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Are you aged 8 - 14 and living with Duchenne? Join us on Thursday 27th February at 5pm for our Turning Point Online Hangout. Make friends, have some fun and feel understood. bit.ly/TPHangOut2025 #TurningPoint #friendship #support #confidence

Calling all siblings and caregivers of individuals with Duchenne - researchers at the University of Newcastle want to hear from you. Participate in one or all 3 surveys, and be reimbursed for you time. If you are interested please follow the below link: actionduchenne.org/calling-all-si…

Join us for a Vamorolone webinar led by DMD Care UK! Expert panel, your questions answered, and community sharing. 🗓️ Thursday 13 March 2025 🕖 7:00 PM GMT Register today! events.teams.microsoft.com/event/ac597c32…

Don't forgot it's our Time Out for Duchenne Mums tonight at 8pm. Whether you've been before or it's the first time, you'll find friendship, understanding and support. Register: bit.ly/ADTimeOut #support #community #understanding #duchennemum

Don't forget it's our Grandparents Together group TOMORROW at 10am. Join us for a warm welcome, friendship and understanding. Register: bit.ly/ADGPTogether #support #community #friendship #understanding

Are you aged 8 - 14 and living with Duchenne? Join us TOMORROW Thursday 20th March at 5pm for our Turning Point Online Hangout. Make friends, have some fun and feel understood. bit.ly/TPHangOut2025 #TurningPoint #friendship #support #confidence

TODAY 5PM - DON'T MISS IT! Are you aged 8 - 14 and living with Duchenne? Join us TODAY at 5pm for our Turning Point Online Hangout. Make friends, have some fun and feel understood. bit.ly/TPHangOut2025 #TurningPoint #friendship #support #confidence

Missed the DMD Care UK vamorolone webinar? Catch the recording now! youtube.com/watch?v=KVIj5g… The webinar covered the latest information about vamorolone to help the community to understand what this means for DMD treatment.

Wishing all of the amazing Duchenne mums in our community a Happy Mother's Day today. We see you navigating a journey you didn't plan for. We see your strength, your dedication and your endless love. We celebrate you today. #mothersday #duchennemums #love #support #strength

Don't forget it's Dads Against Duchenne today at 8pm! bit.ly/ADDADS #duchennedads #friendship #community

Don't forget that it's Yes I Can Online TODAY Tuesday 8th April at 6pm. Meet others, build friendships, feel understood. Register to join us: bit.ly/YIC2025 #yesican #friendship #support #community

Time Out for Duchenne mums is TODAY (Thursday 10th April) at 8pm. Whether it's your first time or you've joined us before, there's a warm welcome waiting for you along with support, understanding and friendship. Register: bit.ly/ADTimeOut

Don't forget that it's our group for Duchenne grandparents TOMORROW (Friday 11th April) at 10am. We'd love to see you there. REGISTER: bit.ly/ADGPTogether #grandparentstogether #support community

TOMORROW 6PM! "Managing difficult behaviours: noncompliance, defiance, and emotional outbursts" with Dr James Poysky. Join us to find the support and understanding you need for your family. Register NOW: ow.ly/1BMr50VpSPU #webinarseries2025 #support #neurodiversity

Don't forget that it's our group for Duchenne grandparents TOMORROW (Friday 2nd May) at 10am. We'd love to see you there. REGISTER: bit.ly/ADGPTogether #grandparentstogether #support community

TODAY 11.30 - 3PM A reminder to come and join Kelly in Diseworth, Derbyshire for a cuppa and some cake, meet other parents and make connections.

Don't forget to join us for Dads Against Duchenne tomorrow, 2nd June 8-9pm. bit.ly/ADDADS

We're hiring a Head of Fundraising and Communications! Come and join our amazing team and work with us to change the future for everyone living with Duchenne muscular dystrophy. actionduchenne.org/head-of-fundra…

Don't forget our Time Out for Duchenne Mum's tonight, 8pm. A safe space with understanding, shared experience and friendship. We are stronger together. Register: bit.ly/ADTimeOut #timeout #parentcarer #duchennemums #support #understanding

Don't forget it's Dads Against Duchenne tonight, 8pm. REGISTER: bit.ly/ADDADS #duchennedads #actionduchenne