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Still taking bookings for our virtual conference.

The countdown is on to our virtual conference this Saturday 17 October. Booking up fast so follow the link below to book your place.

Today’s the day of our virtual conference! #Excited If you didn’t get the conference email & have booked or you have any other queries contact us [email protected]

Our first session is on the genetics of #Albinism with Jay Self & Helena Lee #AFConference2020

Drs Jay Self & Helena Lee of Southampton University explain how oculo-cutaneous #Albinism is inherited. #AFConference2020

Why is genetic testing for #Albinism so important? 1)It’s not always obvious. 2)Can be associated with other medical conditions (syndromic) 3)”Why q’s” from family of person w Albinism can only be answered by genetic testing. #AFConference2020

Dr Jay Self “Albinism is not a binary condition. There are many types, colours and pigmentations. Not an on/off switch.” #AFConference2020

Jay Self “What can parents of children with #Albinism do? 1)Request thorough genetic testing 2) Make sure basics are done (glasses, squint care etc.) 3) Get involved with research 4) Join Albinism Fellowship!” #AFConference2020

The hashtag for our virtual #Albinism Fellowship conference today is #AFConference2020

Time for our AGM & parent discussion groups: new parents, returning parents & “Breaking Down Barriers” for parents of children with Albinism from #BAME community #AFConference2020

AGM complete & we’re into the parents sessions #AFConference2020

We’re now in the schools section of our conference with QTVI Alison Blackman. Breakout sessions are nursery, primary & secondary. #AFConference2020

We’re in our PIP & DLA session of the Albinism Fellowship virtual conference. Speaker is Mike Hughes, expert in welfare & benefits for people with sight loss. #AFConference2020

Mike Hughes reminds us that under case law on welfare benefits, seeing is considered a bodily function! #Albinism #SightLoss #AFConference2020

Children & teens with #Albinism session now. They’re telling each other about their favourite hobbies & the technology they use at school.

Enjoying our final session , which is for Adults with Albinism. Talking about work, managing posture when working with low vision & hobbies. #AFConference2020

Last Saturday Albinism Fellowship held #AFConference2020, so we thought it would be a great time to look at Goalball UK's involvement in the conferences over the years! #GoalballFamily 🔵💙 Follow the link below to check it out! ow.ly/yUJb50BYjMe

In this week's Featured Thursday we caught up with Karina Lang from Winchester Goalball Club (@WinchGoalball) who recently supported Albinism Fellowship to deliver their annual Albinism Fellowship Conference! #GoalballFamily 🔵💙 ow.ly/DhhO50BXhl4

If you're looking for a book that helps explain #Nystagmus to a child aged 7+ then look no further than 'Can I tell you about Nystagmus?' by Nadine Neckles, herself a nystagmus mum. Nadine's wonderful book is now back in stock in our online shop: nystagmusnetwork.myshopify.com/collections/ch…

Next week (4-7 Nov.) we will hold the 5EDA International #Albinism meeting ONLINE, organized by #Genespoir and #AlbinismEurope. There are talks planned for researchers, for non-scientists and for non-experts health care personnel. All info available from 5EDA albinism web site.