🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

We're looking forward to connecting with the #amyloidosis community at this year's Bradley Z. Naifeh Amyloidosis Conference hosted by Houston Methodist. Stop by our booth to see our latest educational materials and some exciting programs! Learn more: learn.houstonmethodist.org/amyloidosis-20…

📆📷 Starting Now! #ARCTalks Webinar: Emotional Aspects of Amyloidosis Hear MeghanBeierPhD, psychologist at Rowan Center For Behavorial Medicine, discuss mental health issues in #amyloidosis and present strategies for coping. Join Us: us02web.zoom.us/webinar/regist…

BREAKING NEWS: The U.S. FDA has approved Alnylam Pharmaceuticals's AMVUTTRA™ (vutrisiran) for the treatment of patients with transthyretin amyloid cardiomyopathy (ATTR-CM). More choices for ATTR-CM #amyloidosis patients! Learn More: arci.org/amvuttra-attr-…

Thank you @AMCPorg for hosting important conversations around equity and managing #ATTR-CM #amyloidosis There's more we can do to keep driving innovation, access, and better outcomes for all patients, especially for communities that are often underserved #AMCP2025 #HealthEquity

📆 📷 Starting Now! #ARCTalks Webinar: Clinical Trial Updates for the AL Community Executive Director of Research, @KristennHsu, is presentgin current updates for #AL #amyloidosis clinical trials, and the direction of future research. Join Us: us02web.zoom.us/webinar/regist…

#HeartDisease is the hallmark of Wild-Type transthyretin #amyloidosis (#ATTRwt), but it is commonly preceded by other conditions, such as carpal tunnel syndrome or spinal stenosis. Learn more about this devastating disease: arci.org/resource/disea…

In Case You Missed It: ARC Executive Director of Research, @KristennHsu, shared current updates for #AL #amyloidosis clinical trials, and the direction of future research in last week's #ARCTalks Webinar: arci.org/resource/clini…

At the #ASSH2024 conference, we found hand surgeons very interested in understanding the connection between #amyloidosis and #CarpalTunnel. If you're a hand surgeon looking to know more, ARC is here to support you: arci.org/carpaltunnel/

📢 [New Publication] Evaluating the validity, reliability, and structure of our #ATTR #QOL patient-reported outcome measure! With strong psychometric support, the ATTR-QOL helps capture the real-life impact of this complex disease. 📄 Read More: jpro.springeropen.com/articles/10.11…

We are still recruiting due to a last minute change of heart. Consider applying #CardioTwitter

In the first few months of 2025 a series of federal policy changes to NIH, U.S. FDA, and other key agencies have significantly shifted the landscape of biomedical research funding in the U.S. Stay informed about what’s happening and how we're responding: arci.org/uspolicy/

📢 For many living with #amyloidosis, Medicaid is the only way they can access treatment, specialists, and hope. Your help is needed to tell Members of Congress to vote NO on cutting Medicaid coverage for those living with a #RareDisease and their families.

📆 📷 Starting Now! #ARCTalks Webinar: Understanding Living with Amyloidosis ARC Senior Research Manager, Sabrina Rebello, presents an in-depth overview of key insights from our Annual Community Survey. Join Us: arci.org/event/arc-talk…

⚠️⚠️⚠️ Great summary of red flags in clinical history, examination, and imaging that should prompt consideration of cardiac amyloidosis by Pablo Garcia-Pavia to close #HeartFailure2025 #MedIQHF2025

In Case You Missed It: In last week's #ARCTALKS Webinar, Senior Research Manager, Sabrina Rebello, presented an in-depth overview of key insights from our Annual #Amyloidosis Community Survey: arci.org/resource/under…

‼️ URGENT: The House just passed a bill with the largest cut to Medicaid ever. This could strip health coverage from 13.7 million people - including 8.6 million who rely on Medicaid. This is devastating news for the rare disease community. Medicaid is a lifeline for diagnoses,