I'm tackling the biggest challenge of my life: trekking Scafell Pike at night to raise funds to Cure Usher Syndrome! ⛰️ Join me on my "Race to See the Rise"! Let's smash this fundraising goal! 💪 justgiving.com/page/jo-milne-…

Today we publish More than you can imagine: improving the lives of people with genetic, rare and undiagnosed conditions. We make a case for the renewal of the UK Rare Diseases Framework and starts the discussion about what it may look like. ow.ly/tA7C50V8ech

Last month we supported and celebrated Retinitis Pigmentosa Awareness month. Do you know what RP is? It’s a progressive condition that causes vision loss. #ushersyndrome #ushersyndromeawareness #retinitispigmentosa

Any takers for our Birmingham half ???

Pls help me spread word tomorrow (tue) 8pm on ITV I'll be talking you through how to check if you can boost your State Pension by possibly £10,000s. There is an urgent deadline coming after which many lose the opportunity. This is a must watch for anyone age 40 to 73.

Brilliant !!! Thank you so much LatimerHinks 🏆🩷

WORLD • HEARING • DAY Please share your stories in the comments #worldhearingday #ushersyndrome

We had great fun today but the cause we’re supporting is a very real challenge for families. Please take a moment to learn more of Cure Usher and support Jo Milne and this amazing charity cureushersyndrome.com

Who would like to support us find a cure for usher syndrome? We have limited spaces left for the Birmingham half? cureushersyndrome.com

The amazing Georgia running Brighton Marathon Weekend for Cure Usher You’re amazing and we are cheering you on all the way. Please read and sponsor if you can. We are working toward me a cure for Cole and Sadie and so many more 🙏🏼🏆

What a legend. Georgia is running a MARATHON for Cure Usher for her friends beautiful children who have usher syndrome. What a difference she is making and she’s nearly reached her target. I’ve sponsored. Please do if you can. Total respect. We support you every step 🏆

Pua Geordie Hydration! 💦☝️ #ToonToTheTop #NUFC #Geordies #WATA #stjamespark wata.co.uk

FUNDRAISING APPEAL: Help Save a Deaf Child's Sight! #RaceToSeeTheRise I’ll take on the biggest challenge of my life by trekking #Scafell Pike through the night in total darkness to reach the summit Together, we can Cure Usher Let’s come together Let’s rise justgiving.com/page/jo-milne-…

So very early Monday morning the Cure Usher Ball’s DJ starts his five day walk across the Trans Pennine Trail . Then he’ll join me to wing walk high above Manchester Sunday 27th July. All to raise funds for Cure Usher . Can you help ? justgiving.com/page/michael-g…

🏃‍♀️🏃‍♀️ CAN YOU HELP 🏃‍♀️🏃‍♀️ We have limited spaces available but would love to fill them up 🙏🏼✨ All donations go directly towards research for a treatment for Usher syndrome #ushersyndrome

Great Run We have a few places left for Cure Usher if anyone would like to run it and fundraise for us at the same time 🩷

Do you know what Usher syndrome is ? It is a rare inherited genetic condition. It’s the leading cause of combined deafness and blindness. Dual sensory loss. There are currently 3 types of Usher syndrome. Type 1, 2 and 3. Find out more at cureushersyndrome.com