Child UnLimited (@childunltd) 's Twitter Profile
Child UnLimited

@childunltd

An Australian network of researchers, clinicians & advocates working to improve the lives of children with chronic illness.

ID: 1116855902701625344

linkhttp://www.childunlimited.org calendar_today13-04-2019 00:09:32

296 Tweet

360 Followers

259 Following

TORCH Study (@torchstudy) 's Twitter Profile Photo

New paper by TORCH Study and QUOKKA Research Program: Check out our open-access `Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures’ at Chris Carswell: tinyurl.com/2p88erfb

New paper by <a href="/TORCHStudy/">TORCH Study</a> and <a href="/QUOKKA_Research/">QUOKKA Research Program</a>: Check out our open-access `Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures’ at <a href="/PECjournal/">Chris Carswell</a>: tinyurl.com/2p88erfb
Child UnLimited (@childunltd) 's Twitter Profile Photo

Today our consumer lead Kris Pierce had the opportunity to meet Minister Ruston to discuss childhood illness, health research, rare disease & the NDIS. We look forward to building a better future for children with chronic illnesses. #health #ndis #childhoodillness #raredisease

Today our consumer lead Kris Pierce had the opportunity to meet Minister Ruston to discuss childhood illness, health research, rare disease &amp; the NDIS. We look forward to building a better future for children with chronic illnesses. 
#health #ndis  #childhoodillness #raredisease
Heather Renton (@heatherrenton) 's Twitter Profile Photo

It was great to chat today with #KatTheophanous, Anthony Carbines MP Victorian Labor and Ged Kearney Australian Labor together with Child UnLimited consumer advocacy and engagement manager Kris Pierce about health and disability issues such as #chronicillness and the #NDIS. #DefendOurNDIS

It was great to chat today with #KatTheophanous, <a href="/ACarbinesMP/">Anthony Carbines MP</a> <a href="/VictorianLabor/">Victorian Labor</a> and <a href="/gedkearney/">Ged Kearney</a> <a href="/AustralianLabor/">Australian Labor</a> together with <a href="/ChildUnLTD/">Child UnLimited</a>  consumer advocacy and engagement manager <a href="/krispmelb/">Kris Pierce</a> about health and disability issues such as #chronicillness and the #NDIS. #DefendOurNDIS
Kris Pierce (@krispmelb) 's Twitter Profile Photo

A privilege to present on the co-design panel at #giantsteps yesterday. I am very passionate about consumers as partners in health and grateful to now be working in this space. #codesign #livedexperience #healthcare Child UnLimited #GiantSteps22

A privilege to present on the co-design panel at #giantsteps yesterday. 

I am very passionate about consumers as partners in health and grateful to now be working in this space. 

#codesign #livedexperience #healthcare 

<a href="/ChildUnLTD/">Child UnLimited</a> #GiantSteps22
Dr Moira Clay (@loscienziato) 's Twitter Profile Photo

I'm really looking forward to running one of my favourite workshops about a particular passion of mine - developing Institutional Research Talent. It all kicks off on Monday morning! #ARMSwinterschool #moiraclayconsulting linkedin.com/posts/australa…

Child UnLimited (@childunltd) 's Twitter Profile Photo

New research from Clarissa Schilstra, PhD and colleagues demonstrating the mental health impacts of cancer treatment on patients and families. Find out more below 👇#chronicillness bmccancer.biomedcentral.com/articles/10.11…

Child UnLimited (@childunltd) 's Twitter Profile Photo

We're Live! Welcome Dr Monique Ryan MP and thank you for your words on the importance of listening to young people and families to improve health outcomes Join us 👇 eventbrite.com.au/e/child-unlimi…

Child UnLimited (@childunltd) 's Twitter Profile Photo

Thank you Gail and Childhood Dementia Initiative for sharing your experiences advocating for families affected by childhood dementia - your team has achieved so much in a short amount of time Join us 👇 eventbrite.com.au/e/child-unlimi…

Thank you Gail and <a href="/Child_Dementia/">Childhood Dementia Initiative</a> for sharing your experiences advocating for families affected by childhood dementia - your team has achieved so much in a short amount of time 

Join us 👇
eventbrite.com.au/e/child-unlimi…
Kris Pierce (@krispmelb) 's Twitter Profile Photo

@Satb2Australia Founder, Dalal Baumgartner sharing Naomi’s story and how SATB2 impacts her wellbeing.. It takes a village when you have a rare chronic illness #satb2 Child UnLimited

@Satb2Australia Founder, Dalal Baumgartner sharing Naomi’s story and how SATB2 impacts her wellbeing.. It takes a village when you have a rare chronic illness #satb2 <a href="/ChildUnLTD/">Child UnLimited</a>
Child UnLimited (@childunltd) 's Twitter Profile Photo

Thank you Tiana Kittos for showing us how we can better support children and families affected by #ChildhoodCancer at hospital, school and home

(Elizabeth) Emma Palmer (she / her) (@emmagenetics) 's Twitter Profile Photo

Interested in culturally appropriate whole of life care for #raredisease? Our RArEST ProjectECHO next interactive webinar for health professionals is happening tomorrow! Join for free: airtable.com/shrxKxtkOMZKjL…

Interested in culturally appropriate whole of life care for #raredisease? Our <a href="/RArESTECHO/">RArEST ProjectECHO</a> next interactive webinar for health professionals is happening tomorrow! Join for free: airtable.com/shrxKxtkOMZKjL…
Child UnLimited (@childunltd) 's Twitter Profile Photo

A huge thank you to Dr Mike Freelander and Dr Monique Ryan MP for hosting the Child UnLimited Launch in Parliament House this week A fantastic opportunity to raise awareness for the issues faced by kids with chronic illnesses and think about solutions

A huge thank you to Dr Mike Freelander and <a href="/Mon4Kooyong/">Dr Monique Ryan MP</a> for hosting the Child UnLimited Launch in Parliament House this week

A fantastic opportunity to raise awareness for the issues faced by kids with chronic illnesses and think about solutions
Child UnLimited (@childunltd) 's Twitter Profile Photo

Child UnLTD Annual Workshop 2023 "We can achieve so much more working together with consumers and across conditions" Hoping 2024 brings a productivity commission or parliamentary inquiry for chronic illness in children #childunlimited #chronicillness

Child UnLTD Annual Workshop 2023 

"We can achieve so much more working together with consumers and across conditions" 

Hoping 2024 brings a productivity commission or parliamentary inquiry for chronic illness in children  

#childunlimited #chronicillness
Child UnLimited (@childunltd) 's Twitter Profile Photo

#RareDiseaseDay2024 is an important day to raise awareness for rare disease and the impacts on the families living with these conditions Did you know? 1. There are 300 million people worldwide living with a rare disease 2. 70% of these genetic rare diseases begin in childhood

#RareDiseaseDay2024 is an important day to raise awareness for rare disease and the impacts on the  families living with these conditions

Did you know?
1. There are 300 million people worldwide living with a rare disease
2. 70% of these genetic rare diseases begin in childhood