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Should children with hearing loss undergoing exome sequencing also be offered secondary findings? Lauren Notini A/Prof Danya Vears Prof Clara Gaff and Julian Savulescu asked health professionals offering this testing what they thought Murdoch Children's Research Institute (MCRI) University of Melbourne tandfonline.com/doi/full/10.10…

Interested in clinician perspectives on decision-making in paediatric home mechanical ventilation? Check out this paper by Juliette Jeffreys, Mayukh Rahman, A/Prof Danya Vears John Massie onlinelibrary.wiley.com/doi/10.1111/jp…

Read our latest blog post exploring the #ethics issues of #consent for #genomictesting Courtesy of Australian Genomics by co-authors Dr Fiona Lynch, PhD MGenCouns A/Prof Danya Vears Prof Zornitza Stark and Chris Gyngell

Data sharing is so important for #genomics - check out the next blog in our series on this topic! In this piece, we explore the pros and cons of #bigdata sharing, and what the Australian public thinks about it!

Featuring BERG fellow Chris Gyngell!

Should we offer secondary findings from #genomics in children? What do parents want to know? Read our latest blog post outlining some of our recent research on this!

Just out! Our postdoc A/Prof Danya Vears along with Isabelle Budin Ljosne and Nina Hallowell, led the development of a practical checklist for return of results from genomic research in the European context University of Melbourne Murdoch Children's Research Institute (MCRI) Centre for Biomedical Ethics and Law - KU Leuven rdcu.be/c8bY9

New paper out by Katie Arkell A/Prof Danya Vears Prof Zornitza Stark and Chris Gyngell on ethical issues relating to use of rapid genomic sequencing in critically ill children mdpi.com/2227-9067/10/5… Murdoch Children's Research Institute (MCRI) University of Melbourne

New Position Statement issued by Human Genetics Society of Australasia providing guidance on genetic carrier testing for recessive conditions in adults and children cambridge.org/core/journals/…

Looking at some of the issues around overdiagnosis/misdiagnosis of ADHD through the lens of an ethicist. Great to work with Chris Gyngell and Jonathan Payne on this. Hope it stimulates conversation UniMelb MDHS #ADHD sciencedirect.com/science/articl…

Huge thanks to the #ESHG2023 organisers for letting Celine Lewis and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁

New research analysing the first porcine cardiac xenotransplantation, with BERG’s Chris Gyngell, Igor Konstantinov, Julian Savulescu, Prof Megan Munsie, Prof Misao Fujita, and Dr. Carrie Thiessen. jme.bmj.com/content/early/…

Shared just a snippet of our recent work yesterday at #ICG2023 Reanalysis of genomic data is so beneficial, but there are practical and ethical issues to consider #genechat

Check out the new position statement by the Human Genetic Society of Australasia on Genetic Carrier Testing for Recessive Conditions led by A/Prof Danya Vears with Prof. Ainsley Newson 💉💉💉💉💉 Aideen McInerney-Leo she/her @jacobs_chrisj and Jackie Boyle doi.org/10.1017/thg.20…

Check out our new paper where we analysed submissions sent to the Senate Committee that informed drafting of the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 Jemima Allen A/Prof Danya Vears Murdoch Children's Research Institute (MCRI) UniMelb MDHS link.springer.com/article/10.100…