Alice's Arc (@alicesarc) 's Twitter Profile
Alice's Arc

@alicesarc

A children's cancer charity on a mission to raise money to fund research in to finding a cure and less harsh treatments for the cancer rhabdomyosaroma.

ID: 943563999920230403

linkhttps://www.alicesarc.org/ calendar_today20-12-2017 19:29:22

521 Tweet

532 Followers

405 Following

Alice's Arc (@alicesarc) 's Twitter Profile Photo

A pleasure to attend the first @EPSSG Biology European Committee meeting to discuss paediatric sarcoma research. A brainstorm involving multi stakeholders took place to define future work and funding models. #EpSSG #rhabdomyosarcoma #research

A pleasure to attend the first @EPSSG Biology European Committee meeting to discuss paediatric sarcoma research. A brainstorm involving multi stakeholders took place to define future work and funding models. #EpSSG #rhabdomyosarcoma #research
REFoRMS Project (@reforms_rhabdo) 's Twitter Profile Photo

The Living-REFoRMS reports are now also available to read on the Alice's Arc website! alicesarc.org/our-research/ It's so important to have our findings publicly available for everyone to read online so this is great news! 😀 #rhabdomyosarcoma #childhoodcancerawarenessmonth

Alice's Arc (@alicesarc) 's Twitter Profile Photo

*SAVE THE DATE: 10 YEARS OF ALICE'S ARC* Excited that we will be holding a charity 'Go Gold' fundraising event to mark 10 years since the founding of Alice's Arc. It will be held on Saturday 22nd March 2025 in London. Please do PM me if you'd like to attend. More details soon.

*SAVE THE DATE: 10 YEARS OF ALICE'S ARC*
Excited that we will be holding a charity 'Go Gold' fundraising event to mark 10 years since the founding of Alice's Arc. It will be held on Saturday 22nd March 2025 in London. Please do PM me if you'd like to attend. More details soon.
Alice's Arc (@alicesarc) 's Twitter Profile Photo

ROYAL PARKS HALF - SUNDAY 12TH OCTOBER 2025 We aim to have more runners and to exceed the £120K raised in 2023. CAN YOU HELP? We ask for minimum of £500 raised, provide a running vest and support/snacks & community at our marquee space in the village. #rhabdomyosarcoma

ROYAL PARKS HALF - SUNDAY 12TH OCTOBER 2025
We aim to have more runners and to exceed the £120K raised in 2023. 

CAN YOU HELP? We ask for minimum of £500 raised, provide a running vest and support/snacks & community at our marquee space in the village. 
#rhabdomyosarcoma
Science and Innovation at Cancer Research UK (@crukresearch) 's Twitter Profile Photo

🚨 Announcing the speakers for our #ExploringCYPCancers webinar on therapeutic discovery research. ⭐ Sara Wakeling (Alice's Arc) ⭐ Yael Mossé (Children's Hospital) ⭐ Charles Keller (cc-TDI) ⭐ Laura Donovan (UCL Great Ormond Street Institute of Child Health) Join us on 25 Nov 👉 bit.ly/4gZmzAK

🚨 Announcing the speakers for our #ExploringCYPCancers webinar on therapeutic discovery research. 

⭐ Sara Wakeling (<a href="/AlicesArc/">Alice's Arc</a>) 
⭐ Yael Mossé (<a href="/ChildrensPhila/">Children's Hospital</a>) 
⭐ Charles Keller (<a href="/cctdilab/">cc-TDI</a>) 
⭐ Laura Donovan (<a href="/UCLchildhealth/">UCL Great Ormond Street Institute of Child Health</a>) 

Join us on 25 Nov 👉 bit.ly/4gZmzAK
Science and Innovation at Cancer Research UK (@crukresearch) 's Twitter Profile Photo

Join us on 25 Nov to hear from patient advocate Sara Wakeling on why developing better treatments is urgently needed. Yael Mossé, Charles Keller & Laura Donovan will talk about their research in children's & young people's #Cancers 👉 bit.ly/4gZmzAK #ExploringCYPCancers

Join us on 25 Nov to hear from patient advocate Sara Wakeling on why developing better treatments is urgently needed. Yael Mossé, Charles Keller &amp; Laura Donovan will talk about their research in children's &amp; young people's #Cancers 👉 bit.ly/4gZmzAK #ExploringCYPCancers
Alice's Arc (@alicesarc) 's Twitter Profile Photo

An excellent article from our trustee Dr Natalie Carpenter. 'Simply sit with me in the dark.....' a powerful message about coping with loss. Natalie applies this concept to our support groups. #togetherwearestronger #Grief #youarenotalone

DaniellaLogunFoundation (DLF) (@daniellalogun) 's Twitter Profile Photo

Honoured to meet Sarah, mum to Neive, who passed away from a rhabdomyosarcoma in 2023 & Sara and David, cofounders of Alice's Arc at the Children with Cancer UK Fundraising Gala at the The Peninsula Hotels Your stories inspire us to work harder to reach more children #DanniesLegacy DaniellaLogunFoundation (DLF)

Honoured to meet Sarah, mum to Neive, who passed away from a rhabdomyosarcoma in 2023 &amp; Sara and David, cofounders of <a href="/AlicesArc/">Alice's Arc</a> at the <a href="/CwC_UK/">Children with Cancer UK</a> Fundraising Gala at the <a href="/PeninsulaHotels/">The Peninsula Hotels</a>  Your stories inspire us to work harder to reach more children #DanniesLegacy <a href="/DaniellaLogun/">DaniellaLogunFoundation (DLF)</a>
ALADDIN (@aladdin_edu) 's Twitter Profile Photo

The brand new episode of the ALADDIN podcast is now available🎙️ Our host Sara Wakeling speaks to Professor of Paediatric Oncology, Pamela Kearns and expert advocate Donna Ludwinski about the importance of academic clinical trials🔍 Listen now: portal.aladdin-education.eu/podcast

The brand new episode of the ALADDIN podcast is now available🎙️

Our host Sara Wakeling speaks to Professor of Paediatric Oncology, Pamela Kearns and expert advocate Donna Ludwinski about the importance of academic clinical trials🔍

Listen now: portal.aladdin-education.eu/podcast
Alice's Arc (@alicesarc) 's Twitter Profile Photo

Our final Arc of 2024, Jake's Arc. For Jake who died in April this year, just two weeks before his 14th birthday. Fusion positive RMS again. It needs more attention. It needs new treatments. Read Jake's Arc. Delighted to welcome Jake's supporters. alicesarc.org/arc/jake-swins…

Our final Arc of 2024, Jake's Arc. For Jake who died in April this year, just two weeks before his 14th birthday. Fusion positive RMS again. It needs more attention. It needs new treatments. Read Jake's Arc. Delighted to welcome Jake's supporters.  alicesarc.org/arc/jake-swins…
Alice's Arc (@alicesarc) 's Twitter Profile Photo

Happy 2025 to everyone! It's a milestone year for us. Plenty of fundraising, RMS research strategy building, promoting our work over the last 10 years and much more. Always dedicated to those impacted by RMS - past, present and future. #thearcs #togetherwearestronger #RMS

Happy 2025 to everyone! It's a milestone year for us. Plenty of fundraising, RMS research strategy building, promoting our work over the last 10 years and much more. Always dedicated to those impacted by RMS - past, present and future. #thearcs #togetherwearestronger #RMS
Alice's Arc (@alicesarc) 's Twitter Profile Photo

Following a competitive process, delighted to announce our first US RMS grant in partnership with St. Baldrick's Foundation aiming for new immunotherapies for kids with RMS. So proud that Drs Mosse & Maris are leading this work. Cancer Center @ CHOP CHOP Research #thearcs #RMS

Alice's Arc (@alicesarc) 's Twitter Profile Photo

10 YEARS OF ALICE'S ARC EVENT: SATURDAY 22ND MARCH 2025 Come and join us at our infamous 'Go Gold Casino Night' along with families, scientists, medics & corporate supporters. To purchase tickets or to make a donation, click here. justgiving.com/page/go-gold-1…

10 YEARS OF ALICE'S ARC EVENT: SATURDAY 22ND MARCH 2025 Come and join us at our infamous 'Go Gold Casino Night' along with families, scientists, medics &amp; corporate supporters. To purchase tickets or to make a donation, click here. justgiving.com/page/go-gold-1…
ALADDIN (@aladdin_edu) 's Twitter Profile Photo

The latest episode of the ALADDIN podcast is here! This month, expert patient advocates Nick Bird, Nicole Scobie, and Antonia Palmer share their experiences of engaging in drug development research. Listen now on Spotify: creators.spotify.com/pod/show/aladd…

The latest episode of the ALADDIN podcast is here!

This month, expert patient advocates Nick Bird, Nicole Scobie, and Antonia Palmer share their experiences of engaging in drug development research.

Listen now on Spotify: creators.spotify.com/pod/show/aladd…
The ICR (@icr_london) 's Twitter Profile Photo

In 2019 Alice passed away, just two weeks before her eighth birthday. She’d been diagnosed with rhabdomyosarcoma. On #InternationalChildhoodCancerDay, her mum speaks about her beloved daughter’s legacy and the achievements of the charity Alice's Arc ♥️ icr.ac.uk/research-and-d…

In 2019 Alice passed away, just two weeks before her eighth birthday. She’d been diagnosed with rhabdomyosarcoma. 

On #InternationalChildhoodCancerDay, her mum speaks about her beloved daughter’s legacy and the achievements of the charity <a href="/AlicesArc/">Alice's Arc</a> ♥️

icr.ac.uk/research-and-d…
REFoRMS Project (@reforms_rhabdo) 's Twitter Profile Photo

The 5th update for the living-REFoRMS project (LSR-5) is now available to see on the Alice's Arc website! alicesarc.org/wp-content/upl… This review has now identified >170 published early phase studies with >1350 children and young people with relapsed/refractory #rhabdomyosarcoma

The 5th update for the living-REFoRMS project (LSR-5) is now available to see on the <a href="/AlicesArc/">Alice's Arc</a> website!

alicesarc.org/wp-content/upl…

This review has now identified &gt;170 published early phase studies with &gt;1350 children and young people with relapsed/refractory #rhabdomyosarcoma
Ashley Ball-Gamble (@ashleysgamble) 's Twitter Profile Photo

Great first meeting of the CYP Cancer Taskforce charities sub-group, exploring how we can inform and support the work of the Taskforce and cancer plan. Lots of enthusiasm for how we move forward, ideas for next steps, and shared priorities 1/2

ALADDIN (@aladdin_edu) 's Twitter Profile Photo

🚀 New #ALADDINPodcast! In our 10th episode, host Sara Wakeling (Craddock) speaks with Dr. Ameeta Retzer & Dr. Victoria Forster about patient-reported outcomes & engagement in paediatric oncology research. 🎧Spotify: open.spotify.com/episode/5eP62I… 🎧Apple: podcasts.apple.com/us/podcast/dr-…

🚀 New #ALADDINPodcast!

In our 10th episode, host Sara Wakeling (Craddock) speaks with Dr. Ameeta Retzer &amp; Dr. Victoria Forster about patient-reported outcomes &amp; engagement in paediatric oncology research.

🎧Spotify: open.spotify.com/episode/5eP62I…

🎧Apple: podcasts.apple.com/us/podcast/dr-…
Chart Hills Golf Club (@charthills) 's Twitter Profile Photo

We are proud to be hosting a Charity Golf Day for 'Jamie's Quest' on 2nd May 2025 for Jamie Holson, who has rhabdomyosarcoma, a rare childhood cancer. As his family search for alternative treatments, all funds raised will be spent on Jamie’s treatment, or donated to Alice's Arc.

We are proud to be hosting a Charity Golf Day for 'Jamie's Quest' on 2nd May 2025 for Jamie Holson, who has rhabdomyosarcoma, a rare childhood cancer. 

As his family search for alternative treatments, all funds raised will be spent on Jamie’s treatment, or donated to <a href="/AlicesArc/">Alice's Arc</a>.