🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

In her soon-to-be-released book, Normal Broken, @KellyGC411 explores her experience with #grief. Join CPN & Kelly on 10/26 to discuss what it is to feel "normal broken" Registration is free: hubs.li/Q024jJh80 CURE Epilepsy Rare Epilepsy Network The Parmenter Foundation Epilepsy Foundation of America CompassionateFriends

Blogger in Residence Jessica Fein reviews Normal Broken: The Grief Companion for When It’s Time to Heal But You’re Not Sure You Want To by Kelly Cervantes. Read: hubs.li/Q024-Gw90 Hear more from @KellyGC411 IN THE ROOM on 10/26 at 8pm ET. Register: hubs.li/Q024-Fkr0

With the exception of fact that I wish we had some dads too, I am beyond-delighted and moved by these mothers who have shown up to channel their experiences to promote PC and CPN. This has been a 5-year vision, now come to life. Watch us/them!

I am really looking forward to this conversation with author and mom Kelly Cervantes on Thursday. I have loved the book. And we have some great questions already from registrants. Kelly will talk about everything from the supermarket to asteroids.

Recognizing Daniel Le with a 2023 Courageous Provider Award, was a highlight of the week for me. I encourage you to nominate a Courageous Provider for the 2024 award. Nominations due 10/31 at 5pm ET. courageousparentsnetwork.org/pages/the-cour…

We are excited to announce the launch of NeuroJourney, an educational resource for caregivers and clinicians navigating the ever-evolving needs of children with severe neurological impairment (SNI). Cincinnati Children's SevenHillsFoundation Rachel Thee-in-pray-oon, MD, MSCS Courageous Parents Network #NeuroJourney #SNI

I have really appreciated this conversation about the impact of structural historical racism in US on health outcomes. ⁦ podcasts.apple.com/us/podcast/kel…

Parent Champion Lindsey is transforming care for children like Owen and their families in Washington State. Woot!

This is a significant milestone for the integration of Pediatric Palliative Care into the mainstream of hospice and palliative care. Just in time for Thanksgiving, the children have a seat at the grown up table!  #pedpc #hapc

Listen to James Robinson, whose son Nadav was born with a congenital heart defect and lived 5 bright brave years. His book is the opposite of a tragedy. It reminds us of the power of parent love and is for anyone seeking hope and light. More Than We Expected: A Memoir courageousparentsnetwork.org/events/more-th…

CPN is so fortunate to have a parent with Parvathy's depth and breadth of experience as a Champion. She's also a fun, optimistic presence. xo

The families at Mott’s are lucky to have M-COPE. Coping coping coping… can there ever be enough support to help us cope?

What a treat for me!!!!!! Love the Avengers theme here too. Coming to speak to Peds Residents and then give the 2023 Courageous Provider Award to Dr Ken Pituch. Courageous Parents Network

Two fun visits for me. A rich day at Mott Children’s with Drs Pituch and Keefer and a quick visit this morning with Dr Temonti in Detroit. CPN road trip!

via New York Times Opinion An important piece at the beginning of this new (election) year. So glad she wrote it and that this was her family’s experience. It makes the case for families with loved ones of any age who need home care. nytimes.com/2024/01/01/opi…

Clinicians - diid you miss yesterday's NeuroJourney demo session? No worries, we are hosting another session on Thursday 1/11 at 11 am ET Register: bit.ly/3SbKp1G #NeuroJourney #SNI #Learn

Shared NeuroJourney and CPN with 30 1st year med students at UMassMedicalSchool, who are in the SideKicks program and Complex Care special interest group. These kids are their interest. This video, mom Naomi, sure got them thinking! courageousparentsnetwork.org/videos/the-mot…

"Episode 34: Prognosticaution" is up at pedipal.org! Sarah and Dan discuss the dreaded uncertainty of neurologic prognosis with Marina Ma and Lauren Treat. (And in case you missed Episode 33, we'd recommend checking that one out, too. Julie Hauer is in it!)

How is this possible? IT is NUTS!! This texas change would negate the VALUE of the home nurse (if you have one!) .... so a parent can go out (for self, with siblings, for anything). texastribune.org/2024/04/19/tex…

via The New York Times yup!!!!!! nytimes.com/2024/05/27/us/…