🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

We will be reviewing initial applications for our new advisory panel for people with lived experience of mTOR pathway related conditions soon- find out more below! Tuberous Sclerosis Association GoPI3Ks (Genetic Overgrowth PI3K Support) ptenuki LAM Action Myrovlytis Trust Child Growth Foundation Epilepsy Research Institute

Today the 15th of May marks the Global Awareness day of TSC!💚🌍Today the TSC community are coming together to raise awareness of TSC and advocate for it's support and treatment. Join us in sharing your experiences and knowledge of TSC! #TSCglobalday #United4TSC

Fully funded PhD studentship available! Join our lab investigating genetic and environmental influences on early child behaviour. Gain transferable skills in scientific enquiry, coding, writing, presenting & more, deadline June 15th tinyurl.com/4faejtsm RTs appreciated!

#ShapeResearchChangeLives We compared the research landscape to priorities for people with Down syndrome (DS), Fragile X syndrome (FXS), and Williams syndrome (WS) and the people who support them. To download our report: shorturl.at/X6V75 x.com/ekfarran/statu…

Important work from the fab Natasha L exploring parental concerns and research priorities in early-onset epilepsy BEE_Study ResearchNet ERI

Great to be a part of this webinar, thanks for inviting me AIMS-2-TRIALS - check out the recording below

✨ New job alert! ✨ 3yr post doc position with Emily Jones Lorenzo Fabrizi looking at sensory development in babies born pre term Birkbeck BabyLab & ToddlerLab UCLH cis7.bbk.ac.uk/vacancy/postdo…

Great to see Kate Fifield and our incoming PhD student Cheyenne at the Tuberous Sclerosis Association Big Day this year. Well done Kate on a great talk, and thanks to the TSC community for continuing to shape this research 🤝

Great working with Lauren Jenner on this commentary about the inclusion of people with intellectual disability in autism research. You can read the full article here: rdcu.be/dN5Uv Nature Reviews Psychology Cerebra Network Surrey [email protected]

Saying a fond farewell to our incredible placement students this year, Anishka and Katie- you have been absolute superstars! Look forward to catching up with you in final year 🌟🎳⛳️

Excellent news including my wonderful colleague Emily Jones joining us at Institute of Psychiatry, Psychology & Neuroscience King's Maudsley Partnership 😀

A snippet from our day. I feel privileged to lead #PPI for the mTOR node and to learn so much from our patient organisation partners and lived experience experts- thank you for giving your time and helping our research grow. Watch this space! Institute of Psychiatry, Psychology & Neuroscience

We had a brilliant time attending the mTOR Pathway Diseases node patient organisation workshop last week. Great to hear exciting updates from the #Research team and a great opportunity to connect with other patient orgs Joseph Bateman Charlotte Tye

🧲Ready to make a real difference in research and advocacy? 📡By listening, sharing, and working together, we can better address the challenges faced in rare disease research 🌟Join us for our free webinar on Introduction to Co-Production! Register now🔗tinyurl.com/yy2af665

📣 We are advertising three fully funded PhDs with @devine_mr_rory and Hayley Crawford working on measuring cognition in people with intellectual disability. Deadline 31st March. tinyurl.com/bdd3vpph College of Life and Environmental Sciences School of Psychology, University of Birmingham UoB Centre for Developmental Science

🖥️One tool. Endless possibilities! The #AtlasLongitudinalDatasets allows you to do more than explore datasets from around the world. You can compare features, use a list or map view, narrow down with filters and save your searches! Check it out here: atlaslongitudinaldatasets.ac.uk

Delighted to be mentioned here, and grateful to Tuberous Sclerosis Association for kickstarting our #TSC research and for continued collaboration and support!

The ongoing BEE_Study, funded by the Epilepsy Research Institute and Autistica, is investigating how the development of babies with early-onset #epilepsy differs to typically developing babies. Are you the parent of a baby under 10 months old? Find out more and take part here…

🏠How to effectively involve patient communities in creating meaningful resources? 👉Join our webinar tomorrow and find out more! 🖥️Register now if you haven't already! tinyurl.com/yy2af665

A brilliant few days for our team at the Epilepsy Research Institute inaugural conference: 2 talks, 3 posters & 1 best poster prize Kate Fifield 🎉 We shared work on early neurodevelopment & PPIE in epilepsy. Huge congrats to Kate, Cheyenne & Emma for their contributions!