
Child UnLimited
@childunltd
An Australian network of researchers, clinicians & advocates working to improve the lives of children with chronic illness.
ID: 1116855902701625344
http://www.childunlimited.org 13-04-2019 00:09:32
296 Tweet
360 Followers
259 Following

New paper by TORCH Study and QUOKKA Research Program: Check out our open-access `Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures’ at Chris Carswell: tinyurl.com/2p88erfb



It was great to chat today with #KatTheophanous, Anthony Carbines MP Victorian Labor and Ged Kearney Australian Labor together with Child UnLimited consumer advocacy and engagement manager Kris Pierce about health and disability issues such as #chronicillness and the #NDIS. #DefendOurNDIS


Join Laurel Mimmo PhD and (Elizabeth) Emma Palmer (she / her) for the launch of SPHERE five year report.

A privilege to present on the co-design panel at #giantsteps yesterday. I am very passionate about consumers as partners in health and grateful to now be working in this space. #codesign #livedexperience #healthcare Child UnLimited #GiantSteps22



Your input is needed on research gender equity in Investigator Grant scheme. Forums being held across Australia. Come along and lend your voice to this important issue Childrens Cancer Institute NanoMed UNSW Medicine & Health UNSW UNSW RNA Institute #WomenInSTEM #equity @aipolsci The Australian Society for Medical Research (ASMR) AAMRI

Congratulations to Child UnLimited director Harriet Hiscock on the release of a series of evidence based sleep resources for babies and young children.

New research from Clarissa Schilstra, PhD and colleagues demonstrating the mental health impacts of cancer treatment on patients and families. Find out more below 👇#chronicillness bmccancer.biomedcentral.com/articles/10.11…

We're Live! Welcome Dr Monique Ryan MP and thank you for your words on the importance of listening to young people and families to improve health outcomes Join us 👇 eventbrite.com.au/e/child-unlimi…

Thank you Gail and Childhood Dementia Initiative for sharing your experiences advocating for families affected by childhood dementia - your team has achieved so much in a short amount of time Join us 👇 eventbrite.com.au/e/child-unlimi…


@Satb2Australia Founder, Dalal Baumgartner sharing Naomi’s story and how SATB2 impacts her wellbeing.. It takes a village when you have a rare chronic illness #satb2 Child UnLimited


Thank you Tiana Kittos for showing us how we can better support children and families affected by #ChildhoodCancer at hospital, school and home

Thank you Joanna Fardell and Clarissa Schilstra, PhD for highlighting the need to support AYAs with chronic conditions at school and into the workplace


Interested in culturally appropriate whole of life care for #raredisease? Our RArEST ProjectECHO next interactive webinar for health professionals is happening tomorrow! Join for free: airtable.com/shrxKxtkOMZKjL…


A huge thank you to Dr Mike Freelander and Dr Monique Ryan MP for hosting the Child UnLimited Launch in Parliament House this week A fantastic opportunity to raise awareness for the issues faced by kids with chronic illnesses and think about solutions




📢So pleased to be at the Queensland Children's Hospital for the Child UnLimited Annual Workshop📢 Amanda Kris Pierce Population Child Health Research Tiana Kittos Catherine Nguyen

