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Thank You‼️2this #MD #PCP #kudos 👍👏 Illness esp #chronicillness involves lot >than appearances!! It’s NOT merely skin deep.👎 ChronicIllness #patients have 2function feeling like crap🤬 They often have 2 “fake it (B’ing well enuf) 2make it 2 MD appt”🤷‍♀️ Dr Mary Ann Wilmarth Sjogrens_Speaks

As person dealing w/ #rarediseases & #chronicillness I’ve had 2deal w/ #medical #Gaslighting on multiple occasions‼️ Unfortunately, I have so many personal examples I could fill a book.🤦‍♀️I’ve heard even more from former patients, friends,etc 🤷‍♀️So sad🥲 Dr Mary Ann Wilmarth CreakyJoints.org

Join a very special Black History Month themed #CreakyChats tonight Monday February 20th at 7:00pm EST

Join CreakyJoints.org TONIGHT at 7PM ET for a #CreakyChats honoring Black History Month Dr Mary Ann Wilmarth

I’ve had major problems w/ #autorefills I noticed pharmacy was calling my doctors 2refill without my permission‼️ The names weren’t even ones I knew‼️ I also moved & called many times to transfer script’s: pharm kept filling. DANGEROUS‼️ Makes Pt look bad in MD eyes2: lose trust!

Rare Disease Day🦓 •I support #RareDiseaseDay2023 •I live w/ #raredisease every day of my life. •There are >than 7,000 rare diseases affecting Americans according 2 NIH rarediseases.org Dr Mary Ann Wilmarth @nord_rare HOLDING NAME TO PREVENT ABUSE @nihgov #advocate #lightupforrare #Zebra

FDA releases new regs intended to help detect breast cancer sooner thehill.com/policy/healthc… Anyone have #densebreasttissue ❓ Add that to family history of #breastcancer & you may want to read‼️ U.S. FDA

Tomorrow Monday 03/27/23 7:00pm ET #CreakyChats on “Medical gaslighting” Let me count the times🤦‍♀️ unfortunately‼️ Join us👍 Dr Mary Ann Wilmarth CreakyJoints.org #gaslighting #medical #chronicillness #RareDisease #chronicpain

Hi Everyone 👋 I’m checking in from the NE coast of MA🌊 It’s strange to say that I am excited about the topic of “medical gaslighting” but I think that it needs to be discussed and addressed as it happens far too often! Dr Mary Ann Wilmarth #creakychats CreakyJoints.org

A1 I’ve experienced medical #gaslighting start in 1980’s: MD’s didn’t have answers, for ex. w/ endometriosis 🤷‍♀️ In >recent years I’ve had MDs see Dx: chronic… & that’s enough to gaslight me 😱 even when I lectured for some of their 🏨B4! Dr Mary Ann Wilmarth #creakychats CreakyJoints.org

A2 1/3 Frustrated is an understatement. My latest. Woke up w/excruciating L shld pn. Had to go to ED (2r/o❤️) which I avoid in part due2 #CVID #PI DX: immune deficiency+ No ❤️attack 👍Over wks: 2EDs, Ortho, Neuro, PCP, Dx imaging. Cont… Dr Mary Ann Wilmarth #creakychats CreakyJoints.org

A4 You know your body best. Make sure to advocate for yourself. When you’re not feeling well it helps 2bring someone w/you 2help when you’re not at your strongest. If you have rare disease, it’s harder. Be prepared. You know a lot! 😊 Dr Mary Ann Wilmarth #creakychats CreakyJoints.org

A Second Act for a Type 1 Industry Veteran diatribe.org/second-act-typ… via The diaTribe Foundation. Looking forward to seeing my cousin in his film #WhiskyFloats tonight Boston International Film Festival

#familycaregivers 👍👍 AARP Advocates Dr Mary Ann Wilmarth

Alzheimer's is showing to be largely a lifestyle disease. A new study showing gut health may impact the potential of getting Alzheimer's. Sugar is now being shown to disrupt the highly important bacteria in our gut which governs hormones & more. Alzheimer's is now being

So true‼️ It’s not unusual to wait 3-6 months for specialty doctor appointments! 🤷‍♀️ As a person with #chronicillnesses this can be very problematic even with lots of planning. We need to work together to help solve #healthcare crisis in this country. Dr Mary Ann Wilmarth CreakyJoints.org

May is #ArthritisAwarenessMonth CreakyJoints.org is spreading the message: “Be kind to your joints - and your mind.” Absolutely‼️ Dr Mary Ann Wilmarth

Explore healthy bones tonight at 7:00pm EDT #CreakyChats with Doctor Deena Bone Health & Osteoporosis Foundation Association of Migraine Disorders® PCFA @MSKAust CreakyJoints Australia See you then 👍 Dr Mary Ann Wilmarth

CONGRESS #EULAR2023 | @AnneRegierer, DRFZ, discussed changes in clinical parameters in patients who received DMARDS with or without MTX. 901 pts received monotherapy and 403 pts revived combination therapy. Reasons to stop treatment were similar between the groups.