Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile
Ataxia and Me CIO 1184030

@ataxia_and_me

#Ataxia is a #raredisease
affecting #Balance #Speech and #Coordination

#Patients Helping Patients
#MovementDisorder
#Health #Medical #pharma

ID: 768749061759438848

linkhttps://www.ataxia-and-me.org calendar_today25-08-2016 09:57:14

78,78K Tweet

3,3K Followers

3,3K Following

Strive for Five - Living Life with Stage 4 Cancer (@striveforfivebc) 's Twitter Profile Photo

It’s always a privilege to represent patients, and I’m looking forward to doing this at the C3 Summit event next month C3 is “Conversations on Clinical Content” and the agenda looks great Learn more & register: thec3summit.com/london-2025/ #C3Summit #RepresentingPatients 1/2

It’s always a privilege to represent patients, and I’m looking forward to doing this at the C3 Summit event next month

C3 is “Conversations on Clinical Content” and the agenda looks great

Learn more & register: thec3summit.com/london-2025/

#C3Summit #RepresentingPatients

1/2
Strive for Five - Living Life with Stage 4 Cancer (@striveforfivebc) 's Twitter Profile Photo

I’ll be speaking on a panel focused on how embedding patient insights from the earliest stages of development through to launch isn’t just ethical, it’s an imperative. We’ll chat about what’s working, what’s not, and ways we can do better. 2/2

Vasculitis - In memory of John Mills MBE 💙💚 (@vascuk) 's Twitter Profile Photo

For the person living with a #chronicillness such as #vasculitis , it is their daily reality! Every #patient deserves understanding and good quality care from their #doctors & #nurses regardless of how uncommon their condition might be.” #raredisease Visualising Vasculitis

For the person living with a #chronicillness such as #vasculitis , it is their daily reality! Every #patient deserves understanding and good quality care from their #doctors & #nurses regardless of how uncommon their condition might be.” #raredisease Visualising Vasculitis
Disability Wales (@disabilitywales) 's Twitter Profile Photo

📢Calling all our members. We need your voice to fight back against heartless benefit cuts. Tell us how these changes would affect you by taking our short survey. Every voice matters! surveymonkey.com/r/6GNN79S

CEDAR (@cedar_cardiff) 's Twitter Profile Photo

We’re here for a really exciting day at the SCP Preventing Deconditioning event at Sophia Gardens. It’s absolutely brilliant to hear all the great work that is being done throughout NHS Wales 👏🏼 - Elinor

We’re here for a really exciting day at the SCP Preventing Deconditioning event at Sophia Gardens. It’s absolutely brilliant to hear all the great work that is being done throughout NHS Wales 👏🏼

- Elinor
Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Third panel at #C3Summit #PatientAdvocacy #PatientEngagement #digitalHealth #Health #AI #LifeScience #Medical #Clinical #StrongerTogether

Third panel at #C3Summit  
#PatientAdvocacy 
#PatientEngagement
#digitalHealth
#Health #AI #LifeScience 
#Medical #Clinical
#StrongerTogether
Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Thought it was Anne Robinson speaking at #C3Summit 🫣 #PatientAdvocacy #PatientEngagement #digitalHealth #Health #AI #LifeScience #Medical #Clinical #StrongerTogether

Thought it was Anne Robinson speaking at #C3Summit  🫣
#PatientAdvocacy 
#PatientEngagement
#digitalHealth
#Health #AI #LifeScience 
#Medical #Clinical
#StrongerTogether
Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Attendees at #C3Summit #Ataxia is NOT a foreign Cab/Taxi Be aware of this #RareDisease--👍 Follow @Ataxia_and_me #Ataxia #charity Wales Support us at our Localgiving webpage localgiving.org/fundraising/At…

Attendees at #C3Summit
#Ataxia is NOT a foreign Cab/Taxi
Be aware of this #RareDisease--👍  
Follow @Ataxia_and_me #Ataxia  #charity Wales

Support us  at  our  
<a href="/Localgiving/">Localgiving</a> webpage

localgiving.org/fundraising/At…
Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Ater lunch panel at #C3Summit #PatientAdvocacy #PatientEngagement #digitalHealth #Health #AI #LifeScience #Medical #Clinical #StrongerTogether

Ater lunch panel at #C3Summit  
#PatientAdvocacy 
#PatientEngagement
#digitalHealth
#Health #AI #LifeScience 
#Medical #Clinical
#StrongerTogether
Cambridge Rare Disease Network (CamRARE) (@camraredisease) 's Twitter Profile Photo

RAREsummit25 is coming! 6 Nov | Wellcome Genome Campus, Cambridge We’re celebrating 10 years of rare disease impact – and looking to the future. Early bird tickets drop next week! #RareDisease #Innovation #PatientVoices #CambridgeEvents

RAREsummit25 is coming!
6 Nov | Wellcome Genome Campus, Cambridge

We’re celebrating 10 years of rare disease impact – and looking to the future.

Early bird tickets drop next week!
#RareDisease #Innovation #PatientVoices #CambridgeEvents
Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Be #Ataxia aware at #C3Summit #PatientAdvocacy #PatientEngagement #digitalHealth #Health #AI #LifeScience #Medical #Clinical #StrongerTogether

Be #Ataxia aware at #C3Summit  
#PatientAdvocacy 
#PatientEngagement
#digitalHealth
#Health #AI #LifeScience 
#Medical #Clinical
#StrongerTogether
CheckRare (@checkrare) 's Twitter Profile Photo

This CME program, hosted by Richard J. Nowak, MD, MS, explains the role of neonatal fragment crystallizable receptor (FcRn) in myasthenia gravis (MG) and how treatments that target FcRn are being used to manage patients with MG. checkrare.com/learning/p-fcr… #CheckRare #CME

This CME program, hosted by Richard J. Nowak, MD, MS, explains the role of neonatal fragment crystallizable receptor (FcRn) in myasthenia gravis (MG) and how treatments that target FcRn are being used to manage patients with MG.

checkrare.com/learning/p-fcr…

#CheckRare #CME
Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Sheila speaking at #C3Summit #PatientAdvocacy #PatientEngagement #digitalHealth #Health #AI #LifeScience #Medical #Clinical #StrongerTogether

Sheila  speaking at #C3Summit  
#PatientAdvocacy 
#PatientEngagement
#digitalHealth
#Health #AI #LifeScience 
#Medical #Clinical
#StrongerTogether