Caring For Lupus (@caringforlupus) 's Twitter Profile
Caring For Lupus

@caringforlupus

Passionate about improving Lupus Awareness; Co-host of #LupusChat (Sun. 3pm EST) - #Lupus #LupusWarrior #LupusAwareness #KearnyCares #BerkeleyAlumni #PinkSocks

ID: 726943553742606337

linkhttp://caringforlupus.wix.com/caringforlupus calendar_today02-05-2016 01:17:04

31,31K Tweet

3,3K Followers

790 Following

Laurent ARNAUD (@lupusreference) 's Twitter Profile Photo

✅ #LupusAwarenessMonth In #lupus, current data suggest that there is a trade-off between the benefits and risks of #hydroxychloroquine: ➡️ HIGHER dose of HCQ (>5mg/kg/day): LESS (risk of) flare & MORE retinopathy ➡️ LOWER dose of HCQ (<=5mg/kg/day): MORE flare & LESS retinopathy

✅ #LupusAwarenessMonth
In #lupus, current data suggest that there is a trade-off between the benefits and risks of #hydroxychloroquine:
➡️ HIGHER dose of HCQ (&gt;5mg/kg/day): LESS (risk of) flare &amp; MORE retinopathy
➡️ LOWER dose of HCQ (&lt;=5mg/kg/day): MORE flare &amp; LESS retinopathy
Lupus Detroit (@lupusdetroit) 's Twitter Profile Photo

💜 Living with lupus means being ready for flare days. A “Flare Day Kit” can bring comfort when symptoms hit. What’s in YOUR kit? 🌸 #LupusAwareness #FlareDayKit #LupusDetroit #ChronicIllness

💜 Living with lupus means being ready for flare days. A “Flare Day Kit” can bring comfort when symptoms hit.
What’s in YOUR kit? 🌸
#LupusAwareness #FlareDayKit #LupusDetroit #ChronicIllness
Versus Arthritis (@versusarthritis) 's Twitter Profile Photo

It's #LupusAwarenessMonth. 🗓️ For the thousands living with #lupus it's important to look after yourself. Drugs are important in controlling lupus, but there is also a lot you can do yourself to help manage your symptoms. Find out more: versusarthritis.org/about-arthriti…

It's #LupusAwarenessMonth. 🗓️

For the thousands living with #lupus it's important to look after yourself. Drugs are important in controlling lupus, but there is also a lot you can do yourself to help manage your symptoms. 

Find out more: versusarthritis.org/about-arthriti…
Federación Española Lupus | #CONGRESOLUPUS24 (@felupus) 's Twitter Profile Photo

Los pacientes con #Lupus tienen más riesgo de 💔 cardiovasculares 🦴 osteoporosis 💉 infecciones o cáncer Coral Mouriño  en el #CongresoLupus25  👉🏻cuidar comorbilidades es esencial. #PacienteActivo

Los pacientes con #Lupus tienen más riesgo de
💔 cardiovasculares
🦴 osteoporosis
💉 infecciones o cáncer

<a href="/coralmourino/">Coral Mouriño</a>  en el #CongresoLupus25 
👉🏻cuidar comorbilidades es esencial.

#PacienteActivo
Federación Española Lupus | #CONGRESOLUPUS24 (@felupus) 's Twitter Profile Photo

🔑 Conclusiones de Coral Mouriño en el #CongresoLupus25: ✅ La enfermería es un pilar en coordinación y seguimiento ✅ Educación y comunicación mejoran adherencia y calidad de vida ✅ Abordaje integral incluye comorbilidades y hábitos ✅ El #PacienteInformado es protagonista

🔑 Conclusiones de <a href="/coralmourino/">Coral Mouriño</a> en el #CongresoLupus25:

✅ La enfermería es un pilar en coordinación y seguimiento
✅ Educación y comunicación mejoran adherencia y calidad de vida
✅ Abordaje integral incluye comorbilidades y hábitos
✅ El #PacienteInformado es protagonista
Federación Española Lupus | #CONGRESOLUPUS24 (@felupus) 's Twitter Profile Photo

Hemos juntado ciencia y realidad del paciente. Os presentamos el resultado de un estudio donde veréis reflejada la voz de los pacientes con nefritis lúpica Silvia Ortega, presidenta de @felupus #CongresoLupus25

Hemos juntado ciencia y realidad del paciente. Os presentamos el resultado de un estudio donde veréis reflejada la voz de los pacientes con nefritis lúpica
Silvia Ortega, presidenta de @felupus
#CongresoLupus25
Donald Thomas, MD (@lupuscyclopedia) 's Twitter Profile Photo

Dry mouth and poor dental health occur much more commonly in #Sjogrens #SLE #lupus. There are many things patients can do to proactively prevent tooth loss and help dry mouth: lupusencyclopedia.com/prevent-early-…

NHS Kent and Medway (@nhskentmedway) 's Twitter Profile Photo

October is #LupusAwarenessMonth. Lupus is an autoimmune condition. This means the body's natural defence system (immune system) attacks healthy parts of your body. 💻 Find out more on the symptoms of Lupus: nhs.uk/conditions/lup…  💙 Find support: lupusuk.org.uk

October is #LupusAwarenessMonth.

Lupus is an autoimmune condition. This means the body's natural defence system (immune system) attacks healthy parts of your body.

💻 Find out more on the symptoms of Lupus: nhs.uk/conditions/lup… 

💙 Find support: lupusuk.org.uk
Lupus Academy (@lupusacademy) 's Twitter Profile Photo

At #LupusAcademy2025, Professors Ian Giles & Angela Tincani with Dr Ana-Luisa Stefanski moderating explore family planning and pregnancy in SLE - from IVF recommendations to managing anti-Ro⁺ disease and treating active lupus safely during pregnancy. #SLE #Lupus #Rheumatology

At #LupusAcademy2025, Professors Ian Giles &amp; Angela Tincani with Dr Ana-Luisa Stefanski moderating explore family planning and pregnancy in SLE - from IVF recommendations to managing anti-Ro⁺ disease and treating active lupus safely during pregnancy. #SLE #Lupus #Rheumatology
Lupus Research (@lupusresearch) 's Twitter Profile Photo

Today is #WorldMentalHealthDay—a reminder to prioritize your well-being and to raise awareness about neuropsychiatric lupus, which affects the brain. If you have lupus and experience cognitive or mental health challenges, lupus could be the underlying cause. 🧠 Learn more about

Today is #WorldMentalHealthDay—a reminder to prioritize your well-being and to raise awareness about neuropsychiatric lupus, which affects the brain. If you have lupus and experience cognitive or mental health challenges, lupus could be the underlying cause. 🧠
Learn more about
Lupus Research (@lupusresearch) 's Twitter Profile Photo

Just 1 week away from the LRA Walk with Us to Cure Lupus events on October 18! 📍 New York City - Intrepid Museum 📍 Dallas - Glencoe Park 💻 Virtual on Instagram Live Every step raises funds for vital research, bringing us closer to personalized treatments and a cure. Join

Just 1 week away from the LRA Walk with Us to Cure Lupus events on October 18!
📍 New York City - Intrepid Museum 
📍 Dallas - Glencoe Park
💻 Virtual on Instagram Live 

Every step raises funds for vital research, bringing us closer to personalized treatments and a cure.
Join
Lupus Research (@lupusresearch) 's Twitter Profile Photo

#DidYouKnow lupus can cause joint pain and swelling too? Recognizing your symptoms and checking in with your doctor can make all the difference. 👉 Explore resources at LupusResearch.org ___ ¿Sabías que el lupus también puede causar dolor e inflamación en las

#DidYouKnow lupus can cause joint pain and swelling too? Recognizing your symptoms and checking in with your doctor can make all the difference.
👉 Explore resources at LupusResearch.org
___

¿Sabías que el lupus también puede causar dolor e inflamación en las
Panlar (@panlarleague) 's Twitter Profile Photo

En el marco del Día Mundial de la Artritis, desde PANLAR queremos compartir información esencial que ayuda a comprender mejor esta condición y la importancia de un abordaje integral. 💙 Desliza y descubre datos que pueden marcar la diferencia en la vida de quienes conviven con

En el marco del Día Mundial de la Artritis, desde PANLAR queremos compartir información esencial que ayuda a comprender mejor esta condición y la importancia de un abordaje integral. 💙

Desliza y descubre datos que pueden marcar la diferencia en la vida de quienes conviven con
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Lupus can cause swollen lymph nodes, leading to inflammation and a build up of white blood cells in the lymph nodes. These nodes can swell in areas like the neck, armpits, and groin due to lupus flares or active disease. #lupusawarenessmonth #lupustrust #lupus #lymphnodes

Lupus can cause swollen lymph nodes, leading to inflammation and a build up of white blood cells in the lymph nodes. These nodes can swell in areas like the neck, armpits, and groin due to lupus flares or active disease.
#lupusawarenessmonth #lupustrust #lupus #lymphnodes
Lupus Europe (@lupuseurope) 's Twitter Profile Photo

💜 What an inspiring poster by Andri, from Σύνδεσμος Ρευματοπαθών Κύπρου, at the #LupusConvention!  🗣️ “My Voice Has Space” creates a safe environment for people with lupus to share their experiences freely. 💡 “My Voice Becomes Action” turns those voices into creation, connection & mobilisation.

💜 What an inspiring poster by Andri, from <a href="/Cyplar1/">Σύνδεσμος Ρευματοπαθών Κύπρου</a>, at the #LupusConvention! 

🗣️ “My Voice Has Space” creates a safe environment for people with lupus to share their experiences freely.

💡 “My Voice Becomes Action” turns those voices into creation, connection &amp; mobilisation.
Federación Española Lupus | #CONGRESOLUPUS24 (@felupus) 's Twitter Profile Photo

¿Qué es el lupus y cómo convivir con él? La Dra. Irene Altabás (Reumatología, Hospital U. San Roque de Las Palmas), explicó en el #CongresoLupus25 q el lupus eritematoso sistémico (LES) es una enfermedad autoinmune crónica y no contagiosa: el sistema inmunitario confunde las células⬇️

¿Qué es el lupus y cómo convivir con él?
La Dra. <a href="/irealt2/">Irene Altabás</a> (Reumatología, Hospital U. San Roque de Las Palmas), explicó en el #CongresoLupus25 q el lupus eritematoso sistémico (LES) es una enfermedad autoinmune crónica y no contagiosa: el sistema inmunitario confunde las células⬇️
U-M Family Medicine (@umfamilymed) 's Twitter Profile Photo

Prof. Suzanna Zick et al publishes paper on piloted, patient-centered digital program, finding it helps people with #Lupus build self-management skills, improve fatigue & enhance patient-provider interactions. More work to come on improving the program. michmed.org/Q9Ymv

Prof. Suzanna Zick et al publishes paper on piloted, patient-centered digital program, finding it helps people with #Lupus build self-management skills, improve fatigue &amp; enhance patient-provider interactions. More work to come on improving the program.

michmed.org/Q9Ymv
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Petechiae, small red or purple spots under the skin, can be a symptom of lupus, particularly when associated with low platelet counts. These spots result from bleeding under the skin & in lupus, they often appear due to the disease's impact on blood clotting. #lupusawarenessmonth

Petechiae, small red or purple spots under the skin, can be a symptom of lupus, particularly when associated with low platelet counts. These spots result from bleeding under the skin &amp; in lupus, they often appear due to the disease's impact on blood clotting. #lupusawarenessmonth
Federación Española Lupus | #CONGRESOLUPUS24 (@felupus) 's Twitter Profile Photo

Discapacidad e incapacidad permanente en el LUPUS Dra. Ana Benito Benito, perito médico y paciente con #lupus, abordó en el #CongresoLupus25 un tema tan necesario como complejo: la discapacidad y la incapacidad permanente en enfermedades invisibles y fluctuantes como el lupus ⬇️

Discapacidad e incapacidad permanente en el LUPUS

Dra. Ana Benito Benito, perito médico y paciente con #lupus, abordó en el #CongresoLupus25 un tema tan necesario como complejo: la discapacidad y la incapacidad permanente en enfermedades invisibles y fluctuantes como el lupus
⬇️