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#POTS pts. are often told their orthostatic symptoms are d/t anxiety + hyperventilation. However Dr. Satish Raj’s Research Team show poor blood flow to the brain and out of the heart drives postural hyperventilation. This confirms blood volume and circulation should be targets in #POTS treatment. 🙌

There is a difference between FND and #LongCovid This article clearly lays out the research and clinical perspectives on these disorders. #POTS #longCOVID

Thanks to ⁦Aisha Dow⁩ for bringing attention to the long diagnostic delay experienced by women with #POTS in Australia. A time for change ⁦Chris Picton MP⁩ ⁦Mark Butler MP⁩ ⁦Australian POTS Foundation⁩ ⁦NHMRC⁩ ⁦Heart Foundation⁩ smh.com.au/national/this-…

This podcast lays bare the reality and struggles many clinicians with #POTS face while helping others navigate chronic illness. 🙏 to Caelum and all those who chose to care for our community instagram.com/p/C-3yVzsMfo1/…

I love to walk. So on October 26th I'm going to walk 30km from the Adelaide Hills to the city to raise funds for POTS research. Please consider giving to this great cause. DM me if you would like to walk with me!! gofund.me/a54afab6 Australian POTS Foundation

People with #POTS and #LongCovid often report an initial misdiagnosis of Functional Neurological Disorder. This paper offers a clear explanation of the differences between the two disorders.

58% of POTS pts leave their jobs due to their diagnosis yet, there has never been any funding allocated in Australia for community support, research, or specialized care. Support our POTS nurses as they walk to raise funds for POTS awareness and care. gofund.me/ac8dc21c

1 week until our group of #POTS clinicians and friends walk 30km to raise money for Australian POTS Foundation to support POTS research. We are SO close to our $15000 October fundraising goal. To help us get there click below👇🏻 gofund.me/669b20fd

#POTS might be underdiagnosed if doctors don’t test standing response long enough. Dr. Satish Raj’s Research Team research shows 5 minutes may not be sufficient. American Autonomic Society

That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! ⁦ADARC⁩ ⁦American Autonomic Society⁩ ⁦SAHMRI⁩ ⁦RBRC Uni SA⁩

📢 Applications are open for our 2025 Research Grant and PhD Top-Up Scholarship, supporting innovative research to improve the lives of people with POTS in Australia. 💡 🗓️ Applications close: 20th December 2024. Learn more: potsfoundation.org.au/research/ ADARC SA CVRN SAHMRI

Exciting new research from Dr. Satish Raj’s Research Team shows that commercially available compression wear significantly improves symptoms and reduces heart rate in #POTS. A simple, accessible solution for better everyday management! #POTS #Dysautonomia #longCOVID

Registries like the Australian POTS Registry are vital to understanding the impact of #POTS and driving change. Funding is needed to expand this to a national platform. Let’s make it happen! Mark Butler MP Australian Department of Health and Aged Care

🧠 Those living with #POTS & hypermobility (#EDS) may also face craniocervical instability (#CCI). Evaluation like halo traction could be key for targeted treatment. Learn more from this Australian research: sciencedirect.com/science/articl… Prashanth Rao

Big news! 🇦🇺 officially confirms a unique ICD code for #POTS – a huge win for recognition & health policy reform. 🙏to Marie-Claire Seeley & @celinegallagher for tireless advocacy & Dysautonomia Intl. & Dr Jeff Boris for paving the way in the US. instagram.com/p/DDq6H4ZvGkN/… #POTS #Dysautonomia

📢 New Australian research on #POTS! 🇦🇺 Adelaide researchers have shown cerebral hypoperfusion in POTS is common. These findings have major implications for clinical care and future research. Read more: rdcu.be/d7UFW Celine Gallagher Dennis H Lau ADARC Marie-Claire Seeley

More research from Stanford Neurology & Neurological Sciences showing the burden of #POTS and #autonomic disorders after #COVID

Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction go.nature.com/3ElLqQa

📣 The APF was proud to advocate at Parliament House today with @MissingSchoolAU, championing kids with chronic illness who are missing from school. 🙏 b a m . & the team for driving this conversation! Marie-Claire Seeley Celine Gallagher instagram.com/p/DF_mk6vTTuQ/…

🚨 New research supported by Australian POTS Foundation published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use. Yet face longer diagnostic delays. Led by Marie-Claire Seeley Celine Gallagher Dennis H Lau 🔗bit.ly/4j3y0aH