Amyloidosis (@amyloidosisfdn) 's Twitter Profile
Amyloidosis

@amyloidosisfdn

Supporting #amyloidosis patients and families while promoting research, education and awareness. 248.922.9610 #AmyloidosisAwareness amyloidosis.org

ID: 275168677

linkhttp://www.amyloidosis.org calendar_today31-03-2011 19:21:48

4,4K Tweet

3,3K Followers

1,1K Following

ASNC Society (@myasnc) 's Twitter Profile Photo

Join us May 21 for the first webinar in the “Think Amyloid! Cardiac Amyloidosis for Community Cardiologists” series! Register👉bit.ly/4iLz4Q2 💥This series will provide community-based healthcare providers with education on diagnosing, treating, and providing effective

Join us May 21 for the first webinar in the “Think Amyloid! Cardiac Amyloidosis for Community Cardiologists” series! 
Register👉bit.ly/4iLz4Q2

đź’ĄThis series will provide community-based healthcare providers with education on diagnosing, treating, and providing effective
Myeloma Patients Europe (@myelomaeurope) 's Twitter Profile Photo

📢 Join us for the webinar "Living well with AL amyloidosis" 🗓 5 June 2025 | 🕔 17:00–18:00 CEST | 🌍 Online 🎙 Prof. Dr. Minnema and Nurse Karin Aarsman 💬 Live Q&A 🎯 For patients and advocates 🔗 Register: mpeurope.org/register-now-t…

📢 Join us for the webinar "Living well with AL amyloidosis"
 🗓 5 June 2025 | 🕔 17:00–18:00 CEST | 🌍 Online
 🎙 Prof. Dr. Minnema and Nurse Karin Aarsman
 đź’¬ Live Q&A
 🎯 For patients and  advocates
 🔗 Register: mpeurope.org/register-now-t…
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

OUR EVENT HAS OFFICIALLY KICKED OFF!!! REGISTER for our Run-Walk-Bike-Roll! You can participate anytime between May 1, 2025, and July 31, 2025. Registration includes a T-shirt! Scan the QR code with your mobile phone or click here to register: bit.ly/2025Run

OUR EVENT HAS OFFICIALLY KICKED OFF!!!
REGISTER for our Run-Walk-Bike-Roll! You can participate anytime between May 1, 2025, and July 31, 2025. Registration includes a T-shirt! Scan the QR code with your mobile phone or click here to register:
bit.ly/2025Run
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

What are your thoughts on getting genetic testing early? Your family members' thoughts? First Participant Dosed with Acoramidis in ACT-EARLY, the First Ever ATTR Primary Prevention Study by BridgeBio Pharma. Read more here:investor.bridgebio.com/news-releases/…

What are your thoughts on getting genetic testing early? Your family members' thoughts?
First Participant Dosed with Acoramidis in ACT-EARLY, the First Ever ATTR Primary Prevention Study by BridgeBio Pharma.
Read more here:investor.bridgebio.com/news-releases/…
Edgardo Alania (@ed_alania) 's Twitter Profile Photo

đź”´ Early Increase in Serum TTR by Acoramidis Independently Predicts Improved Survival in TTR Amyloid Cardiomyopathy JACC Journals #Cardiology #CardioEd #Amyloidosis

đź”´ Early Increase in Serum TTR by Acoramidis Independently Predicts Improved Survival in TTR Amyloid Cardiomyopathy <a href="/JACCJournals/">JACC Journals</a> #Cardiology #CardioEd #Amyloidosis
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

⚡Next Webinar Session TOMORROW, Wednesday, May 21, 06:00 PM - 07:00 PM Eastern Time Zone⚡ Dan’s Top 5 Tips for Thriving with Amyloidosis REGISTER HERE: pcc.oneamyloidosisvoice.com/amyloidosis-ev…

⚡Next Webinar Session TOMORROW, Wednesday, May 21, 06:00 PM - 07:00 PM Eastern Time Zone⚡
Dan’s Top 5 Tips for Thriving with Amyloidosis
REGISTER HERE:  pcc.oneamyloidosisvoice.com/amyloidosis-ev…
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

We’ve earned our Platinum Seal of Transparency with Candid! Get updates on our impact through our #NonprofitProfile at: bit.ly/4candid

We’ve earned our Platinum Seal of Transparency
with <a href="/CandidDotOrg/">Candid</a>! Get updates on our impact through our #NonprofitProfile at:  bit.ly/4candid
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

OUR VIRTUAL EVENT HAS OFFICIALLY KICKED OFF!!! Funds raised go toward amyloidosis research, education, and awareness! Registration includes a newly designed T-shirt! Registration is open NOW!!! click here to register 👇🏼 bit.ly/2025Run

OUR VIRTUAL EVENT HAS OFFICIALLY KICKED OFF!!! Funds raised go toward amyloidosis research, education, and awareness!
Registration includes a newly designed T-shirt! Registration is open NOW!!!
click here to register 👇🏼
bit.ly/2025Run
JoĂŁo Cavalcante (@joaolcavalcante) 's Twitter Profile Photo

Treat the valve AND the myocardium when facing severe AS+amyloidosis. Both AVR and tafamidis independently ↓ mortality Dual therapy=best outcomes w/ similar survival to lone AS+AVR. Dual pathology is common (~13%) warranting RCT. tinyurl.com/2zmpht8x Bravo Thomas Treibel! 👏🏻

Treat the valve AND the myocardium when facing severe AS+amyloidosis. Both AVR and tafamidis independently ↓ mortality
Dual therapy=best outcomes w/ similar survival to lone AS+AVR. Dual pathology is common (~13%) warranting RCT. tinyurl.com/2zmpht8x Bravo <a href="/ThomasTreibel/">Thomas Treibel</a>! 👏🏻
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

Liberating Research is looking to speak to people with ATTR-CM. They want to speak with patients or caregivers of people living in the USA interested in sharing their story with the condition (paid opportunity). Click here for study link: liberatingresearch.com/de/projects/48…

ASNC Society (@myasnc) 's Twitter Profile Photo

📢 #ASNC2025 Session News: The highly anticipated Cutting-Edge Research in Cardiac #Amyloidosis session is back! Feat: 💥 Top global abstracts 💥 Radiotracers in development 💥 New data on bone-avid SPECT tracers View the agenda & register for ASNC2025! 👉bit.ly/4e7aeZZ

📢 #ASNC2025 Session News: The highly anticipated Cutting-Edge Research in Cardiac #Amyloidosis session is back!
Feat:
đź’Ą Top global abstracts
đź’Ą Radiotracers in development
đź’Ą New data on bone-avid SPECT tracers

View the agenda &amp; register for ASNC2025!
👉bit.ly/4e7aeZZ
Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

REGISTER for the Run-Walk-Roll-Bike until July 31st!!! You can participate anytime between now and July 31, 2025. Registration includes a newly designed T-shirt! Registration is open NOW!!! Scan the QR code with or click here to register bit.ly/2025Run

REGISTER for the Run-Walk-Roll-Bike until July 31st!!!
You can participate anytime between now and July 31, 2025. Registration includes a newly designed T-shirt! Registration is open NOW!!!
Scan the QR code with or click here to register 
bit.ly/2025Run
Amyloidosis Whisperer (@danlier__) 's Twitter Profile Photo

#Amyloidosis Outreach and Empowerment - Join Us Wednesday, July 2nd, 3pm PST / 6pm EST for Somebody To Talk To with Dr. Stacey Goodman from Vanderbilt Medical. Register Here: somebodytotalkto.com/amyloidosis-se… #RareDisease #DanLier

Amyloidosis (@amyloidosisfdn) 's Twitter Profile Photo

REGISTRATION IS OPEN for the 'Run for Your Life' Run-Walk-Roll-Bike until July 31st!!! You can participate anytime between May 1, 2025, and July 31, 2025. Registration includes a newly designed T-shirt! Registration is open NOW!!! Register: bit.ly/2025Run or by QR code!

REGISTRATION IS OPEN for the 'Run for Your Life' Run-Walk-Roll-Bike until July 31st!!!
You can participate anytime between May 1, 2025, and July 31, 2025. Registration includes a newly designed T-shirt! Registration is open NOW!!!
Register: bit.ly/2025Run or by QR code!
Ronald Witteles (@ron_witteles) 's Twitter Profile Photo

Another disappointment for #AL #amyloidosis #depleters: CARES didn’t meet its primary endpoint. What exactly was the prespecified subgroup that showed benefit? 🤔 Does this mean anything for #ATTR depleters? Time (and full data) will tell. reuters.com/business/healt…