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Amazing kids starting or going back to school and not letting Congenital Diaphragmatic Hernia hold them back. Together, we can make a difference in the lives of those impacted by this condition. #CDHUK #charity #awareness #support #lookatmenow

Great session on a precision medicine approach for neonates with CDH. Neonatal Surgery BAPM #bapm2024 #Surgicalneonate #neonatalsurgery

Hearing from world expert Neil Patel about haemodynamics management of babies with CDH. HUG RHC NICU CDH UK

Neil Patel Different haemodynamics phenotypes in #CDH CDH UK HUG RHC NICU

Our data on the Amniotic Fluid are finally available on the Human Cell Atlas just in time for the #hca2024gm Come chat about it at the coffee break!

We had a great catch up with researchers Mattia FM Gerli, PhD last week! Astounding and groundbreaking work from this brilliant team including Paolo De Coppi excited and honoured to be supporting their work 🔬thanks for having us at your amazing facility!

Are you a female with #CDH who has experienced pregnancy? If so, you may be interested in completing this survey to help understand and potentially improve experiences outcomes 👇🏿simply scan the code to access #CDH #pregnancy #research #improveoutcomes #patientinput #proms

We are very grateful to CDH UK and all families with CDH for supporting our work UCL Great Ormond Street Institute of Child Health Great Ormond Street Hospital for Children UCL Div of Surgery Developmental Biology & Cancer. Great to see growing interest on organoids from amniotic fluid Mattia FM Gerli, PhD Giuseppe Calà

We received the following message from a frustrated parent…she has given us permission to post this (anonymously). We have removed the terminology as it may be identifiable…… but we hope you get the gist…. ‘Hi I hope you’re well. I just wanted to get your professional

BREAKING NEWS The 2024 #NobelPrize in Physiology or Medicine has been awarded to Victor Ambros and Gary Ruvkun for the discovery of microRNA and its role in post-transcriptional gene regulation.

#CDH carries a high mortality rate. One that we have and are still helping to improve, but it is still globally around 40%. We support many families who have experienced baby loss. Join us over the next 7 days as we support #BLAW 2024. #BabyLossAwarenessWeek2024 #BabyLoss

One of the main concerns in parents with a baby with #CDH is feeding. We produced our booklet ‘CDH and Feeding’ after months of consultation and based upon our published ncbi.nlm.nih.gov/pmc/articles/P… We are constantly improving our information and so we welcome feedback on our latest

Help create a snowstorm of donations this festive period by sponsoring a snowflake ❄️ visufund.com/snowflake-appe… #cdh #cdhuk #snowflakeappeal

H a P p Y B i R t H d A y Finley! 🥳 2 today 🩷🩵 #CDH #happybirthday #MilestoneMoments #awareness #joininjune4cdh #lookatmenow #LookAtMeNowChallenge #cdhuk

Today is #rarediseaseday

Happy Birthday Noah! 🎉🎈 Wishing you a fantastic day filled with love, adventure, and lots of cake! Here's to another amazing year ahead. Enjoy your special day! 🥳🎁 #HappyBirthday #cdh #Celebrations #LookAtMeNow #cdh #cdhuk #joininjune4cdh

Thank you EUROPEAN PAEDIATRIC SURGEONS’ ASSOCIATION for the opportunity to raise more awareness and visibility for patients. We were truly honoured to speak about working together effectively to improve care #cdh #eupsa #cdhuk #PatientCare #patientoutcomes #pediatricsurgery

Today is the start of JOIN IN JUNE 4 CDH our official annual awareness month for over a decade. What will you do to action awareness? Please follow our social media accounts to share daily content and why not take part in a fundraising activity to support our work! Please

#joininjune4cdh Help us to solve the puzzle of CDH and sponsor a piece of the jigsaw below 👇🏽 #cdh #cdhawareness #cdhuk visufund.com/join-in-june-4…