AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile
AdvocateCollaborative (ACE)

@advocatecollab

Advocates for Collaborative Education (ACE)
Mission: To unite & empower cancer advocates via collaboration, education, and dissemination of leading practices.

ID: 1276570027903209473

linkhttps://advocatecollaborative.org calendar_today26-06-2020 17:36:45

415 Tweet

718 Followers

136 Following

AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Advocates: Help us HYPE you! Are you speaking / presenting at an upcoming conference or event? Are you attending an event and looking to connect with other advocates? If so, let us know here so we can help get the word out: forms.gle/9U1pkqQFxwytVv…

Advocates:
Help us HYPE you!
Are you speaking / presenting at an upcoming conference or event? Are you attending an event and looking to connect with other advocates? If so, let us know here so we can help get the word out: forms.gle/9U1pkqQFxwytVv…
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Are you a patient, research, or policy advocate looking to learn with & from other advocates? Are you someone living with cancer looking to learn more about advocacy or becoming a patient, research, or policy advocate? We would LOVE to have you join us: advocatecollaborative.org/join-us/

Are you a patient, research, or policy advocate looking to learn with & from other advocates? Are you someone living with cancer looking to learn more about advocacy or becoming a patient, research, or policy advocate?
We would LOVE to have you join us: advocatecollaborative.org/join-us/
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

This should be a no-brainer If you are diagnosed w/ ANY metastatic cancer, a 29-month wait for benefits is asinine. A stage IV diagnosis is a life changing & life limiting. Spending hours, weeks, months toiling with benefits is NOT okay #BCAM #BreastCancerAwarenessMonth

AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

ATTN: patient and research advocates Your voice is valuable and your voice is needed within FDA Oncology Oncologic Drugs Advisory Commitee (see below) And thank you to FDA for recognizing that this value, time, and energy should be compensated.

Stacey Tinianov (she/her) MPH, BCPA (@coffeemommy) 's Twitter Profile Photo

Make Cancer Less Shitty Gitte Joergensen jj singleton Lauren Ghazal, PhD, FNP-BC Wyatt Davila Beyond being a #MakeCancerLessShitty ambassador, Gitte Joergensen is also the chair of our AdvocateCollaborative (ACE) Research Advocacy working group, and a maker of breast cancer 'horror' flicks this October (the horrors of side effects, scanxiety, disfiguring surgeries, etc.) #bcsm #bcam

AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Recently we attended COSMO and we asked some of our partners why it is important to partner with patients & advocates and here is what they had to say! Thank you to the amazing Maryam Lustberg MD, MPH, FASCO for being an amazing partner! #cancer #cancerawareness #MedTwitter

AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Join us this Thursday 11/7 for a session on Global Advocacy with Carolyn Taylor. We will be discussing The Lancet commission on Women, Power, and Cancer; the World Health Organization (WHO) global advocacy framework; and ways you can get involved in patient, research, and policy advocacy at a global level

Join us this Thursday 11/7 for a session on Global Advocacy with Carolyn Taylor. We will be discussing <a href="/TheLancet/">The Lancet</a> commission on Women, Power, and Cancer; the <a href="/WHO/">World Health Organization (WHO)</a> global advocacy framework; and ways you can get involved in patient, research, and policy advocacy at a global level
NCCS - National Coalition for Cancer Survivorship (@canceradvocacy) 's Twitter Profile Photo

Last chance to register! Join us for a webinar on the promise of Multi-Cancer Early Detection tools: latest research & its impact on screening. Don't miss this key conversation on the future of early detection! 🗓️ Register now: tinyurl.com/mw2nhrcf AdvocateCollaborative (ACE) Stacey Tinianov (she/her) MPH, BCPA

Last chance to register! Join us for a webinar on the promise of Multi-Cancer Early Detection tools: latest research &amp; its impact on screening. Don't miss this key conversation on the future of early detection! 🗓️ Register now: tinyurl.com/mw2nhrcf
<a href="/AdvocateCollab/">AdvocateCollaborative (ACE)</a>
<a href="/coffeemommy/">Stacey Tinianov (she/her) MPH, BCPA</a>
NCCS - National Coalition for Cancer Survivorship (@canceradvocacy) 's Twitter Profile Photo

Miss the webinar on the promise of Multi-Cancer Early Detection tools? Don't worry. You can still learn about the latest research & its impact on cancer screening. Don't miss out on this key conversation on the future of early detection: canceradvocacy.org/webinar-promis… AdvocateCollaborative (ACE)

Miss the webinar on the promise of Multi-Cancer Early Detection tools? Don't worry. You can still learn about the latest research &amp; its impact on cancer screening. Don't miss out on this key conversation on the future of early detection: canceradvocacy.org/webinar-promis…
<a href="/AdvocateCollab/">AdvocateCollaborative (ACE)</a>
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Ooops, damn. Sorry. (You're on the list, I just missed typing it) Would it work if I said, "we were just saving the breast for last?" Omigawd, just typed 'breast' instead of 'best' and, honestly, just gonna leave it like that #SABCS24

AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

We finally made it to Instagram! We meet virtually, but every now and again the stars align & some of us can connect at events in person! In honor of our first IG post, here is a throwback to our first face-to-face at ASCO in 2023 🎉#PatientAdvocacy instagram.com/advocatecoll...

We finally made it to Instagram! We meet virtually, but every now and again the stars align &amp; some of us can connect at events in person! In honor of our first IG post, here is a throwback to our first face-to-face at ASCO in 2023 🎉#PatientAdvocacy
instagram.com/advocatecoll...
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Wonderful to kick off the new year by reconnecting with some of our advocates to discuss the evolution of the organization, upcoming presentations, and continued needs across patient, research, and policy advocacy. #bcsm #btsm #crcsm #gyncsm #lcsm

Wonderful to kick off the new year by reconnecting with some of our advocates to discuss the evolution of the organization, upcoming presentations, and continued needs across patient, research, and policy advocacy.
#bcsm #btsm #crcsm #gyncsm #lcsm
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

REMINDER: ACE Meeting on cancer vaccines today 1pmPT/4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion

REMINDER: ACE Meeting on cancer vaccines today 1pmPT/4pmET. Join us to hear from advocate &amp; ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&amp;A / discussion
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

DYK when you google Medical Aid in Dying or Death with Dignity, the first search item that pops up is the National Suicide Hotline? Please join us today for an ACE conversation with advocate Abigail Johnston about what Medical Aid in Dying really involves & why it exists #hpm

DYK when you google Medical Aid in Dying or Death with Dignity, the first search item that pops up is the National Suicide Hotline?
Please join us today for an ACE conversation with advocate <a href="/AMJohnston1315/">Abigail Johnston</a> about what Medical Aid in Dying really involves &amp; why it exists #hpm
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

Reminder we are hosting a Town Hall today for @advocatecollab members at 10amPT / 1pmET to discuss impacts of the new administration changes on our advocacy. What we know, what we still need to find out, and how best to move forward. #PatientAdvocacy #CancerResearch

Reminder we are hosting a Town Hall today for @advocatecollab members at 10amPT / 1pmET to discuss impacts of the new administration changes on our advocacy. What we know, what we still need to find out, and how best to move forward.  #PatientAdvocacy #CancerResearch
AdvocateCollaborative (ACE) (@advocatecollab) 's Twitter Profile Photo

REMINDER to @advocatecollab members: Please join us tomorrow 3/6 at 10amPT/1pmET for a presentation by advocate Karen Merritt on the DPYD gene and the value of, and the need for, DPD deficiency testing before fluoropyrimidine chemotherapy #PatientAdvocacy

REMINDER to @advocatecollab members:
Please join us tomorrow 3/6 at 10amPT/1pmET for a presentation by advocate Karen Merritt on the DPYD gene and the value of, and the need for, DPD deficiency testing before fluoropyrimidine chemotherapy #PatientAdvocacy