Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile
Children's Cardiomyopathy Foundation

@ccfheartkids

The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle.

ID: 104582362

linkhttp://www.childrenscardiomyopathy.org calendar_today13-01-2010 19:35:55

2,2K Tweet

1,1K Followers

662 Following

Global Heart Hub (@globalhearthub) 's Twitter Profile Photo

Ruth Biller’s daughter Judith died of sudden cardiac death at the age of 14. A year later, she learned it was a cardiomyopathy. When her niece survived the cardiac arrest six years before the death of her daughter, Judith, she believes they should have thought about

Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

The Valor Study is testing an investigational study medicine to see if it may help improve heart failure in people under the age of 18. For more information please visit: loom.ly/PPOr3Oo #Ad

The Valor Study is testing an investigational study medicine to see if it may help improve heart failure in people under the age of 18. For more information please visit: loom.ly/PPOr3Oo
#Ad
Global Heart Hub (@globalhearthub) 's Twitter Profile Photo

🚨 Be alert! Could it be more than you think? Cardiomyopathy can mimic other conditions. Sometimes, it doesn’t look like anything until it’s too late. If you or someone in your family has experienced: ⚠️ Heart failure ⚠️ Irregular heartbeat (arrhythmia) ⚠️ Chest pain ⚠️

Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Tee off for a great cause! CCF's popular golf event. We have a top-notch all-day event planned with digital scoring, great food, golf contests, and a lively evening program. Register today: loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub

Tee off for a great cause! CCF's popular golf event. We have a top-notch all-day event planned with digital scoring, great food, golf contests, and a lively evening program. Register today: loom.ly/cYW5Hb8
#GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

We’re partnering with Global Heart Hub, an alliance of heart patient organizations, on the global awareness campaign, “Think Cardiomyopathy!” Watch this power video on the subtle signs of cardiomyopathy. #ThinkCardiomyopathy #CardiomyopathyAwareness #ThinkCM

Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Ruth Biller’s daughter Judith died of sudden cardiac death at the age of 14. A year later, she learned it was a cardiomyopathy. #ThinkCardiomyopathy For more information, visit: loom.ly/Hi-1zNU

Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Gabe loves playing Fortnite and making new friends. Diagnosed with hypertrophic cardiomyopathy (HCM) Gabe received his new heart on May 19, 2024 after a two year wait. Help us continue supporting kids like Gabe. Make a gift today: loom.ly/FYnnTac #CCFHeartKids

Gabe loves playing Fortnite and making new friends. Diagnosed with hypertrophic cardiomyopathy (HCM) Gabe received his new heart on May 19, 2024 after a two year wait. 
Help us continue supporting kids like Gabe. Make a gift today: loom.ly/FYnnTac
#CCFHeartKids
Global Heart Hub (@globalhearthub) 's Twitter Profile Photo

Cardiomyopathy isn’t always visible, but it often runs in families and can lead to serious outcomes like heart failure or sudden cardiac death if not detected early. Together, patients and healthcare professionals can spot the signs of cardiomyopathy earlier; even when symptoms

Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Deadline for sponsors to register for Golf for a Cure is almost here! Foursome spots are filling up. Sign up before the July 5 deadline. loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub

Deadline for sponsors to register for Golf for a Cure is almost here! Foursome spots are filling up. Sign up before the July 5 deadline. loom.ly/cYW5Hb8

#GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

The deadline for sponsorship at our Golf for a Cure is July 5 to play at the prestigious Ridgewood Country Club. Sign up to be a sponsor while there's still time! loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub

The deadline for sponsorship at our Golf for a Cure is July 5 to play at the prestigious Ridgewood Country Club. Sign up to be a sponsor while there's still time! loom.ly/cYW5Hb8

#GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Saoirse has a new heart. A brave girl facing severe hypertrophic cardiomyopathy and in heart failure, she received a life-saving heart transplant at Mayo Clinic. Now the family is embracing each day of recovery and counting down the days until they can return home to New Jersey.

Saoirse has a new heart. A brave girl facing severe hypertrophic cardiomyopathy and in heart failure, she received a life-saving heart transplant at <a href="/MayoClinic/">Mayo Clinic</a>. Now the family is embracing each day of recovery and counting down the days until they can return home to New Jersey.
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Join us August 1 at noon for an expert-led discussion on hypertrophic cardiomyopathy with Drs. Paul F. Kantor and Jon Detterich of Children's Hospital LA. Register today: loom.ly/ifXs9DM #Cardiomyopathy #HCM #CHLA

Join us August 1 at noon for an expert-led discussion on hypertrophic cardiomyopathy with Drs. Paul F. Kantor and Jon Detterich of <a href="/ChildrensLA/">Children's Hospital LA</a>. Register today: loom.ly/ifXs9DM

#Cardiomyopathy #HCM #CHLA
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Don't miss this expert-led discussion on hypertrophic cardiomyopathy with Drs. Paul F. Kantor and Jon Detterich of Children's Hospital LA. Register today: loom.ly/ifXs9DM #Cardiomyopathy #HCM #CHLA

Don't miss this expert-led discussion on hypertrophic cardiomyopathy with Drs. Paul F. Kantor and Jon Detterich of <a href="/ChildrensLA/">Children's Hospital LA</a>. Register today: loom.ly/ifXs9DM

#Cardiomyopathy #HCM #CHLA
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

While our sign up for the golfing portion of our Golf for a Cure has passed, you can still join us for cocktails and dinner at the lovely Ridgewood Country Club. Register today! loom.ly/cYW5Hb8 #GolfForACure #RidgewoodNJ #RidgewoodCountryClub

While our sign up for the golfing portion of our Golf for a Cure has passed, you can still join us for cocktails and dinner at the lovely Ridgewood Country Club. Register today! loom.ly/cYW5Hb8

#GolfForACure #RidgewoodNJ #RidgewoodCountryClub
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Thank you to our Golf for a Cure sponsors for helping drive change for kids with pediatric cardiomyopathy! Your support gives families hope and brings us closer to better futures for heart kids. #MissionDriven #CCFGolfForACure #HeartHeroes

Thank you to our Golf for a Cure sponsors for helping drive change for kids with pediatric cardiomyopathy! Your support gives families hope and brings us closer to better futures for heart kids.

#MissionDriven #CCFGolfForACure #HeartHeroes
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Golf for A Cure is tomorrow! We're teeing off to support heart kids, and we can't wait to see everyone on the course. #MissionDriven #CCFGolfForACure #HeartHeroes

Golf for A Cure is tomorrow!  We're teeing off to support heart kids, and we can't wait to see everyone on the course. 

#MissionDriven #CCFGolfForACure #HeartHeroes
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

What’s new in hypertrophic cardiomyopathy? Join Dr. Paul F. Kantor and Dr. Jon Detterich—renowned leaders in pediatric cardiology—for a live session on August 1 at noon (ET). Reserve your spot: loom.ly/ifXs9DM #Cardiomyopathy #HCM #CHLA

What’s new in hypertrophic cardiomyopathy?
Join Dr. Paul F. Kantor and Dr. Jon Detterich—renowned leaders in pediatric cardiology—for a live session on August 1 at noon (ET). Reserve your spot: loom.ly/ifXs9DM
#Cardiomyopathy #HCM #CHLA
Children's Cardiomyopathy Foundation (@ccfheartkids) 's Twitter Profile Photo

Meet Bennett! Bennett is a makeup enthusiast and, of course, all things pink. Bennett was diagnosed w/ both hypertrophic cardiomyopathy and dilated cardiomyopathy caused by myocarditis. Help us continue supporting kids like Bennett. loom.ly/FYnnTac #HeartKidsWhoInspire

Meet Bennett! Bennett is a makeup enthusiast and, of course, all things pink. Bennett was diagnosed w/ both hypertrophic cardiomyopathy and dilated cardiomyopathy caused by myocarditis. Help us continue supporting kids like Bennett. loom.ly/FYnnTac
#HeartKidsWhoInspire