Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile
Bleeding and Clotting Disorders Institute

@bloodexpertsil

The Bleeding and Clotting Disorders Institute provides integrated, family-oriented care, treatment and education for persons with blood disorders.

ID: 1215366272860508161

linkhttp://www.ilbcdi.org/ calendar_today09-01-2020 20:14:53

123 Tweet

132 Followers

18 Following

Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

Today is World Hemophilia Day! Devoted each year on April 17 to those who have hemophilia- a rare condition in which blood cannot clot properly because it lacks adequate blood-clotting proteins. Help spread the world about #WHD2024 and learn more at ilbcdi.org/patient-info/d…

Today is World Hemophilia Day! Devoted each year on April 17 to those who have hemophilia- a rare condition in which blood cannot clot properly because it lacks adequate blood-clotting proteins.

Help spread the world about #WHD2024 and learn more at ilbcdi.org/patient-info/d…
Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

The May 2024 edition of The BCDI Beacon newsletter is here! To read The BCDI Beacon and sign up to have each edition sent directly to your email, please visit: ilbcdi.org/about-us/newsl…

The May 2024 edition of The BCDI Beacon newsletter is here! To read The BCDI Beacon and sign up to have each edition sent directly to your email, please visit: ilbcdi.org/about-us/newsl…
J Roberts (@jonrob08) 's Twitter Profile Photo

Congrats to Dr. Jessica Mistretta Maria Español and colleagues Bleeding and Clotting Disorders Institute for our recent report explaining unique challenges with using Altuviiio in a 19-month-old with severe #hemophilia A. doi.org/10.1002/pbc.31…

J Roberts (@jonrob08) 's Twitter Profile Photo

Congrats Maria Español for such a thorough and easy-to-understand review of decades of therapeutic advancements in #hemophilia. 👏🏽👏🏽👏🏽🩸🧐The Evolution of Hemophilia Therapeutics: An Illustrated Review - Research and Practice in Thrombosis and Haemostasis rpthjournal.org/article/S2475-…

J Roberts (@jonrob08) 's Twitter Profile Photo

Bleeding and Clotting Disorders Institute Founder and ITP expert giving @WashUHeme Grand Rounds tomorrow! Mike is an international thought leader in ITP, and my longtime mentor, colleague, and friend. Join if you can! Would be great to have virtual option @WashUHeme

Rishabh Singh, MD 🩸 (@docrishabhsingh) 's Twitter Profile Photo

Insightful master class at @WashUHeme grand rounds by Dr. Tarantino, leading expert in #ITP. Covered the history, treatment modalities, and evidence behind various therapeutics from steroids, splenectomy, IVIg, and rituximab to TPO-RAs. Highlight: ‘How I treat’ University of Illinois College of Medicine Peoria

Insightful master class at @WashUHeme grand rounds by Dr. Tarantino, leading expert in #ITP. Covered the history, treatment modalities, and evidence behind various therapeutics from steroids, splenectomy, IVIg, and rituximab to TPO-RAs. Highlight: ‘How I treat’ <a href="/UICOMPeoria/">University of Illinois College of Medicine Peoria</a>
Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

The inaugural BCDI Golf Outing is coming up on August 29 at Mt. Hawley Country Club! You won't want to miss this event, which is a four-person scramble format and will tee-off at 10 a.m. For more information & to register, please visit bcdigolf.cbo.io

The inaugural BCDI Golf Outing is coming up on August 29 at Mt. Hawley Country Club! You won't want to miss this event, which is a four-person scramble format and will tee-off at 10 a.m. 

For more information &amp; to register, please visit bcdigolf.cbo.io
J Roberts (@jonrob08) 's Twitter Profile Photo

Happy to share! Our article received enough citations to be a #TopCitedArticle Haemophilia Journal Great working with a dedicated team. onlinelibrary.wiley.com/doi/full/10.11… Bleeding and Clotting Disorders Institute

Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

✨BCDI Family Day is in full swing!! ✨ Our patients and their families are joining us for a day full of carnival fun, education from our expert staff, and delicious food from local vendors!

✨BCDI Family Day is in full swing!! ✨
Our patients and their families are joining us for a day full of carnival fun, education from our expert staff, and delicious food from local vendors!
J Roberts (@jonrob08) 's Twitter Profile Photo

Patient-reported outcomes are essential to optimize care in #sicklecelldisease Happy to share our pilot study. Much more work is needed! ⁦Bleeding and Clotting Disorders Institute⁩ ashpublications.org/bloodadvances/…

Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

At National Bleeding Disorders Foundation's #BDC2024, Dr. Tarantino earned the distinguished honor of NBDF’s Lifetime Achievement award! Please join us in congratulating Dr. T for this well-deserved award! To learn more about the NBDF Lifetime Achievement Award, visit: ilbcdi.org/news/dr-tarant…

At <a href="/nbd_foundation/">National Bleeding Disorders Foundation</a>'s #BDC2024, Dr. Tarantino earned the distinguished honor of NBDF’s Lifetime Achievement award! Please join us in congratulating Dr. T for this well-deserved award!

To learn more about the NBDF Lifetime Achievement Award, visit: ilbcdi.org/news/dr-tarant…
Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

Today is #WorldThrombosisDay! 1 in 4 people worldwide die of conditions caused by thrombosis, otherwise known as blood clots. BCDI is raising awareness about blood clot risk factors, signs and symptoms. Learn more by visiting ilbcdi.org/patient-info/d…. #TheBloodExperts

Today is #WorldThrombosisDay! 1 in 4 people worldwide die of conditions caused by thrombosis, otherwise known as blood clots. BCDI is raising awareness about blood clot risk factors, signs and symptoms. Learn more by visiting ilbcdi.org/patient-info/d…. #TheBloodExperts
J Roberts (@jonrob08) 's Twitter Profile Photo

Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. I’m thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!

Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. I’m thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!
J Roberts (@jonrob08) 's Twitter Profile Photo

Individuals with multiple bleeding disorders can be challenging to manage. We describe HemA+VWD managed successfully with Emi when F8 prophylaxis alone was insufficient. Emi may treat some #VWD Bleeding and Clotting Disorders Institute Kristin Ansteatt #hemophilia journals.lww.com/bloodcoagulati…

J Roberts (@jonrob08) 's Twitter Profile Photo

ATIII deficiency can significantly increase thrombosis risk, particularly VTE. Recurrent thrombosis in 58.6% of patients (44.8%) despite AC. 35% of patients received ATIII concentrate and 84% of these for prophylaxis. jthjournal.org/article/S1538-…

Bleeding and Clotting Disorders Institute (@bloodexpertsil) 's Twitter Profile Photo

We are excited to showcase the BCDI 2024 Annual Report! This is our longest newsletter yet, with 24 pages devoted strictly to everything surrounding BCDI and our incredible community in 2024. Our 2024 Annual Report can be read in full right here: ilbcdi.org/about-us/newsl…

We are excited to showcase the BCDI 2024 Annual Report! This is our longest newsletter yet, with 24 pages devoted strictly to everything surrounding BCDI and our incredible community in 2024.

Our 2024 Annual Report can be read in full right here: ilbcdi.org/about-us/newsl…
J Roberts (@jonrob08) 's Twitter Profile Photo

Proud to work with esteemed colleagues to improve future research priorities. The patient voice, through lived experience experts, must be incorporated into cutting-edge research programs from start to finish. ashpublications.org/bloodadvances/…

J Roberts (@jonrob08) 's Twitter Profile Photo

Happy to share our study of recombinant VWF real-world treatment patterns and outcomes at 11 centers in the U.S. We demonstrate that routine rVWF prophylaxis reduced bleed rate and healthcare resource utilization compared to prior VWD treatments. #VWD #VWF tandfonline.com/doi/full/10.10…