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We are saddened to hear of the passing of Her Majesty Queen Elizabeth II. Our thoughts tonight are with her family. #QueenElizabeth

We want to learn more about social and emotional well-being among children and young people with CdLS. Please get in touch with Beth ([email protected]) if you’re interested in taking part.

Thank you Jo Moss Kat Ellis Bethany Jones for flying to Glasgow to join us. Your research and expertise is vital to us and all families on the CdLS journey.

#InternationalCdLSAwarenessDay

CdLS groups from all over the world join together today for the purpose of raising awareness of this rare syndrome. Watch the full video facebook.com/cdlsukireland

If you are in Bolton today, why not pop in for an icream #internationalcdlsawarenessday2023 #cdlssupport #craftforcdls instagram.com/p/CsLPjgLKCEd/…

#InternationalCdLSAwarenessDay2023 Attention Autism Session for CdLS Awareness Day. For the full session please visit our Facebook page facebook.com/cdlsukireland/

#InternationalCdLSAwarenessDay2023

A Signed Story for #InternationalCdLSAwarenessDay2023. Visit facebook.com/cdlsukireland/ for the full story.

So wonderful to see the posts from CdLS awareness day over the weekend! Parents and caregivers of children and adults with CdLS are invited to take part in a survey to help researchers better understand behaviour, wellbeing, emotion and health in CdLS cerebranetwork.com/beond-cdls

The aim of the BEOND study is to improve understanding and awareness of rare genetic syndromes like CdLS. We are now recruiting caregivers of children and adults with CdLS. You can take part by completing a survey (online or posted paper copy) via the link or QR code below:

Thank you, we hope you enjoyed your snacks!

Participate in the Checklist Project. A tool for parents to understand behaviours that challenge. For parents of children aged 4-18 with a moderate-profound learning disability. #disabilityresearch #geneticsyndromes Warwick Med School University of Warwick Neurodevelopmental_conditions_research@WMS Cerebra Network

We would like to hear your views about our online teacher training resource: findteacherresources.co.uk. Please contact Kat Ellis at [email protected] for more information

IT's OUT! A gaze following paradigm w/ autistic ppts & ppts w/ genetic syndromes (#FXS #CdLS) w/ unique profiles of autism characteristics in CORTEX for the neurodevelopmental neurodiversity issue! 🥳 tinyurl.com/2s4npec9 Jo Moss Sarah J White Malwina 1/6