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📢🗣️Reminder for children and young adults (14-25 years) with MPS and parents/caregivers to children (0-18 years) with MPS in Canada: we would like to hear from you! Please consider filling out a brief survey on MPS outcomes that are important to you: redcap.link/MPSsurvey.

Mark your calendars! We are only 2 nights away from this year's National Family Conference 🥳 Register now at: eventbrite.com/e/canmps-2021-…

Get excited!🤗 Our auction is live now until October 2nd at 5 pm PST! Check out the link below for cool prizes like a Harry Potter getaway to Victoria, paintings by Canadian artists, fitness memberships, date night packages, and more! 32auctions.com/CanMPS

📢There is less than 1 week left to fill out our MPS outcomes survey! If you are a Canadian child/youth (14-25 yrs) with MPS or a parent/caregiver to a child (0-18 yrs) with MPS, please consider filling out this brief survey by Monday, Sept. 20: redcap.link/MPSsurvey. Please RT

T-1 day until our 2021 National Family Conference!😁 Make sure to grab your tickets by then: eventbrite.com/e/canmps-2021-… Tune in tomorrow at 12 pm PST and turn your notifications on so you don’t miss anything! #MPS #MPSawareness #canmps

We're excited to welcome you to our 2021 National Family Conference🎉 To learn more, head to events.mpssociety.ca Thank you to our industry partners & sponsors for making this event possible!☺️ Takeda @SanofiGenzyme AbeonaBio REGENXBIO Ultragenyx Orchard Therapeutics - U.S.

Sign up and help us raise funds for supporting MPS-affected families in Canada!😄 To support the Canadian MPS Society's 17th Annual Fundraising gala, @FreshPrepCa is donating $10 to CanMPS for every new sign up using this link: freshprep.ca/bdmps

💙 Today’s the day! 💙 We are very excited to welcome you to our 2021 National Family Conference! Check out this post for today’s program’s agenda. Stayed tuned for more updates this week, we look forward to seeing you soon! *Please note that the listed times are in EST

Day 2 of the National Family Conference! Come join us in the lobby today for live networking sessions😊

Recordings of yesterday's session are available on our virtual conference platform. Please visit the conference area to watch the presentations from 15 Sep 2021!

Thank you all for attending our 2021 National Family Conference! Don't miss out on our 17th Annual Fundraising Event - A Rare And Starry Night Gala on October 2 & participate in our online auction at 32auctions.com/canmps. Looking forward to see you soon🤗

We are less than 2 weeks away from "A Rare And Starry Night Gala"! Join us on October 2nd from 2-5pm PST to support MPS-affected families in Canada. Register now at: 2021canmpsgala.eventbrite.com/?ref=estw

Calling all Vancouver Canucks fans!🏒 We have an autographed Elias 'Petey' Pettersson jersey up for bids on our auction! For more info, head to 32auctions.com/canmps #canucks #vancouvercanucks Elias Pettersson Canucks PR

Last day to complete the survey! The INFORM RARE research team welcomes you to participate in a research survey to understand which outcomes are important to include in future research studies regarding MPS disorders. To learn more about the survey, go to: redcap.link/MPSsurvey

We can satisfy your food cravings! Check out our food and restaurant packages on our auction, available until October 2nd 😊 @FreshPrepCa EWineMore OldSpaghettiFactory Botanica Health

Look out for hot clothing & accessories items live on our auction!🤑 32auctions.com/canmps EASTCOAST LIFESTYLE DECIEM modechoc Foxy Originals @PoppyBarley Cheekbone Beauty 💋 Hunni's

We are #hiring! Are you passionate about giving back to the community OR know someone who is interested in supporting a rare disease advocacy organisation? Apply today to join our team as Program Assistant. #remoteworking #administration #rarediseases #nonprofits #remotework

Jennifer Lynn Boland, age 44 years, passed peacefully away at her home with her parents, Barb and Gary, by her side, after a courageous battle with Sanfilippo Syndrome. Donations in her memory can be made to mpssociety.ca bit.ly/3AnOUMf

Registration is now open for the Canadian MPS Society National Family Conference in Calgary, Alberta from July 21 to 23, 2023! mpssociety.ca/2023-nfc/ @Maureenchats