Epilepsy Alliance America (@americaepilepsy) 's Twitter Profile
Epilepsy Alliance America

@americaepilepsy

We’re a national collective of partners with one mission: providing support, resources, and hope to those with #epilepsy. Live your best life.

ID: 1020415860337410048

linkhttp://EpilepsyAllianceAmerica.org calendar_today20-07-2018 21:11:14

1,1K Tweet

403 Followers

100 Following

Epilepsy Alliance America (@americaepilepsy) 's Twitter Profile Photo

Congratulations to member organization Empowering People's Independence on their 39th Chocolate Ball! This annual fundraising event supports their ongoing programs and services, including Camp EAGR, the only weeklong sleepaway camp in NY for kids with epilepsy! rochesterfirst.com/rochester/epis…

Epilepsy Alliance America (@americaepilepsy) 's Twitter Profile Photo

Check out the newest What the EF podcast episode, featuring JP Severin discussing what it's like living with seizures as a father and the challenge of accepting what’s beyond your control. Listen now on YouTube, Apple Podcasts, or Spotify. whattheefpodcast.com

Check out the newest What the EF podcast episode, featuring JP Severin discussing what it's like living with seizures as a father and the challenge of accepting what’s beyond your control.

Listen now on YouTube, Apple Podcasts, or Spotify.

whattheefpodcast.com
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Do you have a Seizure Action Plan for yourself or a loved one? Are you a teacher who implements seizure action plans for your students? Are you a healthcare professional who collaborates with patients to create seizure action plans? We value your input! forms.gle/wcJUDpsDSnpSFB…

Do you have a Seizure Action Plan for yourself or a loved one? Are you a teacher who implements seizure action plans for your students? Are you a healthcare professional who collaborates with patients to create seizure action plans?

We value your input!

forms.gle/wcJUDpsDSnpSFB…
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We manage a scholarship program for students with a diagnosis of PNES who are pursuing higher level education, using the funds from Dr. Lorna Myers, author of Psychogenic Non-Epileptic Seizures: A Guide. Applications are due by April 30, 2025! epilepsyallianceamerica.org/lorna-myers-pn…

We manage a scholarship program for students with a diagnosis of PNES who are pursuing higher level education, using the funds from Dr. Lorna Myers, author of Psychogenic Non-Epileptic Seizures: A Guide.

Applications are due by April 30, 2025!

epilepsyallianceamerica.org/lorna-myers-pn…
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Join member org Epilepsy NJ for the Healing Hearts Collective, a retreat for parents who have lost a child to seizures or epilepsy. We aim to create a supportive space throughout the day, which will include workshops, group discussions & quiet reflection. bit.ly/41hY4c8

Join member org <a href="/EpilepsyNJ/">Epilepsy NJ</a> for the Healing Hearts Collective, a retreat for parents who have lost a child to seizures or epilepsy. We aim to create a supportive space throughout the day, which will include workshops, group discussions &amp; quiet reflection.

bit.ly/41hY4c8
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S.T.E.P.S. is designed to prepare you for your next doctor's appointment and to foster better communication between you and your care team. Together, you can create an effective treatment plan that works for you. epilepsyallianceamerica.org/programs-servi…

S.T.E.P.S. is designed to prepare you for your next doctor's appointment and to foster better communication between you and your care team. Together, you can create an effective treatment plan that works for you.

epilepsyallianceamerica.org/programs-servi…
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March is Brain Injury Awareness Month. Traumatic brain injury (TBI) is a recognized cause of seizures and epilepsy. A person with post-traumatic epilepsy (PTE) is someone with risk of recurrent seizures due to a brain injury. Read more from CURE Epilepsy: cureepilepsy.org/understanding-…

March is Brain Injury Awareness Month. Traumatic brain injury (TBI) is a recognized cause of seizures and epilepsy. A person with post-traumatic epilepsy (PTE) is someone with risk of recurrent seizures due to a brain injury.

Read more from <a href="/CureEpilepsy/">CURE Epilepsy</a>: cureepilepsy.org/understanding-…
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A recently released position statement which has impact to the entire epilepsy community clarifies guidance on seizures, driver licensure, and medical reporting. Read more here. epilepsyallianceamerica.org/seizures-and-d…

A recently released position statement which has impact to the entire epilepsy community clarifies guidance on seizures, driver licensure, and medical reporting. Read more here.

epilepsyallianceamerica.org/seizures-and-d…
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March 13-20 is Sleep Awareness Week. For people with epilepsy, a healthy sleep routine is key. Sleep safety should also always be observed. Seizure detection devices are useful for alerting caregivers to nocturnal seizure activity. dannydid.org joshprovides.org

March 13-20 is Sleep Awareness Week. For people with epilepsy, a healthy sleep routine is key. Sleep safety should also always be observed. Seizure detection devices are useful for alerting caregivers to nocturnal seizure activity.

dannydid.org
joshprovides.org
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Navigating epilepsy during pregnancy comes with unique challenges. Register for this webinar, hosted by member org Epilepsy NJ, for valuable insights on managing epilepsy during pregnancy – whether you're a patient, caregiver or in healthcare. 🔗Register: bit.ly/4hx7jtI

Navigating epilepsy during pregnancy comes with unique challenges. Register for this webinar, hosted by member org <a href="/EpilepsyNJ/">Epilepsy NJ</a>, for valuable insights on managing epilepsy during pregnancy – whether you're a patient, caregiver or in healthcare.

🔗Register: bit.ly/4hx7jtI
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Take a look at this interview with Epilepsy Alliance America National Professional Advisory Committee member Dr. Inna Hughes as she shares about epilepsy and seizure first aid – and gives a nice shoutout to member organization Empowering People's Independence! tinyurl.com/2srtkv9b

Epilepsy Alliance America (@americaepilepsy) 's Twitter Profile Photo

Thank you to Charlie Foundation for this information from Jeff Buchhalter, MD, PhD on how the Ketogenic Diet may reduce the risk of Sudden Unexpected Death in Epilepsy (SUDEP). youtube.com/watch?v=4hcdel…

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Founding director of member org Epilepsy Advocacy Network Erika Fleck visited Young Adults With Epilepsy to discuss her epilepsy journey and how her experience inspired her to create a network that provides the support she lacked when she was diagnosed. youtu.be/_16-APS7nos

Epilepsy Alliance America (@americaepilepsy) 's Twitter Profile Photo

If you or someone you know has a diagnosis of PNES and is pursuing higher education, we invite you to apply for our scholarship, funded by Dr. Lorna Myers, author of Psychogenic Non-Epileptic Seizures: A Guide. Applications are open until April 30! epilepsyallianceamerica.org/lorna-myers-pn…

If you or someone you know has a diagnosis of PNES and is pursuing higher education, we invite you to apply for our scholarship, funded by Dr. Lorna Myers, author of Psychogenic Non-Epileptic Seizures: A Guide.

Applications are open until April 30!

epilepsyallianceamerica.org/lorna-myers-pn…
Epilepsy Alliance America (@americaepilepsy) 's Twitter Profile Photo

Member org Epilepsy NJ hosted a webinar yesterday on epilepsy and pregnancy. If you weren't able to catch it live, you can watch the recording! And for more info about women & epilepsy, visit our website. 🔗Webinar: attendee.gotowebinar.com/recording/1909… ➕More info: epilepsyallianceamerica.org/women-and-epil…

Member org <a href="/EpilepsyNJ/">Epilepsy NJ</a> hosted a webinar yesterday on epilepsy and pregnancy. If you weren't able to catch it live, you can watch the recording! And for more info about women &amp; epilepsy, visit our website.

🔗Webinar: attendee.gotowebinar.com/recording/1909…

➕More info: epilepsyallianceamerica.org/women-and-epil…
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Join member organization Epilepsy Advocacy Network for their virtual support group on April 3rd to learn more about the RNS System and how it's used to treat drug-resistant epilepsy. epilepsyadvocacynetwork.org/supportgroups/

Join member organization Epilepsy Advocacy Network for their virtual support group on April 3rd to learn more about the RNS System and how it's used to treat drug-resistant epilepsy.

epilepsyadvocacynetwork.org/supportgroups/