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There’s a lot of stigma around equity in the current divisive political climate, but this work is absolutely critical to the babies and families we serve in the NICU. Not to mention that making things better for the most minoritized patients makes the system better for everyone.

I think this paper from the upcoming Diversity in Neurology issue with guest editor Maya Ayoub is so important that I'm just going to share it here in its entirety - for clips with alt text, find me, same handle, over at the sky. 1/ journals.sagepub.com/doi/abs/10.117…

So exciting to revamp the structure and engage leadership with our Hope for HIE ☀️ MAB! Let's gooooooooo!!! #NeoTwitter #NeuroTwitter

SO SO SO excited to have Maggie on our Hope for HIE ☀️ team! She's already digging in and trailblazing! Let's gooooo!!!! #NeoTwitter #NeuroTwitter #PatientAdvocacy

Encouraging. We all need some good news!

Ope. It’s me. My computer and my brain constantly have too many tabs open. Cheerio.

Hope for HIE ☀️ FCCTaskforce NICU Parent Network The Incubator Podcast AAP Neonatal NANN NAPSW Thank you, Betsy Pilon, for modeling what trauma-informed advocacy looks like—honoring hurt, inviting repair, and pointing the way forward with compassion and clarity. These so-called “silly” questions from parents? They are sacred. They are acts of love in a landscape of fear.

Bravo Colorado!⛰️👏On account of simple biology, NICU stays can be long and this bill assures that parents don’t have to choose between work and supporting their baby in the hospital: axios.com/2025/06/04/col…

The latest garbage coming at our families: Methylene Blue...

🧠 Now Open: McGill NNCC Fellowship! One-of-a-kind clinical research training in Neonatal Neurocritical Care at McGill. 💡 Neuroimaging, aEEG, brain injury, HIE, neonatal stroke 📍Montreal Children’s Hôpital de Montréal pour enfants & Jewish General Hospital with NeoBrainLab mcgill.ca/pgme/files/pgm…

20+ patient-families involved in this work. Not a single one with lived experience in HIE. HIE mentioned over 15 times in the manuscript. "But we had researchers who focus on HIE" not. the. same. thing. #DoNoHarm #NeonatalEthics

What drives me forward (and crazy): Parents reaching out to us today who were never told about their child's cause of death being HIE from a severe shoulder dystocia after a week in the #NICU. Not one person helped them. They found it in their MyChart after she died and Googled.

Pure Michigan trunk: Westborn Market goodies, L. Mawby Vineyards Lake Time wine, stand up paddleboards. It feels weird to be so horrified by our country’s decisions today, and then disassociate and try to enjoy day to day life. Happy? Holidays? 🫠 #Duality

This stopped me in my tracks at my appt today. Huge poster on #SeizureFirstAid at Henry Ford Health in the main area across from the elevators. Epilepsy Foundation of Michigan 🧠🎉

Prosecutors accuse the co-founder of one of the country's largest special needs trust administrators of orchestrating an elaborate scheme to embezzle $100 million and they suggest he did not act alone. #disabilities disabilityscoop.com/2025/07/07/spe…

His baby with HIE was saved by #NICU doctors after a homebirth gone wrong (he has shared publicly). Sleep, Sun, Movement, Real food didn't do that. NIH funding for therapeutic hypothermia did. Pushing pseudoscience as an MD is WILD & disappointing (but incredibly profitable).

Next #FCC webinar is this week! Don't miss it! And a reminder that we have webinars every other month. You can also check out previous webinars on our youtube! youtube.com/channel/UCe8wo…

I find it very interesting that my "for you" on this app for the longest time before Elon and Donald's break up was far far right political stuff. Now, it's back to more evidence-based info. Anyone else?

We're looking to support #NICU families across the country! California is seeking to create family leave reform. Share your support here: change.org/p/support-nicu… #nicuparent #nicunurse

That's enough interneting for one day for me. Back to digging out my inbox.