
Avril Kennan π
@avrilkennan
CEO, Health Research Charities Ireland - @HRCIreland (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
ID: 221407296
http://www.hrci.ie 30-11-2010 15:52:03
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Such a stunning video telling the story of Fighting Blindness. A story close to my heart as my career started in a Fighting Blindness-supported lab. Creator: Laura Finnegan #HealthResearchMatters youtube.com/watch?v=f1Emn8β¦

Thank you PatientView for highlighting the importance of patient-focused groups like us and our member organisation, CF Ireland, in health research. There is so much wisdom in our community. #HealthResearchMatters

What is #PPI? What does it involve? Learn this and more during a Meet & Greet chat at the Rare Disease Clinical Trials Conference! Join @cassandradinius of Rare Disease Clinical Trial Network, Ireland Dylan Keegan of UCD Clinical Research Centre and Ger Halpin of PPI Ignite Network Ireland #RareDiseaseDay REGISTER: forms.gle/sozhmyvjQowL8Nβ¦


Today, on the eve of #RareDiseaseDay2024, Debraβs Head of Advocacy, Research and Policy Sinead Hickey along with Deirdre Callis, Head of Family Support Services, and Dr Rosemarie Watson, Debra Board member and former Director of EB Services in Ireland, presented the need for


Debra Regier, Children's National Hospital π₯ talks about the heart & soul at the centre of rare disease research, as well as the importance of communities of practice. At the Rare Disease Clinical Trial Network, Ireland conf. Note the tiny zebra she brought with her. π¦ #ShowYourStripes #RareTrial24 #RareDiseaseDay2024


Congrats to the HealthResearchBoard for their very significant support of #RareDisease. Many of those supported are gathering today at the Rare Disease Clinical Trial Network, Ireland, #RareDisease2024 event to discuss how to address the unmet needs of patients & families, through research & collaboration. Health Research Charities Ireland - HRCI

SNOW IN DUBLIN IN MARCH! Rare event for a rare trial event #RareTrials24 Day 2. Health Research Charities Ireland - HRCI UCD Medicine St Vincent's University Hospital (SVUH) RAiN Rare Diseases Ireland #RareDiseaseDay

At the launch of the new National Cancer Registry Ireland strategy, Stephen Donnelly talks about the value of registry data to improve services and how the cancer registry shines internationally. #HealthResearchMatters


Delighted to be hosting a Health Research Charities Ireland - HRCI facilitation skills workshop for 20 of our members, in partnership with TCD Civic Engagement. No-one will forget all the wonderful advice from Michael Foley.





Yes, I know annual reports rarely make it to the top of the list but even a quick glance at this will give you a sense of our work & the many wonderful partners who support it. A great piece from SJOG Research Foundation & you will see many familiar faces from the health research space.

We're excited to share the RIVA project report, which explores decision-making & the patient voice in the HRCI-HRB Joint Funding Scheme. Led by Dr Nicola Mountford & Emily Merrick Maynooth University, it highlights the importance of patient involvement. hrci.ie/joint-funding-β¦


What better way to launch the #NationalPPIFestival2024 to 'connect, collaborate, celebrate'? A huge thanks to PPI Ignite Network @ UCC for a warm welcome and great discussion Looking forward to the events taking place in the month ahead! Check out our calendar! tinyurl.com/3ktzckpj


A fantastic launch event for the #NationalPPIFestival2024 in UCC Ireland this morning. Well done on your great organising skills PPI Ignite Network @ UCC! Pictured: Niamh from RCSI PPI Ignite & Joanne from Family Carers Ireland talking about a new PPI module for postgrads.


What a great event today as part of MU Research Week MU Research and the National PPI Festival PPI Ignite Network Ireland! Thanks so much to N Lacey Avril Kennan π The Wheel Health Research Charities Ireland - HRCI for starting so many brilliant conversations!


