What makes the IPIC congress unique? IPIC's uniqueness lies in its clinically oriented programme, developed with input from doctors, nurses and patients. 📆 Mark your calendars for IPIC2023's early bird registration at the end of January! #IPIC2023 ipic2023.com

📢We are pleased to announce #WorldPIWeek 2023: Turning real-world data into knowledge for better #PID care. Watch our campaign teaser video featuring Ruediger.Krech of World Health Organization (WHO) & Nizar Mahlaoui M.D., M.P.H., Ph.D. of IPOPI #primaryimmunodeficiency! 👇 bit.ly/3RIEgIw

We're celebrating this ❤️valentines day❤️ by adding subtitles in 4 new languages to our PID video series! The new languages are Danish, Dutch, Italian and Romanian. We thank IDF Denmark, SAStweet, ARPID Romania and AIP O.d.V. for their hard work.🌼 youtu.be/WiHermBr1hE

As the world marks #RareDiseaseDay, we are excited to launch new features for 4ID, the health app developed for patients with immunodeficiency. 🍊 Health parameters 👩‍⚕️ Immunodeficiency metrics 🗓️ Appointments & absences 🧭 Better navigation 🔔 Reminders 4ID.ipopi.org

Join us in celebrating #WorldPIWeek and help us spread awareness of #PID! 🇺🇦Translations in Ukrainian are now available! (Check the link for 10 other languages) bit.ly/3ImD9da !

Did you know that #IPIC2023 tickets are available at an Early Bird Rate? This event brings together top experts in the field to dive into clinical updates and best practices for managing #primaryimmunodeficiencies. 🧬 Secure your Early Bird ticket now 🎫 bit.ly/42CmBac

Mark your calendars! On 📅 June 7th at 14.30, join us for the IPOPI #PIDForum on the complexities of the EU pharmaceutical legislation. We look forward to a meaningful discussion with MEPs Billy Kelleher MEP and Cyrus Engerer. DM for more information. 🖊️

🩸 Happy World Blood and Plasma Donor Day! The theme "Give Blood, Give Plasma, Share Life, Share Often" emphasises the significance of both blood and plasma collection. 👈 #DonatePlasmaSaveLives #WorldBloodDonorDay

Happy World #Blood and #Plasma Donor Day! #DonatePlasmaSaveLives

New CEREDIH article! Impact of graft function on #healthstatus & #HealthQualityOfLife in 112 very long-term #survivors who received an #HSCT for #PID #IEI pubmed.ncbi.nlm.nih.gov/37321401/ #PrimaryImmunoDeficiency #RareDiseases SCETIDE ESID MaRIH Assistance Publique – Hôpitaux de Paris (AP-HP) Hôpital Necker AP-HP

Well done! Thanks for the opportunity to raise awareness on #Data in #PID

We need to fix this, not only for the EU, but for the world.

Do you know why we celebrate #INSD on 28 June? To mark the birthday of Dr Robert Guthrie, who launched the field of neonatal screening & dedicated his life to underlining that #NeonatalScreeningMatters Follow us for more INSD content. 👉bit.ly/43xO3q2

🇨🇦 SCID Newborn Screening Milestones! 🇺🇸 Watch IPOPI's Whitney Ayoub Goulstone discuss SCID screening progress in Canada & The US. On #InternationalNeonatalScreeningDay, let's applaud these milestones and continue expanding SCID screening efforts. #SCIDScreeningMatters

We look forward to celebrating #InternationalNeonatalScreeningDay tomorrow at the event "What role for neonatal screening in future EU rare diseases policy?" by Screen4Rare. As proud Screen4Rare partners, we're excited to be part of this event. 👉 bit.ly/S4R-INSD

Many patients need immunoglobulin to stay alive

👶 It's #InternationalNeonatalScreeningDay! In the final video in our SCID series, IPOPI's Johan Prevot highlights the critical role of early screening for this life-threatening condition. SCID NBS Saves Lives! #SCIDScreeningMatters #NewbornScreeningMatters

Last chance to register! 👇 We are starting this afternoon at 15h CEST.

Stay tuned!

We're thrilled that #IPIC2023 is taking place in Rotterdam in The Netherlands. The city is known for its riverside setting, lively cultural life, maritime heritage and modern architecture. 🏙️ ⏳ Benefit from IPIC early bird rates until July 31. bit.ly/ipic-early-bird