Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile
Action for Pulmonary Fibrosis

@actionpfcharity

💜UK charity supporting people affected by pulmonary fibrosis
🧬funding research towards a better future for people living with PF
🤝together we are stronger

ID: 2333845447

linkhttp://www.actionpf.org calendar_today08-02-2014 17:47:08

6,6K Tweet

5,5K Followers

3,3K Following

Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

💻Couldn't attend our Talking PF: Oxygen Q&A webinar? It's now available to watch on our website. The webinar can help you to learn more about the practicalities of using oxygen from our expert panel. actionpf.org/information-an… #pulmonaryfibrosis

💻Couldn't attend our Talking PF: Oxygen Q&A webinar? It's now available to watch on our website. 

The webinar can help you to learn more about the practicalities of using oxygen from our expert panel.

actionpf.org/information-an…

#pulmonaryfibrosis
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

💜The aim of palliative care is to live as well and active as possible for as long as possible. It is sometimes associated with end-of-life care, but you can benefit from it at any time. Find out more on our website: actionpf.org/information-su… #pulmonaryfibrosis

💜The aim of palliative care is to live as well and active as possible for as long as possible. It is sometimes associated with end-of-life care, but  you can benefit from it at any time. 

Find out more on our website: 
actionpf.org/information-su…

#pulmonaryfibrosis
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

☎️Today is #HelplineAwarenessDay. Helplines provide a vital service, offering support, information and guidance for those who need it. 💜For anyone affected by PF, you don’t have to face it alone, our support line is here for you. 🎥Watch this video to learn more.

Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

🌙If you are living with or affected by pulmonary fibrosis (PF), there can be a lot to think about during #Ramadan. Read our guide for information on how you can enjoy this time whilst looking after your health: actionpf.org/information-su… #pulmonaryfibrosis

🌙If you are living with or affected by pulmonary fibrosis (PF), there can be a lot to think about during #Ramadan. 

Read our guide for information on how you can enjoy this time whilst looking after your health:
actionpf.org/information-su…

#pulmonaryfibrosis
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

🎥Watch this video for tips on managing breathlessness when bending if you're living with pulmonary fibrosis. More information on our website: actionpf.org/information-su…

Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

Our 2025 Conference Award applications are open! Are you a student, early career #researcher or healthcare professional presenting your PF work at #ATS2025 or other conferences? We offer additional financial support for those facing barriers to attend: actionpf.org/research-info/…

Our 2025 Conference Award applications are open! 

Are you a student, early career #researcher or healthcare professional presenting your PF work at #ATS2025 or other conferences? We offer additional financial support for those facing barriers to attend:

actionpf.org/research-info/…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

Are you a basic science or medical student interested in #lungscarring research? Or a clinician scientist with an idea for an 8-week project? Together with British Association for Lung Research (BALR), we're supporting 2 Summer Studentships in 2025. Applications will open in March. actionpf.org/news/apply-for…

Are you a basic science or medical student interested in #lungscarring research? Or a clinician scientist with an idea for an 8-week project?

Together with <a href="/BALRcommunity/">British Association for Lung Research (BALR)</a>, we're supporting 2 Summer Studentships in 2025. Applications will open in March.

actionpf.org/news/apply-for…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

Are you a basic science or medical student interested in #lungscarring research? Or a clinician scientist with an idea for an 8-week project? With British Association for Lung Research (BALR), we're supporting 2 Summer Studentships in 2025. ⏰Applications now open, apply by 10 May! actionpf.org/research-info/…

Are you a basic science or medical student interested in #lungscarring research? Or a clinician scientist with an idea for an 8-week project?

With <a href="/BALRcommunity/">British Association for Lung Research (BALR)</a>, we're supporting 2 Summer Studentships in 2025. 

⏰Applications now open, apply by 10 May!

actionpf.org/research-info/…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

🎉We are excited to launch our Small Research Grant programme which supports UK-based researchers in building evidence to improve care and treatment for people with pulmonary fibrosis. Find out more here: actionpf.org/research-info/…

🎉We are excited to launch our Small Research Grant programme which supports UK-based researchers in building evidence to improve care and treatment for people with pulmonary fibrosis.

Find out more here: 
actionpf.org/research-info/…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

⏰Just two weeks left to apply for our Small Research Grant programme, which supports UK-based researchers in building evidence to improve care and treatment for people living with pulmonary fibrosis. Find out more and apply here: actionpf.org/research-info/…

⏰Just two weeks left to apply for our Small Research Grant programme, which supports UK-based researchers in building evidence to improve care and treatment for people living with pulmonary fibrosis.

Find out more and apply here:
actionpf.org/research-info/…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

⏳One week to go! Our Small Research Grants programme is closing soon, so don’t miss your chance to apply. 🎥Find out more by watching this video. Apply now on our website: actionpf.org/research-info/… #pulmonaryfibrosis

Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

You may have seen an article about the cancer drug Ipilimumab being used to treat IPF. The research is at an early stage and has only been tested in mice. There have been no clinical trials yet. Find out about taking part in research from our Study Finder: actionpf.org/research/take-…

You may have seen an article about the cancer drug Ipilimumab being used to treat IPF. The research is at an early stage and has only been tested in mice. There have been no clinical trials yet.
Find out about taking part in research from our Study Finder: actionpf.org/research/take-…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

We co-hosted an important ILD roundtable at Scottish Parliament with @BoehringerUK & @lungukscotland, sponsored by Colin Smyth MSP. Thanks all who joined us to call for earlier diagnosis, better care & a national ILD pathway, & to speaker Jenni Minto MSP, Minister for Public & Women's Health.

We co-hosted an important ILD roundtable at <a href="/ScotParl/">Scottish Parliament</a> with @BoehringerUK &amp; @lungukscotland, sponsored by <a href="/colinsmythmsp/">Colin Smyth MSP</a>.

Thanks all who joined us to call for earlier diagnosis, better care &amp; a national ILD pathway, &amp; to speaker <a href="/jenni_minto/">Jenni Minto MSP</a>, Minister for Public &amp; Women's Health.
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

📣Two major global trials have found a potential new treatment for IPF and other forms of progressive pulmonary fibrosis. The drug, nerandomilast, significantly slowed lung function decline, offering hope for the first new PF treatment in over a decade. actionpf.org/news/landmark-…

📣Two major global trials have found a potential new treatment for IPF and other forms of progressive pulmonary fibrosis. The drug, nerandomilast, significantly slowed lung function decline, offering hope for the first new PF treatment in over a decade.

actionpf.org/news/landmark-…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

📣Now’s your chance to share your experience to help make positive, lasting change in PF care across the UK. Complete the 2025 'PF State of the Nation Survey' today to help influence change and ensure PF is prioritised and recognised. 📋Take part: ow.ly/BpaY50VTSyF

📣Now’s your chance to share your experience to help make positive, lasting change in PF care across the UK. 

Complete the 2025 'PF State of the Nation Survey' today to help influence change and ensure PF is prioritised and recognised.

📋Take part: ow.ly/BpaY50VTSyF
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

🎉Highlights from American Thoracic Society (ATS) Congress 2025! With the support of an APF Conference Award, Dr Jonathon Shaw and Dr James May took the global stage to share new insights into pulmonary fibrosis research. Find out more here: actionpf.org/news/advancing… #ATS2025

🎉Highlights from <a href="/atscommunity/">American Thoracic Society (ATS)</a> Congress 2025!

With the support of an APF Conference Award, Dr Jonathon Shaw and Dr James May took the global stage to share new insights into pulmonary fibrosis research.

Find out more here:
actionpf.org/news/advancing…

#ATS2025
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

🎊Our 2025 Conference Award applications are open! Are you a student, #EarlyCareerResearcher or healthcare professional presenting your work at #ERS2025 or another conference? We offer additional financial support for those facing barriers to attend. actionpf.org/research-info/…

🎊Our 2025 Conference Award applications are open!

Are you a student, #EarlyCareerResearcher or healthcare professional presenting your work at #ERS2025 or another conference? We offer additional financial support for those facing barriers to attend.

actionpf.org/research-info/…
Action for Pulmonary Fibrosis (@actionpfcharity) 's Twitter Profile Photo

We’re at the British Thoracic Society (BTS) Summer Meeting. Jo, our Senior ILD Nurse & Wendy, our Support Network Coordinator said: “It's important for APF to be at this event to meet healthcare professionals, talk to them about the services we provide and advertise how to signpost to us.”

We’re at the <a href="/BTSrespiratory/">British Thoracic Society (BTS)</a> Summer Meeting.

Jo, our Senior ILD Nurse &amp;  Wendy, our Support Network Coordinator said:

“It's important for APF to be at this event to meet healthcare professionals, talk to them about  the services we provide and advertise how to signpost to us.”