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Ahead of our next PHIRST seminar 🗓️ 14/05/25 2PM - read Yvanna Todorova's blog on making an animation to share the voices and views of young people involved in a #SchoolStreets evaluation phirst.nihr.ac.uk/blog-from-ques… Newcastle City Council

The NIHR Strategic Commitments for Public Partnerships set out 5 areas of improvement that will help us to be diverse, inclusive and impactful in how we work with people and communities. ➡️ Take a look at our plans for 2025 to 2026: nihr.ac.uk/about-us/what-…

So so tired with long covid flare. Gave myself some time to catch up with work today. Again due to my IT being older and not compatible with other organisations I can't open the documents I needed to read. Just another barrier to really involving the public in research.

facebook.com/share/p/1AoVrd… New poem today, do visit my Facebook poetry page and leave comments. Or leave comments here.

Check out our top #TuesdayTips and resources for delivering true co-production in research. Take a look at the NIHR co-production guidance: learningforinvolvement.org.uk/?opportunity=n…

“The benefits reforms haven’t been implemented yet”. No they’re haven’t, but they’re already causing huge harm. Disabled people are already spending less on what they need. They’re already struggling psychologically. It’s already making their conditions worse.

Dear Labour MP. If you are going to be voting for or against changes to #disabilitybenefits that could devastate the lives of an estimated million-plus people, I’d like to think three minutes of your time is a fair exchange. It has been reported that 100 Labour MPs have

People say "you don't look autistic" like it's a compliment. But at this point I just find it incredibly insensitive. Either you are questioning my diagnosis or you're telling me you think autism is something to be ashamed of. Either way, it's not the compliment you think it is.

sign up for this tomorrow?

"Plainly, this is more proof of how devalued carers are." 150,000 unpaid carers stand to lose their carers’ benefits by the end of the decade. Government must immediately reconsider their welfare reform proposals to #ProtectCarersBenefits theguardian.com/commentisfree/…

I want to give a FREE copy yes a free paperback copy of my new book The Antidote away - e copy if it's more accessible - hopefully to someone who couldn't afford it If interested send me a number between 1 and 100 by 10th june

We can't cut back for their cut backs! Gluten free food for instance costs a lot more than gluten filled alternatives and no I don't have the energy or the time to cook everything from fresh.

Unfortunatley unpaid carers who lose their CA and carers element on UC will be forced out to work full time. This means that the disabled/ill ppl they care for will have to go local authority care at huge cost to the tax payer. #TakingThePIP #DisabilityRebellion

⚠️ Report suspicious text messages by forwarding them to 7726 (it's free of charge) ℹ️27,000 scams have been removed as a result of suspicious text messages reported by the public. #ReportThePhish

Out tomorrow!

I wish people understood how difficult it is trying to function when your adhd symptoms are unleashed. I wish people would understand that there is a reason why I’m absent-minded, chaotic, disorganised, forgetful, making typos, can’t respond to messages fast enough, can’t

REBECCA UPDATE It always starts the same way— a slight shift, a moment I can’t name, a glance from Rebecca that lingers a little too long in the space between what was and what now is. Yesterday, it was blood pressure: 200 over 100. Teeth chattering. Inability to walk. Eyes

The hardest part of ADHD? Constantly feeling behind—like you’re racing against a clock everyone else can see but you.