✅ Very happy to report that we are moving forward to step 1b of the #ENDORSED study: the #DORIS group is now asking #patients to contribute to its definition of SEVERE #LUPUS, within its major international expert consensus 🧑‍🎓 This will prove very helpful for care & trials👍

Early cancer detection means more hope, especially for patients with complex conditions like lupus. A majority in both the House & Senate now back the #MCEDAct Chuck Schumer Hakeem Jeffries @LeaderJohnThune@SpeakerJohnson finish the job and pass the bill!

✅ Very happy to report that we have completed the #LBFSS study STEP2!! An international panel of experts 🧑‍🎓 & patients(-representatives) from Lupus Europe have triaged the #lupus #brainfog domains from step 1 and selected those relevant for inclusion in the #LBFSS questionnaire!

✅ #PrecisionMedicine is IMPORTANT in #Lupus, but PERSONALIZED medicine, - taking into account the personal socio-economic determinants & patient #vulnerabilities-, is even MORE IMPORTANT. Check our latest PAPER with Daniel G. Oliveira & Zoe from Lupus Europe at: sciencedirect.com/science/articl…

170+ groups representing America's seniors, rural communities, and other underserved communities support ECAPS. Thank you Leader John Thune and Mark Warner for championing #S2426 to protect America’s seniors. National Infusion Center Association (NICA) Global Healthy Living Foundation Aimed Alliance

✅ What is lacking the most at the #lupus consultation, from the #patient perspective? OPEN-ACCESS FREE LINK: sciencedirect.com/science/articl…

We are proud to join 170 groups in supporting #S2426, bipartisan legislation to ensure senior access to essential pharmacist services. Congress must pass this important legislation to protect America's seniors. Thank you Leader John Thune Mark Warner for championing this bill.

👇2 minutes of conservative voices highlighting the really bad impacts of #MFN policy. Really (REALLY) bad for R&D. We can do better, but Congress and POTUS need to hear from you.... Americans for Prosperity Texas 2036 Coalition Against Socialized Medicine CTD Alzheimer's Association The ALS Association Lupus Association

📢“Removing the experts from the #ACIP panel makes little sense to us and may result in poorer protection from potentially fatal diseases for the #immunocompromised population,” said Kathleen Arntsen @LADAorg. Read the full story Healio Rheumatology 👇 healio.com/news/rheumatol…

We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and Turning Stone Resort sales, catering and golf staff.

We are thrilled to have you and #Lupus_Chat as a partner. Thank you for being a social media ROCKSTAR! 💜

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR25. Kudos to all of you for collaborating to improve lives!

Thank you to our #LADAorg planners, booth volunteers and allies Kathleen Arntsen Anne Zablotowicz Dave Arntsen #DinaThachet Tiffany ⁷ Whitney Carter LaBar🎗👊, Chronically Awesome Kaamilah Gilyard MMRI Trisha Brian Nyquist, MPH CoLN

So thankful to be here with Lupus Association 💜 and representing the patient voice in rheumatology. I will be at the booth tomorrow 12-1pm if anyone stops by! #LADAorg #ACR25

Orofacial Systemic Sclerosis [Andrew Leask] #ACR2025 #SSc #Rheumatology #MedTwitter & Dental Care 🦷🪥

It’s not everyday we get to see some of our favorite rheumatologists! Thank you for stopping by the Lupus Community Booth at #ACR25 Donald Thomas, MD, Irene B ©, & Dr. Shereen Mahmood! 💜✨

🆕 Clinical Year in Review at #ACR25 By Dr. Bryant England UNMC Rheum 🔶 Review the most impactful studies in #Rheumatology from the past year! ❓ Any studies you would add to the list? #RheumX #RheumTwitter #ACR2025

So thankful that American College of Rheumatology had the patient voice represented at #ACR25 #LADAorg

Kudos to Whitney Carter LaBar🎗👊, Chronically Awesome for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #PatientVoice Kathleen Arntsen Anne Zablotowicz Dave Arntsen Tiffany ⁷ Trisha

Getting sick shouldn’t mean going broke. #MedicalDebt is crushing families - even people who have insurance. It’s time to fix this broken system and Pass #H419 & #S214! #mapoli #ProtectPatients bostonherald.com/2025/10/21/cla…