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Should we start a crypto to fund rare disease research? I am very serious. Leave comments to brainstorm #Blockchain #RareDisease #crypto #fundraising Ethan Perlstein bio/acc @[email protected] CureSPG50 Vijay Sapps Neena Nizar David Fajgenbaum, MD @SLC6A1_Mom

👏 Madison Grant

Breaking: The Ever Given has been maneuvered out of the Suez Canal and is now stuck at Storrow Drive.

Congratulations 👏👏👏 Sanath Ramesh and OpeTreatments

Odylia is excited to launch a new initiative: The Odylia Manufacturing Fund! To keep viable, sight-saving treatments moving toward clinical trials, we are raising money to cover the costs of manufacturing promising gene therapies. Learn more: odylia.org/manufacturing-…

Odylia Therapeutics will be discussing our RPGRIP1 Gene Therapy program to treat vision loss in patients diagnosed with Leber Congenital Amaurosis 6 (LCA6). Join us to learn more. odyliatherapeutics.salsalabs.org/rpgrip1zoom0/i… #genetherapy #RPGRIP1 #LCA #LCA6 #nonprofit #raredisease

Join us at 2pm (EST) today for Odylia's update on our RPGRIP1 gene therapy program. There is still time to register: odyliatherapeutics.salsalabs.org/rpgrip1zoom0/i… If you haven't received the zoom link or can't find it in your email please join here: us02web.zoom.us/j/83975455449 #LCA #RPGRIP1

Odylia Therapeutics announced today that the FDA granted Orphan Drug Designation and Rare Pediatric Disease Designation to OT-004, Odylia's lead program to treat vision loss caused by mutations in the RPGRIP1 gene. #raredisease #RPGRIP1 #LCA6 #genetherapy odylia.org/odd-rpdd

Thank you to everyone who has supported Odylia Therapeutics's mission this year. We are grateful for the community support!

Did you know Odylia is a NONPROFIT biotech? Donations help further our mission of accelerating gene therapy development for #raredisease and children like Dylan. On this #GivingTuesday, help us reach our goal of raising $95,000 by Dec 31. #RPGRIP1 bit.ly/3xxgghr

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This article is a great opportunity to raise awareness of the impact of #nonprofit drug development. Hopefully it is the first of many as we continue our important work to bring treatments to #raredisease patients.

Rare Disease research funding opportunity 👇

Interested in chatting about your #RareDisease #DrugDevelopment efforts at the Global Genes 2022 Rare Patient Advocacy Summit? Follow the link and we'll setup a time to meet tinyurl.com/2p8ufc4y #GGSummit #GGSummit22 #CareAboutRare

Our CEO Scott Dorfman knows firsthand what it’s like to care for family members living with a #raredisease. Read his story here tinyurl.com/3nz3fw2m

Today kicks of Rare Disease Awareness Month! Odylia is showing our stripes in support of the rare disease community! #showyourstripes #raredisease #rarediseaseawareness

So very proud to be apart of this organization! Here’s to another 5! Better yet, another 50!!! 🎉🍾

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Report out today 👀--> Institute for Geographic Information Science led initiative to tackle issues of #access and #affordability of 🧬genetic therapies. Thank you for the opportunity to participate on the Affordability Task Force. This is such a critically important topic. #pricing #genetherapy #CRISPR

Anyone in the UK keen on Leicester Tigers or Ollie? Funds support Odylia Therapeutics's development of a gene therapy to treat vision loss. #RWC2023 #RugbyWorldCup England Rugby Rugby World Cup #nonprofitbiotech