🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

We will match the donations made to Friends of FSH Research to support new FSHD researchers. Bid now! friendsfshresearch.betterworld.org/auctions/giveb…

It’s World FSHD Day! #FSHD is the most prevalent form of Muscular Dystrophy. Approximately 1 million people worldwide have FSHD It’s a progressive disease with no treatment and no cure. But we’re getting close…. Please donate with the link in our bio

Muscle function in FSHD improved with AOC 1020 (now del-brax) treatment #FSHD musculardystrophynews.com/news/muscle-fu…

Don’t miss the newest episode of FSHD Straight Talk! Tim interviews Chris Carrino, voice of the Brooklyn Nets and founder of the Chris Carrino Foundation for FSHD Carrino Foundation! youtu.be/BRW-YuBnuu8

Me and my #Jazzyair2 checking out the latest hotspot in Asbury Park, NJ…’cause that’s how we roll. #pridemobility

An open-label pilot study of losmapimod to evaluate the safety, tolerability, and changes in biomarker and clinical outcome assessments in participants with facioscapulohumeral muscular dystrophy type 1 - ScienceDirect #FSHD sciencedirect.com/science/articl…

Been a minute since I took in a Dave Matthews Band show. Thanks PNC Bank Arts Center for the accessibility. Get out there!! #BeRelentless #Pridemobility #jazzyair2

Study: Upper limb function in FSHD improved, stabilized with losmapimod musculardystrophynews.com/news/study-upp…

🎬 Check out “Good Bad Things: Worldwide Virtual Premiere” on VEEPS This weekend only. FSHD portrayed on screen like never before by Danny Kurtzman in a poignant performance. 25% of the purchase thru this link will go to the foundation. veeps.com/goodbadthings/…

That’s a wrap on 2024…. #pridemobility #jazzyair2 #jazzycarbon #berelentless

Today on #RareDiseaseDay, we stand with the 870,000 people living with FSHD. 💜 Awareness fuels research, and research leads to a cure. Share and support! 💪 #CureFSHD #FSHDawareness

Epicrispr Biotechnologies Announces FDA Clearance of IND Application for EPI-321, A First-in-Class Epigenetic Therapy for FSHD businesswire.com/news/home/2025…

“If you want to conquer fear….” #pridemobility #Jazzyair2 #BeRelentless #CureFSHD

Avidity Biosciences Announces the Accelerated Approval Regulatory Pathway in the U.S. is Open for Del-Brax and Initiates the Global, Confirmatory Phase 3 FORWARD™ Study in FSHD aviditybiosciences.investorroom.com/2025-06-09-Avi…

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On #WorldFSHDDay please lend your voice with a donation and help us continue the work of finding a treatment for #FSHD. app.donorview.com/Donation/Donat…

📺 Watch “Your New Jersey” Saturdays at 6 AM and Sundays at 8 AM on MeTV WJLP New Jersey/New York! My guests this weekend are: 1️⃣: 🏀 Chris Carrino, longtime radio voice of the Brooklyn Nets and founder of Carrino Foundation 2️⃣: Highlights from Fanatics Fest with Make-A-Wish New Jersey 🌟 3️⃣: 🏟️