
CF Warriors
@cfwarriorsuk
CF Warriors is a charity focussed on promoting sport and exercise to help people with cystic fibrosis to be as fit and healthy as possible.
ID: 2570784864
https://www.cfwarriors.org.uk 16-06-2014 11:48:47
1,1K Tweet
796 Followers
398 Following


We are advocating for #CysticFibrosis patients EVERYWHERE, including the UK, where Vertex Pharmaceuticals’s prices are causing anxiety for many CF families. Our petition has surged and we will ensure that Vertex hears ALL your voices, loud & clear. Please sign: actionnetwork.org/forms/cf-drugs…


Josh will be on BBC Wales News tonight talking about the situation for CF families across the UK, following NICE's draft guidance published last week about the cost effectiveness of Kaftrio, Orkambi & Symkevi. Great to get some media attention in Wales on this issue! Vertex Pharmaceuticals


Pleased to join Mike Tipton in this important launch video for The Physiological Society launch of our new report Great _laurenclayton_ feature - showcasing her CF Warriors funded testing looking at responses in LTCs (#cysticfibrosis) who may be at increased risk in the heat

Fantastic to see _laurenclayton_ featured in this video, helping to raise awareness for the work that our charity is doing to improve the lives of those with #cysticfibrosis. This is such an important issue facing so many vulnerable groups around the world.🌍


📣Attention all CF Warriors📣 Please get in touch with the team at University of Portsmouth and help our research study on exercise in heat. Thanks in advance for your support! #CFWarriors #cysticfibrosis


There's still time to get the last few tickets for next week's Christmas Concert at St Donats Castle for a night of food, fizz & entertainment with Emily Langford & friends, all in aid of CF Warriors! Contact Emily for tickets! 🥂🎄 📧 [email protected] #CFWarriors



