We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿

@champ1gene

We are a worldwide patient support group for families like ours affected by the CHAMP1 gene mutation.

ID: 809129092872282112

linkhttp://www.champ1gene.com calendar_today14-12-2016 20:13:03

1,1K Tweet

581 Followers

1,1K Following

Gate.io (@gate_io) 's Twitter Profile Photo
Gate.io
@gate_io

5 hours ago

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We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

This boy right here is the only person in Scotland 🏴󠁧󠁒󠁳󠁣󠁴󠁿 diagnosed with #CHAMP1 gene mutation. Today is #CHAMP1AwarenessDay If you're #Scottish or even if you're not please RT to show us you've seen this πŸ’œ #RareDisease #wednesdaythought #AutismAwareness #AAC #DisabilityInclusion

This boy right here is the only person in Scotland 🏴󠁧󠁒󠁳󠁣󠁴󠁿 diagnosed with #CHAMP1 gene mutation. Today is #CHAMP1AwarenessDay If you're #Scottish or even if you're not please RT to show us you've seen this πŸ’œ #RareDisease #wednesdaythought #AutismAwareness #AAC #DisabilityInclusion
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

#CHAMP1AwarenessDay πŸ’œπŸ’œ

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

A huge thank you to the Allan Church in Bannockburn for lighting up purple for my boy on #CHAMP1AwarenessDay #CaldotheChamp1on #RareDisease #AutismAwareness #CHAMP1 πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

A huge thank you to the Allan Church in Bannockburn for lighting up purple for my boy on #CHAMP1AwarenessDay #CaldotheChamp1on #RareDisease #AutismAwareness #CHAMP1 πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

It was very fitting and by luck that Stirling Bridge was lit up in purple on #CHAMP1AwarenessDay πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

It was very fitting and by luck that Stirling Bridge was lit up in purple on #CHAMP1AwarenessDay πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

This made my day. We were in B&M Stores earlier with the boys and an old couple were taking up the full aisle and walking really slowly. Calum decided to copy the mans walk. His drama classes in school are certainly helping him get into characterπŸ˜‚ #AutismAwareness New Struan School

This made my day. We were in <a href="/bmstores/">B&M Stores</a> earlier with the boys and an old couple were taking up the full aisle and walking really slowly. Calum decided to copy the mans walk. His drama classes in school are certainly helping him get into characterπŸ˜‚ #AutismAwareness <a href="/StruanSchool/">New Struan School</a>
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

My boy loving life at the farm πŸ₯° #CaldotheChamp1on #RareDisease #CHAMP1 #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

#weraisechamp1ons #RareDisease #CaldotheChamp1on #CHAMP1 #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

Celebrating my boy and his fellow CHAMP1ONS today on #rarechromoday πŸ’œπŸ¦“ Genetic Alliance UK Unique RARE Revolution Magazine #CHAMP1 #RareDisease #AutismAwareness CHAMP1

Celebrating my boy and his fellow CHAMP1ONS today on #rarechromoday πŸ’œπŸ¦“ <a href="/GeneticAll_UK/">Genetic Alliance UK</a> <a href="/Unique_charity/">Unique</a> <a href="/RareRevolutionM/">RARE Revolution Magazine</a> #CHAMP1 #RareDisease #AutismAwareness <a href="/CHAMP1UK/">CHAMP1</a>
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

C'mon Scotland National Team #euro2024 #autismawareness #RareDisease #CHAMP1

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

Scott is co-founder of CHAMP1 He raising funds for the UK families to participate in research and build better futures for families living with CHAMP1. If you were able to support no matter the amount the link is below. give.champ1.uk/fundraising/sc… Thank you #weraisechamp1ons

Scott is co-founder of <a href="/CHAMP1UK/">CHAMP1</a> He raising funds for the UK families to participate in research and build better futures for families living with CHAMP1. If you were able to support no matter the amount the link is below. give.champ1.uk/fundraising/sc… Thank you #weraisechamp1ons
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

Well we have another Scottish CHAMP family. I've just spoken to the mum today. I can't put into words how happy I am πŸ₯° #scottishchamp1ons 🏴󠁧󠁒󠁳󠁣󠁴󠁿 #RareDisease #CHAMP1 #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

I love you both with all my heart but get out my house πŸ˜‚ P7 for Jacky Boy and Caldo is going back to his favourite school New Struan School getting ready for transition into adulthood. Go smash it my boys 🩡🩡 #BackToSchool2024 #CHAMP1 #AutismAwareness #RareDisease

I love you both with all my heart but get out my house πŸ˜‚ P7 for Jacky Boy and Caldo is going back to his favourite school <a href="/StruanSchool/">New Struan School</a> getting ready for transition into adulthood. Go smash it my boys 🩡🩡 #BackToSchool2024 #CHAMP1 #AutismAwareness #RareDisease
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

a year ago

#weraisechamp1ons #RareDisease #CaldotheChamp1on #CHAMP1 #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

8 months ago

Happiest of birthdays to the boy who made me Mama! 18 years of loving you. Happy 18th birthday to our #CHAMP1ON Calum πŸŽ‰πŸ’œ #HappyBirthday #CHAMP1 #RareDisease #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

7 months ago

Got to love John MacKay on STV News πŸ˜‚ keeping it real in this freezing cold Scottish weather πŸ₯Ά Sean Batty you've missed a trick πŸ˜‚

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

5 months ago

So incredibly proud of you my boy. End of one chapter and onto your next one. We will really miss New Struan it is just such an incredible school #CHAMP1 #AutismAwareness #RareDisease #CaldotheChamp1on

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

5 months ago

It's #RareDiseaseDay2025 My poem was published in the Genetic Alliance UK rare disease anthology. This is all for you my boy! My Calum the CHAMP1ON πŸ’œ #weraisechamp1ons #RareDisease #CHAMP1 #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

4 months ago

Two weeks ago this boy showed us the true meaning of a champ. He had an abscess next to his brain and had emergency surgery. Big thank you to Neurosciences, RIE for taking such good care of us. Hopefully transferring back to our own health board today 🀞 #RareDisease #AutismAwareness

We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿 (@champ1gene) 's Twitter Profile Photo
We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿
@champ1gene

4 months ago

If you want to do something positive today here it is. Please like and share to tell the world all about my boy and his rare community of #CHAMP1ONS #CHAMP1AwarenessDay #raredisease #CHAMP1 #weraisechamp1ons #autismawareness Thank you πŸ’œπŸ’œπŸ’œπŸ’œ

Simons Searchlight (@s_searchlight) 's Twitter Profile Photo
Simons Searchlight
@s_searchlight

4 months ago

Today we celebrate #CHAMP1AwarenessDay πŸŽ‰ with CHAMP1 Research Foundation and We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿. We have 64 participants with CHAMP1-related syndrome in #SimonsSearchlight. Find resources πŸ“š, data πŸ“Š, and more on the #CHAMP1 website: bit.ly/SimonsSearchli… #CareForRare #RareDiseaseResearch

Today we celebrate #CHAMP1AwarenessDay πŸŽ‰ with <a href="/CHAMP1Research/">CHAMP1 Research Foundation</a> and <a href="/CHAMP1Gene/">We Raise β„‚β„π”Έπ•„β„™πŸ™ONS 🏴󠁧󠁒󠁳󠁣󠁴󠁿</a>. We have 64 participants with CHAMP1-related syndrome in #SimonsSearchlight. Find resources πŸ“š, data πŸ“Š, and more on the #CHAMP1 website: bit.ly/SimonsSearchli… #CareForRare #RareDiseaseResearch