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Tremendous news from Alberta as children aged six to 11 can now get access to the cystic fibrosis medicine Trikafta! Thank you Jason Kenney 🇨🇦🇺🇦🇮🇱 and Jason Copping for your leadership in making this announcement. An honour to be a part of your official statement. alberta.ca/release.cfm?xI…

An honour to give Tom Mihalik of Toronto's legendary Tom's Place a copy of Beating The Odds this week. From Get Up, Dress Up and Show Up to Never Better, Tom embodies many of the lessons in the book and is a genuine inspiration to everyone who meets him. Thank you, Tom!

Tremendous news! A huge thank you to CF Canada and the thousands of advocates who joined in this fight. Together we saved and transformed lives. #CFCantWait

Tremendous news! We share your excitement for future generations. Thankful for everyone who joined the long fight to make this day possible.

Is this CF or CFTR-RD? Do CFTR modulators work in COPD?How do I diagnose and manage CF vs CFTR-RD?Don’t miss off the press CFTR-RD guidelines in Pro/Con debate at NACFC 2022 Thursday in Philly with implications for pulmonologist managing bronchiectasis?Cystic Fibrosis Care Canadian Cystic Fibrosis Treatment Society

We are hearing reports that the board chair of the PMPRB_CEPMB has resigned, one day after the draft guidelines consultation closed. This instability at a regulator is very concerning Jean-Yves Duclos. It's time to halt implementation and fix the broken leadership at the #PMPRB.

Macdonald-Laurier Institute Best Medicines Coalition @PMPRB_Watch PMPRB_CEPMB André Picard National Newswatch @CDavidNaylor

Here's a terrific interview Chris MacLeod gave to Genesis TV 360 talking about Beating The Odds and the important work the Canadian Cystic Fibrosis Treatment Society did in helping get patients access to life saving medicines. vimeo.com/783794064

If you haven’t bought it yet, I highly recommend Beating The Odds Beating the odds! Here is another amazing interview by author and real life hero Chris MacLeod #inspiration #inspired #goodreads

Congratulations Hunter! Well-deserved recognition for your outstanding advocacy.

The Trikafta access situation in ON is embarrassing. Everybody in ON with CF should have free, unfettered access to Trikafta like in many other provinces. There are 2 approval criteria appropriate to apply to it’s funding; 1. You have CF 2. Your doc prescribed it to you That’s it

9 years ago Canadian Cystic Fibrosis Treatment Society was created to help CF patients get access to live-saving medicines. From our court challenges to advocacy campaigns, we helped get access. Today's rare disease strategy announcement is the next step. canada.ca/en/health-cana…

Chris began fighting for access 12 years ago. It's been a long journey he documents in Lesson 2, Be the CEO of Your Own Health, in Beating The Odds. Thank you to the thousands who joined on the journey. Together we've made a difference.

Six years of advocating for cystic fibrosis patients on Twitter! Thank you to everyone who has supported us in our fight. Together we've made a difference. #CFCantWait #MyTwitterAnniversary

It's our Twitter Anniversary! Thank you to everyone who has helped make Beating The Odds such a tremendous success. We're inspired by all the messages we've received on how the book has helped people to lead more full and resilient lives. 🙏 #MyTwitterAnniversary #grateful

In the spirit of Cystic Fibrosis Awareness Month, we’re spotlighting our Advocis Golden Triangle chapter, featured in our most recent edition of FORUM Magazine for their $3,000 donation of proceeds from the chapter’s 2022 Charity Golf Tournament. Way to Advocis GT!

Do you remember when you joined X? We do! We have shifted from a public to a private advocacy campaign, but we're still here helping cystic fibrosis patients and their families get access to live-saving medicines. Access delayed is access denied! #MyXAnniversary