AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile
AMYLOIDOSIS ALLIANCE

@amyloidosisa

Global #Alliance of patient's organisations who are campaigning against #amyloidosis around the world. 🌎

ID: 1413115963667587072

linkhttps://www.amyloidosisalliance.org calendar_today08-07-2021 12:41:27

313 Tweet

707 Followers

223 Following

AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

By spending just 10 minutes per questionnary, you can: ✔ Help improve patient care ✔ Enable researchers to better understand this rare disease. ✔ Support the global patient community. Join the movement! 👉 amyloidosis.org/amylife #Amyloidosis #Research #Impact

By spending just 10 minutes per questionnary, you can:

✔ Help improve patient care
✔ Enable researchers to better understand this rare disease.
✔ Support the global patient community.

Join the movement! 👉 amyloidosis.org/amylife

#Amyloidosis #Research #Impact
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🌍 Rare Disease Day: The Amyloidosis Alliance Stands in Solidarity! 💙 #RareDiseases affect millions of people worldwide, and #amyloidosis is one of them. 💡 📣 How can you help? Share messages about this day. Support the initiatives, even from afar. 🔗rarediseaseday.org

🌍 Rare Disease Day: The Amyloidosis Alliance Stands in Solidarity! 💙
#RareDiseases affect millions of people worldwide, and #amyloidosis is one of them. 💡

📣 How can you help?
Share messages about this day.
Support the initiatives, even from afar.
🔗rarediseaseday.org
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

💙Tomorrow is the last day you can participate to Amylife Together, we are shaping a brighter future for the amyloidosis community. 🌟 Haven’t participated yet? There’s still few hours.. 🔗 amyloidosis.org/amylife #Gratitude #AmyloidosisCommunity #AMYlifeImpact

💙Tomorrow is the last day you can participate to Amylife 

 Together, we are shaping a brighter future for the amyloidosis community.
🌟 Haven’t participated yet? There’s still few hours..
🔗 amyloidosis.org/amylife

#Gratitude #AmyloidosisCommunity #AMYlifeImpact
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

⏳ It’s not too late to make a difference! The #AMYLIFE survey is extended for 3 more weeks to give everyone a chance to participate. 🌟 Every voice counts ❤️ ➡️ amyloidosisalliance.org/amylife

⏳ It’s not too late to make a difference!

The #AMYLIFE survey is extended for 3 more weeks to give everyone a chance to participate. 🌟

Every voice counts ❤️
➡️ amyloidosisalliance.org/amylife
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🎯 We're almost there! The #AMYLIFE survey has been extended by a few days, and we'll be reaching its end shortly... ✨ However, we still need YOU to reach our global goals! 📣 Join the final days of the worldwide movement! 🌍

🎯 We're almost there! 

The #AMYLIFE survey has been extended by a few days, and we'll be reaching its end shortly... ✨
 However, we still need YOU to reach our global goals! 📣

Join the final days of the worldwide movement! 🌍
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

Why should you participate?👇🏻 ✔ It’s your last chance to make your voice heard on a global level. ✔ Your experience could directly shape the future of #amyloidosis ✔ It takes just 10 minutes to create lasting impact. 👉 Take the survey now 🔗 amyloidosisalliance.org/amylife

Why should you participate?👇🏻

✔ It’s your last chance to make your voice heard on a global level.
✔ Your experience could directly shape the future of #amyloidosis
✔ It takes just 10 minutes to create lasting impact.

👉 Take the survey now
🔗 amyloidosisalliance.org/amylife
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🌟 THANK YOU for your participation on #Amylife survey 🌟 We’re thrilled to announce the successful completion of the #AMYLIFE global survey on #amyloidosis! ✅ To everyone who participated, shared the survey, or supported our cause: thank you from the bottom of our hearts. ❤️

🌟 THANK YOU for your participation on #Amylife survey 🌟

We’re thrilled to announce the successful completion of the #AMYLIFE global survey on #amyloidosis! ✅

To everyone who participated, shared the survey, or supported our cause: thank you from the bottom of our hearts. ❤️
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🌟 Imagine starting your day with unexplained fatigue, facing doctors visits, and still not having answers.💔 💬 “It wasn’t until my 10th appointment that I finally heard the word ‘amyloidosis.🙏💞 Let’s amplify their voices to make #diagnosis faster and treatments better.✅

🌟 Imagine starting your day with unexplained fatigue, facing doctors visits, and still not having answers.💔

💬 “It wasn’t until my 10th appointment that I finally heard the word ‘amyloidosis.🙏💞

Let’s amplify their voices to make #diagnosis faster and treatments better.✅
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

📣 Amyloidosis Alliance at the British and Spanish Mallorca Hand Conference! Our presence at this #congress aligns perfectly with our mission to raise awareness of #amyloidosis among healthcare professionals who could play a role in early #diagnosis. 📣 👉 secmacongreso.es/en/home/

📣 Amyloidosis Alliance at the British and Spanish Mallorca Hand Conference!
Our presence at this #congress aligns perfectly with our mission to raise awareness of #amyloidosis among healthcare professionals who could play a role in early #diagnosis. 📣
👉 secmacongreso.es/en/home/
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🚨 #Amyloidosis Myth-Buster ❌ “Amyloidosis only affects older people.” ✅ Fact: #amyloidosis can occur at any age, and early #symptoms are often subtle, making awareness critical. 👉 Help us to bust myths and spread knowledge. Together, we can save lives worldwide.✨

🚨 #Amyloidosis Myth-Buster

❌ “Amyloidosis only affects older people.”
✅ Fact: #amyloidosis can occur at any age, and early #symptoms are often subtle, making awareness critical.

👉 Help us to bust myths and spread knowledge.
Together, we can save lives worldwide.✨
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🇮🇹 The 5th International ATTR #Amyloidosis Meeting is coming on 📅 September 25-26, 2025, in 📍Baveno, Italy! This must-attend event will bring together 🌍 #patients, 🏥 #caregivers, 👩‍⚕️ medical professionals, and 🧪 researchers ✨ 👉 attr2025.com

🇮🇹 The 5th International ATTR #Amyloidosis Meeting is coming on 📅 September 25-26, 2025, in 📍Baveno, Italy!

This must-attend event will bring together 🌍 #patients, 🏥 #caregivers, 👩‍⚕️ medical professionals, and 🧪 researchers ✨ 
👉 attr2025.com
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🌍 Amyloidosis is rare but underdiagnosed due to vague symptoms. 🔍 Raising awareness helps reduce delays & improve lives. Let’s break the silence together within the Alliance! #Amyloidosis #AmyloidosisAwareness #HealthAdvocacy

🌍 Amyloidosis is rare but underdiagnosed due to vague symptoms.
🔍 Raising awareness helps reduce delays & improve lives.
Let’s break the silence together within the Alliance!

#Amyloidosis #AmyloidosisAwareness #HealthAdvocacy
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

📍 Edinburgh, here we come! The Amyloidosis Alliance will join #PNS2025, May 17–20, to raise awareness about early signs of amyloidosis like peripheral neuropathy. Proudly represented by Jean-Christophe, Catilena, David & Emmanuel! 🔗 Info: bit.ly/4aWpTnE

📍 Edinburgh, here we come!
The Amyloidosis Alliance will join #PNS2025, May 17–20, to raise awareness about early signs of amyloidosis like peripheral neuropathy.
Proudly represented by Jean-Christophe, Catilena, David & Emmanuel!
🔗 Info: bit.ly/4aWpTnE
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

⚠️ AL amyloidosis is the most common type—and can be life-threatening if not detected early. 🧪 Caused by abnormal light chains from plasma cells. Symptoms: fatigue, breathlessness, leg swelling, kidney issues. ▶️ Diagnosed via tests, treated with chemo.

⚠️ AL amyloidosis is the most common type—and can be life-threatening if not detected early.
🧪 Caused by abnormal light chains from plasma cells.
Symptoms: fatigue, breathlessness, leg swelling, kidney issues.
▶️ Diagnosed via tests, treated with chemo.
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

📋 Discover the preliminary #ATTR2025 program! 🩺 For doctors: cutting-edge science. 🫂 For patients: support & empowerment. Join us Sept 25–27, 2025! ⚠️ Register before June 15 for reduced rates 🌐 attr2025.com #AmyloidosisAwareness #MedicalInnovation

📋 Discover the preliminary #ATTR2025 program!
🩺 For doctors: cutting-edge science.
🫂 For patients: support & empowerment.
Join us Sept 25–27, 2025!
⚠️ Register before June 15 for reduced rates
🌐 attr2025.com
#AmyloidosisAwareness #MedicalInnovation
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🫀 We’re heading to #HeartFailure2025 in Belgrade & online, May 17–20! 🌍 The top global event on heart failure—incl. a focus on cardiac amyloidosis. Giovanni, Agnès & our new director will represent #Amyloidosis patients worldwide. 🔗 Learn more: bit.ly/3y1Xe0X

🫀 We’re heading to #HeartFailure2025 in Belgrade & online, May 17–20!
🌍 The top global event on heart failure—incl. a focus on cardiac amyloidosis.
Giovanni, Agnès & our new director will represent #Amyloidosis patients worldwide.
🔗 Learn more: bit.ly/3y1Xe0X
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

Did you know #amyloidosis isn’t just one disease? ▶️ AL: abnormal light chains ▶️ AA: linked to chronic inflammation ▶️ ATTR: TTR gene mutation or age-related Each type needs specific diagnosis & treatment. #AmyloidosisTypes #RareDiseases #KnowTheCauses

Did you know #amyloidosis isn’t just one disease?
▶️ AL: abnormal light chains
▶️ AA: linked to chronic inflammation
▶️ ATTR: TTR gene mutation or age-related
Each type needs specific diagnosis & treatment.

#AmyloidosisTypes #RareDiseases #KnowTheCauses
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

🍀 Amyloidosis Ireland 2025: An Event for Everyone! @amyloidosisireland From June 13 to 15, join us for this international conference dedicated to doctors, healthcare professionals, patients, and caregivers. 📌 Location: Dublin👇🏻 🌐 conferencediary.ie/registration.p…

🍀 Amyloidosis Ireland 2025: An Event for Everyone! @amyloidosisireland

From June 13 to 15, join us for this international conference dedicated to doctors, healthcare professionals, patients, and caregivers.
📌 Location: Dublin👇🏻
🌐 conferencediary.ie/registration.p…
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

Q: How is wild-type ATTR amyloidosis different from hereditary? A: It’s not inherited, but age-related. The unstable TTR protein leads to heart issues in older men (e.g. heart failure, arrhythmias). Early diagnosis is key. Could it explain some heart problems in seniors?

Q: How is wild-type ATTR amyloidosis different from hereditary?
A: It’s not inherited, but age-related. The unstable TTR protein leads to heart issues in older men (e.g. heart failure, arrhythmias).
Early diagnosis is key. Could it explain some heart problems in seniors?
AMYLOIDOSIS ALLIANCE (@amyloidosisa) 's Twitter Profile Photo

👩‍🔬 Meet the brilliant minds behind #ATTRCongress 2025! 💡 The Scientific Committee is crafting a powerful program to advance amyloidosis research. 🙌 Let’s thank them! ⚠️ Few days left to register at a reduced rate - before June 15! 🌐 attr2025.com #AmyloidosisAlliance

👩‍🔬 Meet the brilliant minds behind #ATTRCongress 2025!
💡 The Scientific Committee is crafting a powerful program to advance amyloidosis research.
🙌 Let’s thank them!
⚠️ Few days left to register at a reduced rate - before June 15!
🌐 attr2025.com
#AmyloidosisAlliance