This is important work. We should add a field to the CPRN forms about the *communication* of the etiology to the family and drive that number toward 100%! And we should also empower parents to ask!

Our #60MileChallengeforCPResearch kicked off today and people are already racking up miles to raise funds to support #cerebralpalsy research. You can still join in the fun on Facebook: facebook.com/cpresearch/pos… or on our challenge website: cprn.salsalabs.org/60MileChalleng…. Make May count!

Very excited to be in Chicago for the return of our in-person #CerebralPalsy #ResearchNetwork annual investigators' meeting with so many sites and community members represented. See you soon Bhooma Aravamuthan MD DPhil, @cppositive, M. Wade Shrader, MD, and numerous AACPDM research focused clinicians.

Hey Regal why make theaters like this? Only accessible seating in the very front - where no one wants to sit and where it is a terrible experience for wheelchair users who are trying to look up at a large screen right in front of their face! #Disability #DisabilityRights

So excited to be partnering with Steve Wisniewski, PhD, from Pitt's Epidemiology Data Center to be our new Data Coordinating Center PI! Pitt will host our two #cerebralpalsy registries and be our partner in research for numerous studies under development. cprn.org/cprn-partners-…

Very excited to be at the #RemarkableTechSummit to see how the CP Research Network can help #AssistiveTech entrepreneurs bring advances to market to help the #cerebralpalsy community. Thanks to @RemarkableTech!

Gina Kline is powerfully summarizing the importance and opportunities to innovate for the disability economy at the #RemarkableTechSummit. Thanks @RemarkableTech for putting together such a meaningful program about #AssistiveTech that will impact #cerebralpalsy outcomes.

Happy to be sharing more #CPStories with today's glimpse into the motivations and impact of Bhooma Aravamuthan MD DPhil who is truly a bright light, a rising star and an incredible leader in the care of people with #CerebralPalsy. cprn.org/cp-stories-ped…

As always, we expect this webinar to be clear, meaningful and well thought out. Join@Dr Bhooma to learn more about more about Adults with intellectual and developmental disabilities!

We share in the excitement with Cerebral Palsy Alliance Research Foundation where our priorities are aligned and are skills are very complementary. We look for to doing great things together for the #CerebralPalsy community -- people living with CP, caregivers and families and the clinician researchers!

We are excited to share the details and benefits of our new partnership for both the community members and the research community for #cerebralpalsy. 1+1=(a lot more than 2)!

Do you want to be at the center of the fastest growing registry for #cerebralpalsy research? Do you have a PhD in clinical epidemiology, rehabilitation science, or several years of clinical research with a masters level degree? Apply: linkedin.com/jobs/view/3588…

Thanks for all your hospitality and generosity!

So true!

Thrilled to have hired Joyce Trost, PT, PhD as our Director of Registries! Her track record Gillette Children's as their Director of Research will serve our growth and research needs. cprn.org/dr-joyce-trost…

Great work! If this can create improved practices uniformly, it will greatly benefit what we can do for the CP community and "protocolize" care more.

In our latest partner spotlight we caught up with Paul Gross, President, Chief Executive Officer and Co-Founder of the Cerebral Palsy Research Network (Cerebral Palsy Research Network)! Learn more about the great work being done at CPRN and our partnership in the blog below! nchpadconnect.org/2024/04/05/par…

We are extending our work into the NICU with early detection and now a registry for hypoxic schemic encephalopathy (HIE). Join us for a webinar with Hope for HIE ☀️ and Principla Investigator Danielle Guez Barber. Register at cprn.org/mycp-webinar-s….

I am excited to be presenting at the University of Michigan's Learning Health System Collaboratory. Tune in if you want see what 10 years can get you! docs.google.com/forms/d/e/1FAI…