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A dad from Wales is urging other parents to look out for the tell-tale signs of eye cancer this #RbWeek after his one-year-old son, Kooper, was diagnosed with retinoblastoma – a rare eye cancer that typically affects children under the age of six: buff.ly/XJYgTkJ

A squint, where the eyes do not look in the same direction, can sometimes be a symptom of retinoblastoma. In many cases, it’s nothing more than a squint but all children should be checked out, as it’s the second most common sign of retinoblastoma (childhood eye cancer) #RbWeek

We spoke to Natalie, who had retinoblastoma when she was a child, about the struggles she faced after her diagnosis, and how she is doing now. A big thank you to Natalie for sharing your story with us this World Retinoblastoma Awareness Week: buff.ly/b8Rw1oY

In a photo where one eye has “red eye” (which is normal), the other eye may look black. This can be a sign that something is not right. Learn more signs and symptoms on our website: buff.ly/32SmiQ3

The iris – the coloured part of the eye – can change colour in one eye, sometimes only in one area, when a child has retinoblastoma (childhood eye cancer). If you notice a change in the colour of your baby or child’s iris, let a GP or optometrist know #RbWeek

This week CHECT UK is raising awareness for World Retinoblastoma Awareness Week. According to CHECT 75% of optometrists who examined a child with retinoblastoma made urgent onward referrals. Read more here: ow.ly/UqYI50VSn9Q #RbWeek #OT

Your child’s vision may begin to deteriorate, or they may have had poor vision from birth. You may notice that they don’t focus, fix and follow as well as other children of the same age. You should visit a GP or optometrist and request a fundal (red) reflex test #RbWeek

Your child’s vision may begin to deteriorate, or they may have had poor vision from birth. You may notice that they don’t focus, fix and follow as well as other children of the same age. Learn more signs and symptoms of retinoblastoma over on our website: buff.ly/32SmiQ3

Seventeen-year-old Jack, was diagnosed with retinoblastoma as a baby after his eye became swollen. On our CHECT TYA (teens and young adults) blog, Jack talks us through his experiences and completing his goal of learning to drive: buff.ly/mMWS6AQ

In a photo where one eye has “red eye” (which is normal), the other eye may look black. This can be a sign of retinoblastoma (childhood eye cancer). A fundal (red) reflex test can help to show if further examination is required #RbWeek

Your child’s eye may become very red and inflamed for no obvious reason – and with no sign of infection. This symptom is usually accompanied by one or more of the other signs of retinoblastoma. Learn more signs and symptoms over on our website: buff.ly/32SmiQ3

If you spot a sign or symptom of childhood eye cancer (known as retinoblastoma), have your child’s eyes checked out by a GP or optometrist as soon as possible. Visit chect.org.uk for more information #RbWeek

A squint, where the eyes do not look in the same direction, can sometimes be a symptom of retinoblastoma. In most cases, it’s nothing serious, but all children should be checked out just in case. Learn more signs and symptoms on our website: buff.ly/32SmiQ3

We want to say a huge thank you to everybody who shared posts, raised awareness and fundraised for us during #RbWeek We are delighted to share that our story about Kooper reached the national press - thank you to the family: buff.ly/B2Ys6Ie

We are very grateful to the Ulverscroft for their generous donation towards the costs of CHECT’s events and social media - helping us to both offer support and raise awareness of retinoblastoma.

Father's Day is fast approaching and we’re asking children (maybe with a bit of help) to nominate their dads for an honorary CHECT Champion Award: buff.ly/YIxvYil

Thank you so much to everyone who took part in our 2024 CHECT Members’ Survey. Have a read of the findings over on our blog: buff.ly/4MorrkP

This week we are saying goodbye and good luck to Laura Reynolds, one of the Royal London CNSs. On behalf everyone at CHECT and the many families you have looked after and supported, we wanted to say a massive thank you and good luck in this new role.

Did you know that we have a website specifically aimed at teenagers and young adults who have had retinoblastoma? Head over to buff.ly/kIhgWbH to read stories and access information!

Thanks to CHECT’s partnership with the wonderful Box4Kids, Lyla and her cousin were able to go and see Olly Murs. Lyla's mum Kelly said, "They had the best experience and danced all night and loved the VIP suite a experience they would never normally get to experience."