Ataxia UK (@ataxiauk) 's Twitter Profile
Ataxia UK

@ataxiauk

The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias.

ID: 26735143

calendar_today26-03-2009 12:12:22

8,8K Tweet

4,4K Followers

1,1K Following

Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Phil lives with ataxia – a rare neurological condition. Now he's helping support a world-first: crossing the Alps in wheelchairs with no power assist. Support his journey + donate to Ataxia UK: 🔗 justgiving.com/page/phillip-b… #Alps4Ataxia #DisabilityPride

Ataxia UK (@ataxiauk) 's Twitter Profile Photo

From “just be more careful” to “are you drunk?", these are the everyday myths people with ataxia face. It’s time to challenge the stigma and tell the truth. Watch, share, and help us raise awareness. Learn more: ataxia.org.uk #AtaxiaUK #AtaxiaAwareness

Ataxia UK (@ataxiauk) 's Twitter Profile Photo

🧠 When everything changed. Patrick was fit, active, full of life. A car accident led to a shock diagnosis: SPG7. No cure. No meds. No roadmap. Nicola shares their powerful journey — and is reaching out: 🔗 ow.ly/6K5F50Wnut8 #SPG7 #AtaxiaUK

🧠 When everything changed.

Patrick was fit, active, full of life. A car accident led to a shock diagnosis: SPG7. No cure. No meds. No roadmap.

Nicola shares their powerful journey — and is reaching out:

🔗 ow.ly/6K5F50Wnut8

#SPG7 #AtaxiaUK
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

🚀 Ataxia UK is funding a new augmented reality project to help improve balance & reduce falls in people with ataxia. Real-time visual feedback could boost mobility & independence. 🎯 Led by Aston, Newcastle & Birmingham Uni + NHS Trust. 🔗 tinyurl.com/2s4dzc8w #NeuroRehab

🚀 Ataxia UK is funding a new augmented reality project to help improve balance & reduce falls in people with ataxia. Real-time visual feedback could boost mobility & independence.
🎯 Led by Aston, Newcastle & Birmingham Uni + NHS Trust.
🔗 tinyurl.com/2s4dzc8w  #NeuroRehab
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

💙 Huge thanks to McKesson Corporation Global & ClarusONE for raising an incredible £30,000 for Ataxia UK! Your support powers vital research, family support & awareness for those living with ataxia. We’re so proud to have you as partners. #ThankYou #TeamAtaxia #CSR #RareDisease

💙 Huge thanks to <a href="/McKesson/">McKesson Corporation</a> Global &amp; ClarusONE for raising an incredible £30,000 for Ataxia UK!
Your support powers vital research, family support &amp; awareness for those living with ataxia.
We’re so proud to have you as partners.
#ThankYou #TeamAtaxia #CSR #RareDisease
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

🗻 They crossed the Alps. By wheelchair. 422km. 18 days. 40°C heat. Ben & Peter defied terrain, disability & expectations — raising awareness for #Ataxia. Read via euronews: 🔗 ow.ly/ho2M50Wo9Ml #Alps4Ataxia #DisabilityAwareness @Benpushes

🗻 They crossed the Alps. By wheelchair.
422km. 18 days. 40°C heat.
Ben &amp; Peter defied terrain, disability &amp; expectations — raising awareness for #Ataxia.
Read via <a href="/euronews/">euronews</a>:
🔗 ow.ly/ho2M50Wo9Ml
#Alps4Ataxia #DisabilityAwareness @Benpushes
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

🪂 Huge thanks to James Riley for skydiving in support of Ataxia UK — and raising £830 (incl. Gift Aid)! Your leap means the world to everyone affected by ataxia. We’re so grateful for your courage & commitment! #TeamAtaxia #ThankYou #SkyDiveForACure #RareDisease

🪂 Huge thanks to James Riley for skydiving in support of Ataxia UK — and raising £830 (incl. Gift Aid)!
Your leap means the world to everyone affected by ataxia.
We’re so grateful for your courage &amp; commitment!
#TeamAtaxia #ThankYou #SkyDiveForACure #RareDisease
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Ataxia UK CEO Sue Millman & Prof Paola Giunti, Head of the London Ataxia Centre, joined the APPG on Rare Disease to call for urgent access to omaveloxolone for people with FA in the UK — and proposed updates to the Rare Disease Framework. Sign now 👉 tinyurl.com/5n8xmzz2

Ataxia UK CEO Sue Millman &amp; Prof Paola Giunti, Head of the London Ataxia Centre, joined the APPG on Rare Disease to call for urgent access to omaveloxolone for people with FA in the UK — and proposed updates to the Rare Disease Framework. 
Sign now 👉 tinyurl.com/5n8xmzz2
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Join a live event with scientists from Cerebrum discussing a novel SK Channels approach to treating ataxia, incl. SCA2. 📅 July 16 · 5 PM UK 🎥 Event will be recorded 🔗 Register: lu.ma/0itpyd4s Hosted with Ataxia UK

Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Thank you, Lucy Riley! Huge congrats for completing a sky dive for Ataxia UK and raising £1,701! We're proud to have you on #TeamAtaxia. Want to take on a challenge? Get in touch: [email protected]

Thank you, Lucy Riley!  Huge congrats for completing a sky dive for Ataxia UK and raising £1,701! We're proud to have you on #TeamAtaxia. Want to take on a challenge? Get in touch: fundraising@ataxia.org.uk
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Thank you, Tarbert! 🙌 We raised £1,000 for Ataxia UK at the Duncan TT MacDougall Memorial Football Tournament. Your support honors Duncan! ❤️ #AtaxiaUK #TeamAtaxia #FundraisingFootball #RareDiseaseAwareness #ThankYou

Thank you, Tarbert! 🙌 We raised £1,000 for Ataxia UK at the Duncan TT MacDougall Memorial Football Tournament. Your support honors Duncan! ❤️ #AtaxiaUK #TeamAtaxia #FundraisingFootball #RareDiseaseAwareness #ThankYou
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

💥 They did it! @Benpushes & Peter just became the first team to push across the Alps in wheelchairs — raising funds & awareness for #ataxia 💙⛰️ A world-first. A message of strength. A win for our community. 🎥 Watch their ITV story here 👉 ow.ly/hJgi50Wr9Ox

Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Lexeo Therapeutics' LX2006 gene therapy for Friedreich's ataxia gets FDA Breakthrough Therapy Designation! Read more: tinyurl.com/2a9me74v. #Ataxia #AtaxiaPharma #AtaxiaResearch #FriedreichsAtaxia #Cardiomyopathy #GeneTherapy #LexeoTherapeutics

Lexeo Therapeutics' LX2006 gene therapy for Friedreich's ataxia gets FDA Breakthrough Therapy Designation! 

Read more: tinyurl.com/2a9me74v.

 #Ataxia #AtaxiaPharma #AtaxiaResearch #FriedreichsAtaxia #Cardiomyopathy #GeneTherapy #LexeoTherapeutics
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

"My ability is not defined by my disability." Check out Laura’s inspiring journey with cerebellar ataxia in Athens! 👉 Read her blog: ow.ly/o8sW50WrimE #AtaxiaAwareness #DisabledAndProud #TravelWithDisability #InvisibleDisability

"My ability is not defined by my disability." Check out Laura’s inspiring journey with cerebellar ataxia in Athens! 👉 Read her blog: ow.ly/o8sW50WrimE #AtaxiaAwareness #DisabledAndProud #TravelWithDisability #InvisibleDisability
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Thank you, Rob Dowie, for completing the London to Brighton Cycle, and raising an incredible £1137 Inc. (GA) ! Want to take on your own challenge for Ataxia UK? Get in touch: [email protected]

Thank you, Rob Dowie, for completing the London to Brighton Cycle, and raising an incredible £1137 Inc. (GA) ! 
Want to take on your own challenge for Ataxia UK?
Get in touch: fundraising@ataxia.org.uk
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

TCS London Marathon 2026 – Disability Ballot Open! 🏃‍♂️ Ready for the challenge? Email [email protected] to secure your spot and support Ataxia UK! 💙 #LondonMarathon2026 #TeamAtaxia #DisabilitySport #AtaxiaUK

TCS London Marathon 2026 – Disability Ballot Open! 🏃‍♂️ Ready for the challenge? Email fundraising@ataxia.org.uk to secure your spot and support Ataxia UK! 💙 #LondonMarathon2026 #TeamAtaxia #DisabilitySport #AtaxiaUK
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Become a Regular Giver to Ataxia UK! 🌟 Your support helps the ataxia community all year without hassle. For info, contact [email protected] or visit: ataxia.org.uk/donate-to-us/#…

Become a Regular Giver to Ataxia UK! 🌟 Your support helps the ataxia community all year without hassle. For info, contact fundraising@ataxia.org.uk or visit: ataxia.org.uk/donate-to-us/#…
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Ben and Peter made history pushing across the Alps in wheelchairs for ataxia! Read more: independent.co.uk/travel/news-an… #Alps4Ataxia #AtaxiaUK #WheelchairChallenge #DisabledAndProud

Ataxia UK (@ataxiauk) 's Twitter Profile Photo

Join ataxia research and support treatment progress! Visit our Research page for surveys, trials, and studies. Make a difference: ataxia.org.uk/ataxia-researc…. #Ataxia #AtaxiaResearch #CerebellarAtaxia #FriedreichsAtaxia #AtaxiaUK #AtaxiaTrials

Join ataxia research and support treatment progress! Visit our Research page for surveys, trials, and studies. Make a difference: ataxia.org.uk/ataxia-researc…. #Ataxia #AtaxiaResearch #CerebellarAtaxia #FriedreichsAtaxia #AtaxiaUK #AtaxiaTrials
Ataxia UK (@ataxiauk) 's Twitter Profile Photo

3,100 Pull-Ups Down! Let’s help Piran Power to £2,000 for Ataxia UK! 💪 He’s doing 100 pull-ups daily all month! Let’s reach £2000 before July ends! Donate here: justgiving.com/page/piran-hob… Let’s all PULL for Piran! 🔥