
Canadian Cystic Fibrosis Treatment Society
@cfadvocacynow
Access to CF medication is a moral, ethical & medical imperative. With your help, we're going to make it a legal requirement. Please join our fight. #CFcantwait
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https://cfadvocacynow.com/ 06-04-2017 15:29:52
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Tremendous news from Alberta as children aged six to 11 can now get access to the cystic fibrosis medicine Trikafta! Thank you Jason Kenney 🇨🇦🇺🇦🇮🇱 and Jason Copping for your leadership in making this announcement. An honour to be a part of your official statement. alberta.ca/release.cfm?xI…

An honour to give Tom Mihalik of Toronto's legendary Tom's Place a copy of Beating The Odds this week. From Get Up, Dress Up and Show Up to Never Better, Tom embodies many of the lessons in the book and is a genuine inspiration to everyone who meets him. Thank you, Tom!




Is this CF or CFTR-RD? Do CFTR modulators work in COPD?How do I diagnose and manage CF vs CFTR-RD?Don’t miss off the press CFTR-RD guidelines in Pro/Con debate at NACFC 2022 Thursday in Philly with implications for pulmonologist managing bronchiectasis?Cystic Fibrosis Care Canadian Cystic Fibrosis Treatment Society

We are hearing reports that the board chair of the PMPRB_CEPMB has resigned, one day after the draft guidelines consultation closed. This instability at a regulator is very concerning Jean-Yves Duclos. It's time to halt implementation and fix the broken leadership at the #PMPRB.

Here's a terrific interview Chris MacLeod gave to Genesis TV 360 talking about Beating The Odds and the important work the Canadian Cystic Fibrosis Treatment Society did in helping get patients access to life saving medicines. vimeo.com/783794064

If you haven’t bought it yet, I highly recommend Beating The Odds Beating the odds! Here is another amazing interview by author and real life hero Chris MacLeod #inspiration #inspired #goodreads







