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ICYMI - Podcast -- Seeking a Second Opinion youtube.com/watch?v=FLR7Tu… The disease journey for all patients is punctuated with important points along the way - such as diagnosis and treatment. Amyloidosis, being a complex and not-well known disease, makes the journey all the more

The Amyloidosis Army is presenting a V122I Amyloidosis Awareness presentation July 12th 12:00 noon. Free genetic testing is available on site. All are welcome!! Special medical speaker Dr. Vicky Savas, Cardiologist specializing in Amyloidosis. Refreshments served. Come and

SHOUT OUT!! Our digital education outreach initiative to help us raise awareness to more people than ever before (now over 25 MILLION!) is going great gangbusters! We expand amyloidosis awareness to healthcare professionals, patients, caregivers, and the public. You may see

ALERT: New podcast episode has dropped! youtube.com/watch?v=Hn28vR… Adapted from his video “ATTR Amyloidosis Treatments: Stabilizers and Silencers,” Dr. Brett Sperry, cardiologist and director of the Cardiac Amyloidosis Program at Saint Luke’s Mid America Heart Institute, provides an

Nothin but good stuff!

UPCOMING WEBINAR: On July 15, join us for the #ASEWebinar, "AI Meets Echocardiography: Where We Are Now and What's Next!" Sign up: bit.ly/4no8KPr

Sign up for our monthly newsletter to stay abreast of what's going on in the world of amyloidosis! mm713.org/newsletter/

“Ejection Fraction: It’s Just a Fraction” youtube.com/watch?v=DrstPQ… Dr. Julie Rosenthal, Director of the Cardiac Amyloidosis Program at Mayo Clinic in Arizona, introduces us to the cardiovascular system and summarizes cardiac amyloidosis. She then discusses the echocardiogram and

ICYMI ... a great brief discussion from an amyloidosis expert on treatment types for ATTR. youtube.com/watch?v=Hn28vR…

Good to hear of some positive indicators nonetheless. Look forward to more details. Clinical Trials are never a straight upward line, as by definition they are research -- we learn something from each Trial.

At Mackenzie's Mission we are committed to educating the medical and patient community about amyloidosis. We are grateful for @BridgeBio sponsorship of our digital education effort, enabling us to help advance the fight against this disease. #amyloidosis

If you image amyloid or take care of patients at risk An important document by ASNC Society sciencedirect.com/science/articl… #Cardiotwitter #CVNuc

It’s so important that centers of excellence have multidisciplinary teams to care for amyloidosis patients. Battling a complex disease is a team sport! Good work BU Amyloidosis Center

ICYMI ...When the Doctor Becomes an Amyloidosis Patient buzzsprout.com/2363720/episod… What if you are a doctor and diagnosed with amyloidosis, and now you’re a patient? In this episode we’ll be talking with Dr. Charles Schulman, a general cardiologist. He was on the staff at Beth

AI-enhanced echocardiography improves early detection of amyloid buildup in the heart. newsnetwork.mayoclinic.org/discussion/ai-… An artificial intelligence (AI) model developed by Mayo Clinicand Ultromics, Ltd., an AI echocardiography company based in Oxford, England, is highly accurate in

Again, hats off to Amyloidosis Research Consortium and their work to organize and bring this important program to fruition!

“An Unexpected Benefit of Adding the Patient Voice to Medical Education - Train Providers to be Better” sciencedirect.com/science/articl… Amyloidosis is a complex multi-systemic disease. Lack of knowledge about amyloidosis and subsequent mis- or under-diagnosis are major obstacles to

JUST DROPPED! Podcast "Finding My Community of Amyloidosis Patients" buzzsprout.com/2363720/episod… Almost every amyloidosis patient will agree that they’d never heard the word ‘Amyloidosis’ until they were first diagnosed. Lack of awareness, in combination with Dr. Google, can leave

TO ALL HAND SURGEONS ... us06web.zoom.us/meeting/regist… AAHS x ARC Webinar: Amyloidosis for the Hand Surgeon August 5, 2025, 8:00pm 1 CME In this joint webinar with the Amyloidosis Research Consortium , we will hear not only from expert hand surgeons but also from a Cardiologist. In fact. Dr.