Cushing's Support & Research Foundation (@csrfnet) 's Twitter Profile
Cushing's Support & Research Foundation

@csrfnet

Supporting patients in all ways; direct peer contact, trustworthy science-supported resources, community events, access to patient voice research opportunities.

ID: 2836609221

linkhttp://csrf.net calendar_today18-10-2014 23:32:06

104 Tweet

372 Followers

37 Following

Cushing's Support & Research Foundation (@csrfnet) 's Twitter Profile Photo

We are relieved and encouraged when we see efforts like this to educate and connect people to how Cushing's affects everything and everyone in our lives far beyond the clinical data captured in the office setting. Medical Stories medicalstories.tv/title/cushings…

Cushing's Support & Research Foundation (@csrfnet) 's Twitter Profile Photo

We feel seen! Sharon Terry of Genetic Alliance goes hard for rare patients everywhere and makes the ENTIRE case for registries led by patient organizations. forbes.com/sites/ashoka/2…