Aly Shields 🌻 (@alyashields) 's Twitter Profile
Aly Shields 🌻

@alyashields

Vocalist & Writer. Raising awareness in Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 and the UK #pans #pandas #SavingPrivateRyan gf.me/u/ywk5nc

ID: 470801601

calendar_today22-01-2012 05:07:46

4,4K Tweet

611 Followers

1,1K Following

Aly Shields 🌻 (@alyashields) 's Twitter Profile Photo

This represents research into #pans #pandas in adults Take away 'peadiatric' because people can be 'triggered' in adulthood then symptoms ignored or at best have antipsychotics chucked at them THIS IS A PHYSICAL CONDITION #adultswithpanspandas #inflammation #SuicidePrevention

This represents research into #pans #pandas in adults Take away 'peadiatric' because people can be 'triggered' in adulthood then symptoms ignored or at best have antipsychotics chucked at them THIS IS A PHYSICAL CONDITION #adultswithpanspandas #inflammation #SuicidePrevention
Aly Shields 🌻 (@alyashields) 's Twitter Profile Photo

And here we are....the end of 2023 and guess what? Still no research into Adults with #pans #Pandas No diagnosis, no service, no recognition at all in the UK Instead adults r left to fester in misery and torture #ocd #inflamation #tics #involuntarymivements #psychosis #suicide

Susannah H (@firebug70) 's Twitter Profile Photo

@Hopesaxons Helen Pearce Jo Joyner Aly Shields 🌻 Paula Scott Wendy Chamberlain Joanne Holloway Ticcers Unite @Katie5news Diane P Sam Disabled Man Welfare Not Warfare @PandasPans Long Covid Kids / [email protected] Dr Claire Taylor 🙏🏻@Hopesaxons for all you do to help others and raise awareness about brain inflammation caused by infection #Pans #Pandas #Covid #LongCovid hoping next year brings greater awareness, prompt diagnosis and treatment for all 🙏🏻💚

Hopeful (@hopesaxons) 's Twitter Profile Photo

Susannah H Helen Pearce Jo Joyner Aly Shields 🌻 Paula Scott Wendy Chamberlain Joanne Holloway Ticcers Unite @Katie5news Diane P Sam Disabled Man Welfare Not Warfare @PandasPans Long Covid Kids / [email protected] Dr Claire Taylor We know from personal experience how 💔 brain inflammation is. I really hope that change will continue to happen in 2024 🙏🏻 @PandasPans are an amazing charity & do such to help those families affected #NewYear2024

Joanne Holloway (@charmingangelco) 's Twitter Profile Photo

Conditions #Pans #Pandas do not miraculously disappear at age 18!Left untreated can be carried to adulthood. Adult onset can also happen!Lack of recognition/denial of conditions has resulted in generations of adults likely un/misdiagnosed #PansPandasHour aspire.care/what-is-pans/w…

Joanne Holloway (@charmingangelco) 's Twitter Profile Photo

An important message from Awareness Day 2023 📣#Pans #Pandas do not disappear on a child’s 18th birthday!📣Left untreated they are carried 2 adulthood where there is even less chance of correct treatment/support. Please watch & understand lives are being lost👇🏻#PansPandasHour👇🏻

Aly Shields 🌻 (@alyashields) 's Twitter Profile Photo

Tics Involuntary movements seizures?? Many children and adults left to suffer many who have #PANS #PANDAS one condition that is not investigated is Cerebral Folate Deficiency progressive yet treatable If not treated can cause diminish in cognitive function mdpi.com/2075-4426/14/2…

Aly Shields 🌻 (@alyashields) 's Twitter Profile Photo

A disconnection had to be made from living in the perpetual fear that conditions like Pans Pandas and 'the fight for treatment' bring. Our family is happier as a result, we have found other pathways and we no longer live in fear and dread. facebook.com/share/p/ut961j…