Amyloidosis Support
@amyloidosissupp
Official Twitter account of Amyloidsosis Support Groups Our toll free line 1-866-404-7539
ID: 2390288887
http://www.amyloidosissupport.org/ 15-03-2014 03:01:32
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1,1K Followers
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Sat. 10-29-2022 LIVE WEBINAR for AL #amyloidosis patients: Mayo Amyloid BU Amyloidosis Center Morie Gertz @adsouza_md Register Here tinyurl.com/5n799n6p
One Week Away! 500 patients have registered. Let your patients know. Sat. 10-29-2022 LIVE WEBINAR for AL #amyloidosis patients: Mayo Amyloid BU Amyloidosis Center Morie Gertz @adsouza_md Marcus Anthony Urey MD Register Here amyloidosissupport.zoom.us/webinar/registā¦
With Amyloidosis Support talking about #amyloidosis therapy this morning Mayo Clinic - lots of new stuff to discuss!
Fantastic! Congratulations Sharmila Dorbala. So well deserved. Amyloidosis Research Consortium BWH Amyloidosis Program Mayo Amyloid The International Society Of Amyloidosis Amyloidosis Support
Tell your #ATTR #amyloidosis patients-It's Back! ASG Biennial ATTR Wild Type and Hereditary Support Meeting- October 2023- Mayo Amyloid BU Amyloidosis Center Registration Link tinyurl.com/mr447f32
An effective anti-ALamyloid mAb is so urgently neededšš»9 mos OS in stage IV AL patients with Birtamimab 77% vs 49% with placebošš»Morie Gertz for reanalyzing the VITAL trial data! CAMP@CUIMC The International Society Of Amyloidosis Amyloidosis Support #msmm
#ATTR #amyloidosis Webinar Sat Jan 21st. Have your patients register and learn how their treatments work. Hear panelists, Dr. Chafic Karam, Dr. Mat Maurer from Columbia and reps from pharma too. BU Amyloidosis Center Mayo Amyloid amyloidosissupport.zoom.us/webinar/registā¦
Don't miss Raj Chakraborty from CAMP@CUIMC at Herbert Irving Comprehensive Cancer Center presenting "A Challenging Case of Systemic AL Amyloidosis" at the IACH Junior Club šMohamad Mohty for focusing on #amyloidosis Amyloidosis The International Society Of Amyloidosis Amyloidosis Support
šThe amyloid nomenclature is evolving, add to the list! The International Society Of Amyloidosis provides great recommendations for writing about different forms of amyloid, including associated genetic variants that contribute to some-šNote: Abbreviations are for the proteins! tandfonline.com/doi/full/10.10ā¦
Avoid implicit bias in amyloidosis & never skip genetic testing, particularly in minority groups. At BU Amyloidosis Center, 7 self-identified white patients with ATTRV122I and 19 self-identified Black patients with ATTRwt. The presentation of amyloidosis is truly diverse! Andrew Staron
#ATTR #amyloidosis Webinar Sat. July 15. Have your patients register to learn and become empowered. Hear panelists Chafic Karam Penn Medicine Melissa Lyle Melissa Lyle Mayo Amyloid and Richard Cheng UW Medicine BU Amyloidosis Center amyloidosissupport.zoom.us/webinar/registā¦
#Amyloidosis Webinar for those with cardiac involvement. Sat. 1-20-2024. Join Melissa Lyle Justin L. Grodin @bhtrachtenberg as they help to educate and empower our patients and loved ones. Mayo Amyloid BU Amyloidosis Center amyloidosissupport.org/webinars.html
#Amyloidosis Arizona State University CME Conference 2-3-2024 na.eventscloud.com/website/63545/ Julie Lorraine Rosenthal Mayo Amyloid
#Amyloidosis Patient Support Group In Person (Not Virtual) Meeting Sat. 10/19. Salt Lake City Dr. Jeffrey Zonder will be joining amandeep godara and other amyloidologists to educate and empower our #ATTRamyloidosis and #ALamyloidosis patients.
amyloidosissupport.zoom.us/.../WN_tg7kIQrā¦...](https://pbs.twimg.com/media/GhLrMggWcAA_pDZ.png "Amyloidosis Support (@amyloidosissupp) on Twitter photo [ATTR Webinar January 18th ](amyloidosissupport.zoom.us/.../WN_tg7kIQrā¦...)amyloidosissupport.zoom.us/.../WN_tg7kIQrā¦...")
