children with disability, developmental delay or neurodiversity?

Whether an NDIS participant or not, we want to hear your thoughts on last year’s NDIS Review!

Access our survey here: tinyurl.com/yck4kph8

#NDISReview #NDIS #HaveYourSay
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

This 2-day #youthconference for 16-24yo helps youth with managing #epilepsy, looking after their mental health & sharing their story. Epilepsy specialist nurses will always be present. 👉REGISTER VIA EMAIL or click here: loom.ly/YEw1Wpw

This 2-day #youthconference for 16-24yo helps youth with managing #epilepsy, looking after their mental health & sharing their story. 
Epilepsy specialist nurses will always be present.
👉REGISTER VIA EMAIL or click here: loom.ly/YEw1Wpw
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Join us for an unforgettable night at our Purple Day Gala Dinner - 'Illuminating Hope'. Be inspired, entertained and be part of the impact. 🎫Purchase a ticket for $500 or rally your crew for a table of 10 at $5000. 👉 Purchase your tickets here: loom.ly/miUpzqc

Join us for an unforgettable night at our Purple Day Gala Dinner - 'Illuminating Hope'. Be inspired, entertained and be part of the impact. 🎫Purchase a ticket for $500 or rally your crew for a table of 10 at $5000.
👉 Purchase your tickets here: loom.ly/miUpzqc
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

If you answered YES, you may be eligible to join Australian Epilepsy Project & receive access to advanced testing via their #Newcastle Hub at the #johnhunterhospitalnewcastle Check your eligibility &register your interest via loom.ly/78gsNwA #EpilepsyResearch #HunterValley

If you answered YES, you may be eligible to join <a href="/AEP_Platform/">Australian Epilepsy Project</a> &amp; receive access to advanced testing via their #Newcastle Hub at the #johnhunterhospitalnewcastle
Check your eligibility &amp;register your interest via loom.ly/78gsNwA
#EpilepsyResearch #HunterValley
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

If you answered YES, you may be eligible to join Australian Epilepsy Project & receive access to advanced testing via their #Queensland Hub at the #materhospitalbrisbane. Check your eligibility &register your interest via loom.ly/78gsNwA #EpilepsyResearch #Brisbane

If you answered YES, you may be eligible to join <a href="/AEP_Platform/">Australian Epilepsy Project</a> &amp; receive access to advanced testing via their #Queensland Hub at the #materhospitalbrisbane.
Check your eligibility &amp;register your interest via loom.ly/78gsNwA
#EpilepsyResearch #Brisbane
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

If you are someone experiencing seizures or have been diagnosed with epilepsy, the Australian Epilepsy Project is accepting registrations of interest to join their study via the website at loom.ly/78gsNwA #EpilepsyAwareness #Epilepsy #BreakTheStigma #Neuroscience

If you are someone experiencing seizures or have been diagnosed with epilepsy, the <a href="/AEP_Platform/">Australian Epilepsy Project</a>  is accepting registrations of interest to join their study via the website at loom.ly/78gsNwA
#EpilepsyAwareness #Epilepsy #BreakTheStigma #Neuroscience
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Join our Youth Conference in Wagga Wagga, April 27-28, 2024. Connect with peers, learn self-management, and enjoy insightful sessions. No cost, thanks to the NSW Government. Email [email protected] or click this link: loom.ly/YEw1Wpw #EpilepsyYouthConference

Join our Youth Conference in Wagga Wagga, April 27-28, 2024. Connect with peers, learn self-management, and enjoy insightful sessions. No cost, thanks to the NSW Government. Email epilepsy@epilepsy.org.au or 
click this link: loom.ly/YEw1Wpw
#EpilepsyYouthConference
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Calling all young changemakers aged 12-25! YDAS needs your voice to co-design an online hub. Join us in shaping a platform that amplifies your rights, boosts confidence, and ensures your NDIS experience is heard and understood. Register your interest here: loom.ly/X3J44K8

Calling all young changemakers aged 12-25! YDAS needs your voice to co-design an online hub. Join us in shaping a platform that amplifies your rights, boosts confidence, and ensures your NDIS experience is heard and understood. Register your interest here: loom.ly/X3J44K8
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Today is PACS1 Syndrome Awareness, a chance to unite, raise awareness, and strive for better treatments and a cure. 💜#PACS1Syndrome #RareDiseaseAwareness

Today is PACS1 Syndrome Awareness, a chance to unite, raise awareness, and strive for better treatments and a cure. 💜#PACS1Syndrome #RareDiseaseAwareness
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

🌟 Our talented Rebecca is a finalist for the Canva Force for Good Community Awards! 🏆 Support her creative contributions by casting your vote. Let's make a difference together! 🗳️🚀 Vote here: loom.ly/pn8KT48 #RebeccaForCANVA #CommunityAwards #EpilepsyAwareness

Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Discover how prescribing trends have evolved, from a decrease in use of sodium valproate to the increasing use of levetiracetam. Notable improvements in seizure freedom rates and decreased serious abnormalities, offering valuable insights for the future. 🌐loom.ly/OGWTm4g

Discover how prescribing trends have evolved, from a decrease in use of sodium valproate to the increasing use of levetiracetam. Notable improvements in seizure freedom rates and decreased serious abnormalities, offering valuable insights for the future. 🌐loom.ly/OGWTm4g
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

🧠 SCN8A: the gene behind the scenes is responsible for creating sodium channels crucial for brain signals. Changes, whether inherited or new, can lead to developmental challenges, epilepsy, and intellectual disabilities. Join us in spreading awareness on SCN8A Awareness Day.

🧠 SCN8A: the gene behind the scenes is responsible for creating sodium channels crucial for brain signals. Changes, whether inherited or new, can lead to developmental challenges, epilepsy, and intellectual disabilities. Join us in spreading awareness on SCN8A Awareness Day.
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

🗣️ Join the conversation on the inquiry into children and young individuals with disabilities in educational settings across NSW. Your insights matter! 🌐 👉 Submit your individual perspective here: loom.ly/Y5vO5yw #NSWDisabilityInquiry #EducationIsKey #InclusiveLearning

🗣️ Join the conversation on the inquiry into children and young individuals with disabilities in educational settings across NSW. Your insights matter! 🌐
👉 Submit your individual perspective here: loom.ly/Y5vO5yw
#NSWDisabilityInquiry #EducationIsKey #InclusiveLearning
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Todd’s paralysis is a neurological condition experienced by people with epilepsy, in which they have a brief period of temporary paralysis following a seizure. Listen to the podcast here: loom.ly/GyLqtgo

Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

🌟 Exciting News! Pilot study led by Dr. Katherine A. Zarroli explores Perampanel for managing perimenstrual seizures in women with epilepsy. 🩺🔍 Stay tuned for insights into catamenial epilepsy patterns and potential breakthroughs! loom.ly/qJ3tl5Y #EpilepsyResearch

🌟 Exciting News! Pilot study led by Dr. Katherine A. Zarroli explores Perampanel for managing perimenstrual seizures in women with epilepsy. 🩺🔍 Stay tuned for insights into catamenial epilepsy patterns and potential breakthroughs!
loom.ly/qJ3tl5Y
#EpilepsyResearch
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Epilepsy, the fourth most common brain disorder, is marked by recurrent seizures and is often diagnosed in childhood or senior years. Beyond seizures, it significantly affects cognitive and emotional aspects, such as anxiety, depression, mood changes, and learning difficulties.

Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Dive into the power of the ketogenic diet for epilepsy treatment! 🍽️💪 Exploring its potential alongside anti-seizure medications? Uncover the facts and practical tips for a balanced journey. 🧠✨ Click here to read more: loom.ly/ij8Dxj4 #KetoEpilepsy #SeizureTreatment

Dive into the power of the ketogenic diet for epilepsy treatment! 🍽️💪 Exploring its potential alongside anti-seizure medications? Uncover the facts and practical tips for a balanced journey. 🧠✨ 
Click here to read more: loom.ly/ij8Dxj4

#KetoEpilepsy #SeizureTreatment
Epilepsy Action Australia (@action4epilepsy) 's Twitter Profile Photo

Join our Youth Conference in Wagga Wagga, April 27-28, 2024. Connect with peers, learn self-management, and enjoy insightful sessions. No cost, thanks to the NSW Government. Email [email protected] or click this link: loom.ly/YEw1Wpw #EpilepsyYouthConference

Join our Youth Conference in Wagga Wagga, April 27-28, 2024. Connect with peers, learn self-management, and enjoy insightful sessions. No cost, thanks to the NSW Government. Email epilepsy@epilepsy.org.au or
click this link: loom.ly/YEw1Wpw
#EpilepsyYouthConference